Hanc John - Fighting for my life: how to thrive in the shadow of Alzheimers

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Praise for Fighting for My Life

For the millions of Americans with Alzheimers Disease and the millions more who care for them, there has been little hope and much suffering. Until now. Fighting for My Life is a remarkable story of hope and possibility for preventing and overcoming this dreaded disease. Dr. Marwan Sabbagh, who leads Cleveland Clinics efforts to beat this disease, maps out science-based strategies to prevent this disease and improve brain function (for those at risk and the rest of us). If you are a caretaker or at risk for dementia, or if you are anyone with a brain, you must read this book.

MARK HYMAN, MD, DIRECTOR OF THE CLEVELAND CLINIC CENTER FOR FUNCTIONAL MEDICINE AND NEW YORK TIMES BESTSELLING AUTHOR OF FOOD: WHAT THE HECK SHOULD I EAT?

To test or not to test is the issue. Fighting for My Life is a testament to what happens when someone owns their Alzheimers risk profile and then teams up with top researchers like Marwan Sabbagh, MD, by signing up for clinical trials. Science needs millions more just like Jamie Tyrone in order to get to a cure.

MERYL COMER, AUTHOR OF THE NEW YORK TIMES BESTSELLER SLOW DANCING WITH A STRANGER: LOST AND FOUND IN THE AGE OF ALZHEIMERS AND COFOUNDER OF WOMEN AGAINST ALZHEIMERS.

Jamie Tyrone and Dr. Marwan Sabbagh have written an informative and inspiring book to empower those who are exploring their options for genetic testing, deploying strategies for better brain health, and sharing the exciting future of finding a prevention or cure. The only way to eradicate the devastating effects of Alzheimers Disease is through research and participation in clinical trials. Jamies courage to share her raw and candid journey of knowing her 91 percent lifetime genetic risk of getting AD, choosing to demystify her selfless experience as a research volunteer, and encouraging others to follow in her footsteps is brave and commendable. Fighting for My Life is a compelling must-read.

JAMES KEACH, AWARD-WINNING DOCUMENTARY PRODUCER OF GLEN CAMPBELL: ILL BE ME AND TURNING POINT

Jamie Tyrone and Dr. Sabbaghs Fighting for My Life punctuates the strength of advocacy to meet the needs of researchers in the quest for finding prevention or a cure through pharmaceutical intervention, early diagnosis, and brain-health strategies. Advocacy does not happen in a vacuum, and this book highlights the true power that using ones voice can have on bringing about positive change in our society. As a supporter in the fight against Alzheimers Disease, I admire Jamies dedication to advocacy and Dr. Sabbaghs passion to find a cure.

REPRESENTATIVE JOHN GARAMENDI

Participants in clinical research are our heroes. As researchers, our efforts to get new medicines to people around the world could never be achieved without those like Jamie who are willing to join us on the journey. Especially in the case of Alzheimers Disease, we frequently hear that participating in a clinical trial is empowering and brings hope. We are so thankful to Jamie and Dr. Sabbagh for joining forces to tell this very important story about courage, initiative, and a fighting spirit.

PHYLLIS BARKMAN FERRELL, PHARMACEUTICAL EXECUTIVE

There isnt enough runway for me to express my gratitude to Jamie Tyrone and Dr. Sabbagh for writing this book, or to convey its importance to the fabric of discussions regarding the responsible delivery of genomic medicine. This book should be a guidepost to those who are either considering or ordering predictive genetic testing for Alzheimers Disease. Jamie is one of many I have heard from who felt emotionally blindsided by their genetic test results because they didnt have the anticipatory guidance to consider how results would make them feel, or the psychiatric and practical struggles they may face. This book has earned its rightful place as one of many to enhance our understanding and guide our individual and collective choices.

SUSAN ESTABROOKS HAHN, MS, LCGC, PAST PRESIDENT OF THE AMERICAN BOARD OF GENETIC COUNSELING AND COAUTHOR OF GENETIC COUNSELING AND TESTING FOR ALZHEIMER DISEASE: JOINT PRACTICE GUIDELINES OF THE AMERICAN COLLEGE OF MEDICAL GENETICS AND THE NATIONAL SOCIETY OF GENETIC COUNSELORS

Fighting for My Life is a great read. Jamie Tyrone is a champion and a warrior for the millions of people now living with Alzheimers and future generations who will face this devastating disease. By telling her story honestly, and by courageously volunteering for a clinical trial, Jamie shows the incredible power of one person in the fight for a treatment or cure, and better brain health for all.

GEORGE VRADENBURG, CHAIRMAN AND COFOUNDER OF USAGAINSTALZHEIMERS

In Fighting for My Life, Jamie Tyrone gives a grounded, hopeful, and often humorous account of her diagnosis and commitment to fight back against Alzheimers. The only way to discover treatments and cures for this insidious and pernicious disease is for heroes like Jamie to volunteer for therapeutic clinical trials. Jamie is performing an incalculable service by sharing her experience as a clinical trial participant. Combining Jamies personal journey with Dr. Marwan Sabbaghs command of the science and the critical importance of volunteering for Alzheimers-related trials gives the reader an inspiring and much-needed understanding of one the greatest challenges facing our society today: what it will take to find a cure for Alzheimers.

JOHN DWYER, PRESIDENT OF THE GLOBAL ALZHEIMERS PLATFORM FOUNDATION

Rare is the opportunity to delve into the topic of Alzheimers disease from two different perspectives at the same time. For Jamie Tyrone, the unexpected trauma of finding out she is genetically predisposed to Alzheimers, and for Dr. Marwan Sabbagh, the insight hes gained from years of research and seeing patients. You may expect their stories to lead to the doom and gloom tale one is often given with anything related to Alzheimers, but in this case, we are inspired. Tyrone transforms her life to become an advocate, and Sabbagh enlightens us on why there is hope from the medical perspective. If you are one of the millions impacted by Alzheimers Disease, dont miss the opportunity to read Fighting For My Life.

DEBORAH KAN, FOUNDER AND EXECUTIVE EDITOR OF BEING PATIENT, AWARD-WINNING NEWS ANCHOR AND JOURNALIST, AND FORMER EXECUTIVE PRODUCER AT THE WALL STREET JOURNAL

2019 Jamie TenNapel Tyrone and Marwan Noel Sabbagh, MD

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