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Susan Griffin - What Her Body Thought: A Journey Into the Shadows

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Susan Griffin What Her Body Thought: A Journey Into the Shadows
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In this boldly intimate and intelligent blend of personal memoir, social history, and cultural criticism, Susan Griffin profoundly illuminates our understanding of illness. She explores its physical, emotional, spiritual, and social aspects, revealing how it magnifies our yearning for connection and reconciliation.

Griffin begins with a gripping account of her own harrowing experiences with Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), a potentially life-threatening illness that has been misconstrued and marginalized through the label psychosomatic. Faced with terrifying bouts of fatigue, pain, and diminished thinking, the shame of illness, and the difficulty of being told you are not really ill, she was driven to understand how early childhood loss made her susceptible to disease.

Alongside her own story, Griffin weaves in her fascinating interpretation of the story of Marie du Plessis, popularized as the fictional Camille, an eighteenth-century courtesan whose young life was taken by tuberculosis. In the old story, Griffin finds contemporary themes of money, bills, creditors, class, social standing, who is acceptable and who not, who is to be protected and who abandoned. In our current economy, she sees how to be sick can impoverish, how poverty increases the misery of sickness, and how the implicit violence of this process wounds the soul as well as the body.

Griffin insists that we must tell our stories to maintain our own integrity and authority, so that the sources of suffering become visible and validated. She writes passionately of a society where we are all cared for through the rootedness of our connections. How the wound of being allowed to suffer points to a need to meet at the deepest level, to make an exchange at the nadir of life and death, the giving and taking which will weave a more spacious fabric of existence, communitas, community. Her views of the larger problems of illness and society are deeply illuminating.

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What Her
Body Thought
A JOURNEY INTO THE SHADOWS

SUSAN GRIFFIN For my mother Sarah Emily Colvin Williamson 19141992 and - photo 1

SUSAN GRIFFIN

For my mother Sarah Emily Colvin Williamson 19141992 and to the memory of - photo 2

For my mother
Sarah Emily Colvin Williamson
19141992

and to the memory of
Marie Duplessis
18241847

Contents

I have never had the impression that
my experience is entirely my own,
and it often seems that it preceded me.

J OHN B ERGER

What Her Body Thought: A Journey into the Shadows is a companion volume to A Chorus of Stones: The Private Life of War. Both books are part of a series entitled This Common Body: A Social Autobiography.

While I retreated down to lower ground before my eyes there suddenly appeared - photo 3

While I retreated down to lower ground, before my eyes there suddenly appeared one who seemed faint because of the long silence.

D ANTE,Inferno

Yes, this is the dangerous, lucid hour.

C OLETTE

That sense of descent, hurtling downward toward the original image of all that is fundamentally bad, a body in pain. And always accompanied by fear, the nearness of death, or other endings, the termination of capabilities, lost limbs, eyesight, hearing, hair, skin erupting, blood appearing, breath disappearing, menacing sights, sounds, smells, the unavoidable presence of what is unpleasant, disagreeable, unlucky, even evil. This palpable badness having invaded or mysteriously appeared from somewhere or come about from some heretofore unsuspected cause. Or in its own way, just as terrible, a known cause that could not be prevented, despite every effort, the secret failure, the failure that cannot be hidden.

How do you dare speak of this?

And now, just as you prepare to tell your own story, you hear another story, one you know will be with you as you make your descent.

I know I am here to tell a story. And perhaps it is for this reason that as I ride on the Mtro, on the second day after my arrival in Paris, I am acutely aware that all around me, in a language that is still not fluent for me, stories are being told. A group of girls speak almost at once, each giving a different piece of an event they experienced together. An older woman, perhaps a mother, listens as a younger woman, perhaps her daughter, recounts what happened to her that morning. A man sits reading a newspaper filled with reports from all over the world. In my purse I carry a Pariscope, the weekly publication that lists hundreds of movies; compelling tales are being unreeled all day in theaters all over the city. And sitting alone for two brief stops between Chtelet and Htel de Ville, I am composing a little story now, not only imagining the lives of those around me, but configuring myself in the narrative I call my life. The subterranean depths of the Mtro seem fitting. My story is immersed in the body. And it is also right that I should be in this city. The story I will tell alongside my own was set here. As I wander the streets for the flavor of this history, just as certainly as I have entered Paris, the body of the city has entered me.

The tale I tell from my own life concerns an episode in an illness I have had for more than a decade. Over a period of three years I was very ill. Now, though several years have passed since I got back on my feet, and though I have regained most of my strength, something else inside me has not recovered. An affliction remains that may seem ephemeral compared to fevers or tremors yet nevertheless acts powerfully in my life. The dimensions of memory loom large for me. I am still afraid. And this is why I have decided to move toward rather than away from a terrain of suffering I might otherwise just as well forget. There is a part of myself caught in this underworld, a crucial fragment of being that, only because I have grown stronger in body and soul, I am able to rescue now. Something else, still molten, remains to be discovered in my past.

The memory frightens me. Still I am drawn not only by the hope of staring down this fear but by something else, almost outside the ken of my own story, there in the background, dim but still signaling to me now. Illness is often treated as an isolated event, an island of suffering significant only in itself. Yes, there is drama in disease; in fact, cast as it is between life and death, what more could one ask from a good story? A woman struggles valiantly for years before she succumbs to a little-known disease that turns all her tissue to a stonelike hardness. A celebrated writer laughs his way to health. No longer able to pitch a ball over the plate, a famous and beloved baseball player discovers he has a fatal illness that will soon make him helpless and dependent.

But I have begun to look beyond the solitary figure, toward a background that has all but faded into obscurity. It is there outside the sickroom, outside even the house, occupied as it may be by worried friends and family; it is also in the streets, the town, the city, society. And if illness is already understood by some as a social problem, I am beginning to see it as a source of vision too, a new lens through which one can see society more clearly. Just now, I find myself transfixed by a slight glimmer of promise at the edges of my story, barely discernible traces of a new way of seeing.

The glimmer only grows more intense when I add a second story to my own. Just as I was emerging from the worst episode of my illness and preparing to tell the tale, an older story, legendary in my childhood, caught my attention. Though I had nearly forgotten it, this story took on such a powerful life in my thinking that soon I found I had taken on a companion for my descent into memory. And now it seems entirely natural to me that I should tell it along with mine.

The presence of this tale has widened the scope of my vision by over a century. Known in America as Camille, the older story that accompanies mine, though fictional, is based on a true story that took place almost one hundred years before my birth. This was a time of titanic events. A revolution had recently occurred. There were high hopes for democracy, equality, justice. And yet in the same period, while great fortunes were being made, poverty and destitution grew large. Along with the physical body, the social body will appear in these pages now. And with this appearance, the subject of money, which before seemed only tangential to illness (though it never was to mine), how it is gained and how it is spent, is moving steadily toward the center of the narrative.

Whether you are well or ill, getting and spending are crucial to surviving in modern times. Though, as I write now about economy and exchange, I have this thought: in giving away cash or a meal or a horse or an automobile, a dress, a bracelet, a pot, you are usually relinquishing something that, had you kept it, would have been useful to you. But there is one gift that has no value until it is given. And that is a story.

Mingled, stories more than double in value. When one story meets another, the consequences can be surprisingly intense. The architects of the French Revolution, for instance, exchanged tales of tyranny as they made their plans. The effect, not just of the telling but of the mix, must have been remarkable. To see the larger patterns into which ones own life, ones own suffering fall like missing pieces, ciphers crucial to a greater meaning.

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