Jan L. Mayes - Tinnitus Toolbox Hyperacusis Handbook
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- Book:Tinnitus Toolbox Hyperacusis Handbook
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- Publisher:Jan L. Mayes
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- Year:2019
- City:Delta, British Columbia
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Tinnitus Toolbox Hyperacusis Handbook: summary, description and annotation
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Mention of specific companies, organizations, or authorities in this book does not imply endorsements by the author or publisher, nor does mention of specific companies, organizations, or authorities imply they endorse this book, its author, or the publisher.
Content including internet addresses and contact numbers were accurate at the time this book went to press.
Copyright 2019 by Jan L. Mayes.
All rights reserved.
No part of this publication may be reproduced or transmitted, in any form or by any means, electronic or mechanical, including photocopying, recording or any other information storage and retrieval system, without the written permission of the publisher.
This book is not intended as a replacement for medical, tinnitus or decreased sound tolerance advice from your care providers including medical doctor, otolaryngologist, audiologist, or psychologist. All information in this book is provided for general information purposes only, and does not constitute medical, legal, financial, or other professional advice on any subject matter.
The author and publisher disclaim all liability with the use of this information.
Library & Archives Canada Cataloguing
eBook ISBN: 978-1-77252705-0-8
Paperback ISBN: 978-1-7752705-1-5
Reading level age 14-15 years and older
Flesch Reading Ease = 66
Published by Jan L. Mayes.
Book design by Samantha Mayes.
To my husband for his unwavering love and support.
My daughters for my joy and inspiration.
My colleagues for their wisdom and dedication.
People with tinnitus and hyperacusis for their courage, humour, and perseverance.
I would also like to thank everyone who has given me encouragement, support, and helpful feedback while writing this book including Charlotte Douglas, Andre Lafargue, Brad Mayes, Clarissa Mayes, Gerry Slater, Glynnis Tidball, Anna Van Maanen, and Dennis Wilkinson.
Special thanks to Samantha Mayes, without whom this book would never have been possible.
I dream of a machine
wired
brain to brain
they hear
exactly
what I hear
I dream of a machine
potato head inspired
ears snap off
new snap on
rewired brain
silence
2016 Jan L. Mayes
I think its helpful for people to know the common acronyms used by care providers including audiologists, doctors, and ear specialists. Get familiar with these. It'll help as you read along.
TTinnitus
DSTDecreased Sound Tolerance
HHyperacusis
MMisophonia
PPhonophobia
ENTEar Nose Throat Specialist (Otolaryngologist)
GPFamily Doctor (General Practitioner)
OTCOver-The-Counter
RxPrescription
dBDecibel
EHFExtended High Frequency
HzHertz
kHzKilohertz
PTAPure Tone Average
LDLLoudness Discomfort Level
PSAPPersonal Sound Amplification Product
HAsHearing Aids
HLHearing Loss
HHLHidden Hearing Loss (Noise-Induced)
TTSTemporary Threshold Shift (Noise-Induced)
PTSPermanent Threshold Shift (Noise-Induced)
NIHLNoise-Induced Hearing Loss
HPHearing Protection
WHOWorld Health Organization
ISOInternational Organization for Standardization
ANSIAmerican National Standards Institute
NIOSHNational Institute of Occupational Safety & Health
OSHAOccupational Safety & Health Administration
Before using any tinnitus or decreased sound tolerance (hyperacusis, misophonia, phonophobia) coping tools, aids, devices, treatment, or therapy options, you need to get clearance first from your family doctor and/or ear specialist to make sure you have no medical conditions that need treating first.
If you havent already, see your family doctor if you have:
- Sudden onset tinnitus
- Sudden onset hyperacusis
- Tinnitus in one ear only
- Pulse-like tinnitus
- Drainage, pain, or discomfort in one or both ears
- Better hearing in one ear than the other
- Dizziness (vertigo) or imbalance
- Chronic worry or sadness (anxiety; depression)
Get to emergency services as soon as possible if you have:
- Tinnitus that sounds like voices
- Rapidly worsening tinnitus
- Rapidly worsening hearing loss in one or both ears
- Sudden onset hearing loss
- Thoughts of hurting yourself or suicide
If youre feeling emotional distress or despair and need crisis support, there are websites, live chat, and helplines or lifelines to call or text in different countries including:
Australia
- lifeline.org.au or contact 13 11 14
Canada
- Canada National Suicide Prevention Lifeline: 1-800-273-TALK (8255)
- Or Text Telephone: 1-800-799-4889
- Association Qubcoise de Prvention du Suicide (French): 1-866-APPELLE
- Kids Help Phone: 1-800-668-6868
- Or Live Chat counselling at kidshelpphone.ca
United Kingdom
- Contact 116 123
United States
- US National Suicide Prevention Lifeline: 1-800-273-TALK (8255)
- Crisis Text Line 741741
Wikipedia (wikipedia.org) has a complete List of Suicide Crisis Lines by country. Depending on the country, this list includes specific lines for kids, youth, and the military community.
You are not alone. Many people have anxiety and depression because of T-DST. My T started in 1986 after a car accident caused whiplash, concussion, and neck injuries. Back then, it was true nothing could be done. I studied audiology hoping to be the first to find out when anything new came out. Still nothing could be done.
By the 1990s, I was very depressed and thinking of killing myself because I couldnt take my T anymore. But then new therapy approaches arrived at clinics.
In the past 20 years, people have used new coping tools, therapies, aids, and devices to cope better, including me. Something can be done.
Different associations and organizations have T helplines also for people with DST. You can contact trained people to talk to or contact if youre distressed and need support or help to find resources and care providers in your local area.
If youre not in crisis, dont use helplines. Association websites have T-DST facts, how to manage or cope better, the latest research news, and regular contact info. International associations include:
British Tinnitus Association
tinnitus.org.uk
Helpline Telephone: 0800 018 0527
Action on Hearing Loss
actiononhearingloss.org.uk
Helpline Telephone: 0808 808 6666
Helpline Textphone: 0808 808 9000
Email: tinnitushelpline@hearingloss.org.uk
American Tinnitus Association
ata.org
Help Network Listing: People can talk to or email volunteers with T and DST for support, guidance and resources.
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