Karen Hitchcock - Dear Life: On Caring for the Elderly

Published by Black Inc.,

an imprint of Schwartz Publishing Pty Ltd

Level 1, 221 Drummond Street

Carlton VIC 3053, Australia

www.blackincbooks.com

Copyright Karen Hitchcock 2015

First published as Quarterly Essay 57, 2015.

This edition published 2016.

Karen Hitchcock asserts her right to be known as the author of this work.

ALL RIGHTS RESERVED.

No part of this publication may be reproduced, stored in a retrieval system, or transmitted in any form by any means electronic, mechanical, photocopying, recording or otherwise without the prior consent of the publishers.

National Library of Australia Cataloguing-in-Publication entry:

Dear life: on caring for the elderly / Karen Hitchcock.

9781863958165 (paperback)

9781925203875 (ebook)

Older peopleServices for.

Older peopleCare.

AgingPhysiological aspects.

Quality of life. Terminal care.

362.19897

Cover artwork: Bouquet of Flowers in a Vase by Maria van Oosterwijck (1670)

Cover design by Peter Long

We elders have learned a thing or two, including invisibility When I mention the phenomenon to anyone around my age, I get back nods and smiles. Yes, were invisible. Honored, respected, even loved, but not quite worth listening to anymore. Youve had your turn, Pops; now its ours.

ROGER ANGELL, 93

T here are many ways to get sick, many ways to crumble and crash. I work as a physician in a big inner-city hospital overflowing with the sick. The orthopaedic ward is full of people who got up for a glass of water and snapped their hip. The psychiatry wards full of near suicides and phantom voices drilling holes in peoples heads. The cardiac cath labs overflowing with heart attacks. The burns unit usually has one or two people who tipped a bucket of petrol over their head and struck a match. We house the frail and the elderly, the drunken and the overdosed. Hearts and lungs are plucked from the brain-dead and sewn into the diseased; people crowd the emergency department, suffering because their organs are slowly failing the body that shelters them. What made them sick? What is health? What is it that we do to people in a hospital?

Fundamentally, it would seem, a doctors job is to treat and protect diseased and threatened organs those beautiful and intricate and faithful structures that pump and squeeze and metabolise away, mostly quietly, keeping us alive. Just treat them, doc, and go home. How difficult can it be? But when doctors sit in consulting rooms or walk the wards, we dont confront kidneys and hearts. We encounter complex, imperfect, suffering people with specific histories, cultures and understandings of sickness and health. And we do this, for the most part, within institutions with vast management structures whose role is to maintain economic viability and safety. We do it within government-dictated fiscal constraints. The business of health care is something much more than a delivery of goods and services.

The medical system is constructed from tacked-together fragments GPs, specialists, the hospitals, mental health services, community services all of which have little contact with each other. We treat social and medical needs separately, although they are intricately entwined. Hospitals themselves are designed around a body fragmented into discrete organs. Often, our institutions serve clinicians, bureaucrats and cutting-edge science better than those they are supposed to be serving.

Most of my patients are old. This new longevity of ours is a triumph. I have had patients who are over 100 years of age and still live at home. I see them and feel wonder and hope. But the health system and society is struggling to adapt to our ageing population. At times it seems we are struggling against it.

In 1976 Robert Neil Butler, an American geriatrician, won a Pulitzer Prize for his book Why Survive? Being old in America, in which he coined the term ageism. In Why Survive? Butler outlines many ways the elderly are neglected in society and shut out of the medical system. Five years earlier, in France, Simone de Beauvoir published The Coming of Age, in which she too describes a society where the elderly are forgotten, discarded or despised. Both books are rigorously researched and statistic-heavy. The points the writers make are as relevant today as they were forty years ago.

It is difficult to improve the care we offer our elders in and out of hospital when, as Linda Marsa writes, we are fearful of the swelling ranks of greedy geezers, the oncoming grey tsunami of the sick and frail elderly who will be an emotional and financial burden on their families and friends, and whose infirmities could bankrupt the health-care system. We hear a continual cry that our health-care system is unsustainable; that the health-care needs of ageing baby-boomers may bankrupt the country. Age discrimination in medicine is widespread, although often hidden behind many benevolent aims: the promotion of patient autonomy, the wise allocation of health resources, the avoidance of what is futile, the primacy of quality of life. Our response to age-related memory loss and dementia is to institutionalise, isolate, sedate. Supporting independence and wellbeing in old age remains a low priority.

One of the most-read articles in the Atlantic in 2014 was Why I Hope to Die at 75 by a professor of bioethics, Ezekiel Emanuel. In it, he jauntily promotes the idea that it is a horror to grow old; that growing old necessarily involves the accumulation of disability, the transformation of a human subject into a wreck and a burden on family and society. Emanuels answer to his dire evaluation of elderly life is to die early. Theres a picture of him, a man in his late fifties, radiating vitality, sitting with his feet up on his desk, long legs crossed, drinking from a cup that says The Boss. Another picture shows him with his arms slung around two of his nephews at a base camp of Mount Kilimanjaro, which the three climbed. Accompanying the article is a bright yellow graph that depicts the decline in ones productivity with increasing age. Emanuel knows his place as the boss, at the top of the mountain, at the peak of a very particular kind of productivity and he would rather die than give it up.

There are many ways to show that we devalue our elderly, are repulsed by them, terrified of becoming them. They have been and remain the last priority in our medical system and the ones we target first with our austerity measures. This book does not offer simple solutions to the structural inadequacies it diagnoses. The solutions are not simple. My chief aim is to strike a note of caution and to make explicit something that often remains unsaid and yet can be heard quite clearly: that the elderly are burdensome, bankrupting, non-productive. That old age is not worth living.

B efore I started studying medicine, my grandmother was diagnosed with idiopathic pulmonary fibrosis. I had no idea what that was.

Scarring of the lungs, she said.

She was put on little white tablets called prednisolone. I had no idea what they were.

She was thrilled when I announced my plan to become a doctor. She was ecstatic with pride. Shed tell anyone who listened the person scanning our groceries at the supermarket, for example. Shed look at him, then at me, then at him and Id know it was coming: This is my granddaughter.

The guy would look up from the tin of baked beans in his hand, his face all, And?

Shed put her hand on my forearm, lean in towards him and say, Shes studying to be a doctor.