Except for family members, T. Wayne Downey, M.D., Susie Chang, and Judith Schwartz, all other people who appear in this book are referred to by pseudonyms.
All rights reserved.
Published in the United States by Random House, an imprint and division of Penguin Random House LLC, New York.
Random House and the House colophon are registered trademarks of Penguin Random House LLC.
Grateful acknowledgment is made to Houghton Mifflin Harcourt Publishing Company for permission to reprint Allegro ma Non Troppo from Map: Collected and Lost Poems by Wisawa Szymborska, translated from the Polish by Stanisaw Baraczak and Clare Cavanagh. English translation copyright 2015 by Houghton Mifflin Harcourt Publishing Company. Reprinted by permission of Houghton Mifflin Harcourt Publishing Company.
Names: Bloom, Amy, author.
Title: In Love / Amy Bloom.
Description: First edition. | New York: Random House, 2022.
Identifiers: LCCN 2021008876 (print) | LCCN 2021008877 (ebook) | ISBN 9780593243947 (hardcover) | ISBN 9780593243961 (ebook)
Subjects: LCSH: Ameche, Brian A.Mental health. | Alzheimers diseasePatientsBiography. | Alzheimers diseasePatientsFamily relationships.
Classification: LCC RC523.3. B66 2022 (print) | LCC RC523.3 (ebook) | DDC 616.8/3110092 [B]dc23
Please write about this, my husband said.
Sunday, January 26, 2020, Zurich, Switzerland
This trip to Zurich is a new, not quite normal version of something Brian and I love: traveling. Road trip, train ride, ferry ride, airplane anywhere. We like all travel and most shopping, and this trip to Zurich has all the accoutrements of our other trips and is also nothing like anything weve ever done. As we usually do, we take a car service to the airport so we can be fancy and also avoid the park-and-schlep, and even before Brian had Alzheimers, our combined lack of direction adds twenty minutes to all transportation transitions. We have a restaurant meal before our 6 p.m. departure. I buy a stick of lipstick and a small tube of hand cream; Brian buys some candy. We share gum. We share a bottle of water.
On the plane, we enjoy the settling in, the attention of the flight attendants, who already like us because Brian is mindful about his size and doesnt swing his arm into someone elses drink and he expresses appreciation to every single Swissair representative. We seem like people who will not be screaming for more booze or more peanuts at midnight. No one loves business class more than people who always fly coach.
We are smiling from the moment we board. I arrange our business-class pods; we are gushingly polite to the attendants. Its obvious that we like each other and are happy to be traveling together. As soon as we get our beverages (in glasses!), we toast my sister and brother-in-law, who are paying for our business-class trip to Zurich.
Dignitass office is in Zurich, and thats where were headed. Dignitas is a Swiss nonprofit organization offering accompanied suicide. For the last twenty-two years, Dignitas has been the only place to go if you are an American citizen who wants to die and if you are not certifiably terminally ill with no more than six months to live. This is the current standard in the United States, even in the nine right-to-die states plus the District of Columbia, about which many older or chronically ill Americans harbor end-of-life fantasies and which I researched, at Brians direction, until we discovered that the only place in the world for painless, peaceful, and legal suicide is Dignitas, in the suburbs of Zurich.
My sister had cried with me since the second appointment with the neurologist, when it took the doctor less than an hour to give Brian a mental-status exam and inform us that Brian almost certainly had Alzheimers and had probably had it for several years, judging by his high IQ, his struggles with balance and proprioception, and his poor performance on the exam. It took Brian less than a week to decide that the long goodbye of Alzheimers was not for him and less than a week for me to find Dignitas, at the end of several long Google paths. From summer to winter, my sister, Ellen, who loves me and loved Brian, did her best not to make suggestions, not to offer if onlys, not to say that maybe Brians Alzheimers wouldnt be too bad or would progress very slowly, not to cry when I wasnt crying, and not to pour out her own grief at the loss of one of her favorite people and our compatible foursome. (When they met for the first time, fourteen years ago, Brian went into Ellens kitchen with his winning ways and said, I really love your sister. My sister didnt turn around. She said, Hurt her and I will kill you.) Ellen called me early one morning in December, when we were pretty sure that wed cleared the hurdles for Dignitas, and said, Just tell me what you need. I said, reluctantly, Twenty thousand, and my big sister said, Heres a check for thirty. We ended up spending every penny of it, between a couple of last big fishing trips for Brian, his not working, my not working, our eating out all the time, sometimes lunch and dinner, at the nicest restaurants in New Haven. We spent it on what was to be our last joint birthday celebration, and on four nights in the five-star hotel in Zurich and the car services and the tours of Zurich and my friend flying to and from Zurich to keep me company on the flight home, on whatever makes bad months bearable, plus the cost of Dignitas itself (around ten thousand dollars all in).
In our Swissair pods, Brian and I toast each other, and we say, Heres to you, a little hesitantly, instead of what we usually say, Centanni (May we have a hundred years, a very Italian toast). There is no Centanni for us; we wont make it to our thirteenth wedding anniversary.
We lean closer to each other and then we pull back, each of us fussing with our shoes and carry-ons, each of us opening our little gift bags from the airline and pulling out the socks (yes) and the eye masks (never) and the tiny toothpastes and tiny toothbrushes, which we persist in believing will delight the grandchildren, which they never do.
It is all nearly normal, like so much that weve done these last few years, like the flight itself and everything that precedes itthe trip to the airport, the TSA (our petty but deep pleasure at having TSA PreCheck, noting the much longer, shoes-off lines to the left of us), the pretty good meal at JFK. It all seems normal, except that I still remember how different it was to be together, to be with Brian, three years ago, when I didnt hold my breath from the time he went off to the newsstand until he came back. From the outside, or some kind of inside (the one where I too have no memory of how we used to live our actual life), it is nearly normal.
For the trip to JFK, we didnt use Arnold, the guy who always drives our car to the airport and returns it to our driveway. Arnolds been driving us, and our kids and grandkids, for six years, and he has shared with us all about his love of motorcycles, his sobriety, and his wifes health issues, to balance, I think, all the information he has about us, whether hes wanted it or not. I could not bear to lie to Arnold about where we are going and I cannot bear to tell him the truth and I could not come up with a half-truth (the favorite technique of serious liars) about why we are going to Zurich in late January. For the skiing? For the ice fishing? For the Chagall windows in Fraumnster Church? I was afraid that Arnold would watch us sympathetically in the rearview mirror, and I could not bear it, for Brians pride and my general soft-boiledness, and just as I could not bear any harshness at all, I didnt think I could take kindness, either. I wanted absolutely nothing, a blanket of indifference, and that was exactly what we got from the driver of our local limo service. He spoke once in the two-and-a-half-hour drive. Perfect.