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Zena Sharman (editor) - The Remedy: Queer and Trans Voices on Health and Health Care

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Zena Sharman (editor) The Remedy: Queer and Trans Voices on Health and Health Care
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Winner, Lambda Literary Award (LGBT Anthology)The Remedy invites writers and readers to imagine what we need to create healthy, resilient, and thriving LGBTQ communities. This anthology is a diverse collection of real-life stories from queer and trans people on their own health-care experiences and challenges, from gay men living with HIV who remember the systemic resistance to their health-care needs, to a lesbian couple dealing with the experience of cancer, to young trans people who struggle to find health-care providers who treat them with dignity and respect. The book also includes essays by health-care providers, activists and leaders with something to say about the challenges, politics, and opportunities surrounding LGBTQ health issues.Both exceptionally moving and an incendiary call-to-arms, The Remedy is a must-read for anyonegay, straight, trans, and otherwisepassionately concerned about the right to proper health care for all.Contributors include Amber Dawn, Sinclair Sexsmith, Francisco Ibanez-Carrasco, Cooper Lee Bombardier, Kara Sievewright, and Kelli Dunham.Zena Sharman is a passionate advocate for queer and trans health. She has over a decades experience in health research; currently she is Director of Strategy at the Michael Smith Foundation for Health Research. Zena is also co-editor of Persistence: All Ways Butch and Femme. She lives in Vancouver, British Columbia.

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MORE PRAISE FOR

THE REMEDY

A welcome trend in clinical education and practice involves inviting patients and clients to tell their own stories of identity, illness, health care and resilience in their own words, to both learners and practitioners. The Remedy provides a rich tapestry of narratives across the spectrum of human sexuality and genders, and includes descriptions of innovations from committed health professionals who address the many gaps in providing attuned, informed care to queer and trans people.

Allan Peterkin, MD, and co-author of Caring for Lesbian and Gay People: A Clinical Guide

The Remedy is a bandage lovingly placed on the open wounds of every LGBTQAI person afraid of going to a doctor. This book does not just ask doctors to follow the oath of first do no harm; it also demands medical practitioners respect, understand, and affirm our queer lives, bodies, and families. The Remedy is the collection of healing and solidarity queers desperately need.

Sassafras Lowrey, author of Lost Boi

The Remedy is a book to give to anyone working in health care, to queer and trans friends struggling to find their voice through an illness, to your straight parents and queer or trans children. The candour in this collection filled me with that relief and gratitude one senses from feeling deeply seen. Here are quintessential stories of queer and trans people navigating our health care and medical systems. If youre queer or trans, these confidences will be nothing short of healing. If youre a medical practitioner, theyll be vital.

Michael V. Smith, author of My Body Is Yours

The best kind of waiting-room reading, The Remedy brings together many voices to offer something we often dont find through our health-care providers. Zena Sharman has collected points of view from many sides of medical interactions, creating a community of people who truly believe that the barriers to medical access that LGBTQIA people face are unjust but changeable.

Rae Spoon, author of First Spring Grass Fire

THE REMEDY

QUEER AND TRANS VOICES ON HEALTH AND HEALTH CARE

Edited by

ZENA SHARMAN

The Remedy Queer and Trans Voices on Health and Health Care - image 1

THE REMEDY

Copyright 2016 by the Contributors

THIRD PRINTING: 2018

All rights reserved. No part of this book may be reproduced in any part by any meansgraphic, electronic, or mechanicalwithout the prior written permission of the publisher, except by a reviewer, who may use brief excerpts in a review, or in the case of photocopying in Canada, a license from Access Copyright.

ARSENAL PULP PRESS

Suite 202 211 East Georgia St.

Vancouver, BC V6A 1Z6

Canada

arsenalpulp.com

The publisher gratefully acknowledges the support of the Canada Council for the Arts and the British Columbia Arts Council for its publishing program, and the Government of Canada (through the Canada Book Fund) and the Government of British Columbia (through the Book Publishing Tax Credit Program) for its publishing activities.

Design and cover illustration by Oliver McPartlin Edited by Brian Lam with - photo 2

Design and cover illustration by Oliver McPartlin

Edited by Brian Lam with Linda Field

Editorial assistance by Claire Matthews

Illustrations for Innovation Profiles by Sam Bradd

Printed and bound in Canada

Library and Archives Canada Cataloguing in Publication:

The remedy: queer and trans voices on health and health care / edited by Zena Sharman.

Includes bibliographical references.

Issued in print and electronic formats.

ISBN 978-1-55152-658-4 (paperback).ISBN 978-1-55152-659-1

(html)

1. GaysMedical care. 2. GaysHealth and hygiene. 3. Transgender people--Medical care. 4. Transgender peopleHealth and hygiene. I. Sharman, Zena, 1979-, editor

RA564.9.H65R44 2016

362.108664

C2016-904412-2
C2016-904413-0

CONTENTS

Zena Sharman

Vivek Shraya

Kyle Shaughnessy

soma navidson

Sean Saifa Wall

Sand C. Chang

Francisco Ibez-Carrasco

The Q Card Project (Seattle, Washington)

Kristen L. Eckstrand

Sinclair Sexsmith

Kelli Dunham

Kara Sievewright

Chase Willier

Ahmed Danny Ramadan

Access Alliance Multicultural Health and Community Services LGBTQ+ Newcomer Initiatives (Toronto, Ontario)

Amber Dawn

Keiko Lane

Cooper Lee Bombardier

The Trans Buddy Program (Nashville, Tennessee)

Craig Barron

Caitlin Crawshaw

A. K. Morrissey

Margaret Robinson

The Affirmations Deck (Toronto, Ontario)

Jenna J. Webber and Rita OLink

j wallace skelton

Xeph Kalma

The Catherine White Holman Wellness Centre (Vancouver, BC)

Cassia Chambers-Gammill and Sailor Holladay

Eli Erlick

Fayza Bundalli

Ariel Estrella

Lisa Baird

Sossity Chiricuzio

Esther McPhee

INTRODUCTION

Why Queer and Trans Health Stories Matter

Zena Sharman

Im at my friends house for dinner, perched on a barstool in front of a kitchen island stocked with snacks. Four of us are gathered around the food, all queer, one trans. Two of my companions are cancer survivors who trade stories about treatments, symptoms, and chronic pain. They share a kinship and a form of solidarity that Im grateful to witness. The rest of us listen intently as one describes a cross-border search and reading hundreds of plastic surgery journal articles in search of a cure for an injury theyd sustained during a botched diagnostic procedure, something doctors told them would inevitably lead to surgery and living the rest of their life with a colostomy bag. I hold my breath, tense with anticipation as my friends tale of tenacity and self-advocacy unfolds, exhale a sigh of relief as they recount the final, triumphant chapter. It seems sweeter, queerer somehow that the story ends with a miracle cure in San Francisco.

The social interconnectedness of queer community sometimes feels overwhelming or complicated, and its also one of our greatest strengths. Our relationships transcend geographies; we measure distance and proximity differently. I feel this queering of time/space when I open an email from a friend in Vancouver asking if I know of any resources for a newly out twelve-year-old in the small northern city where I grew up. To put that email in context, my hometown is 3,000 kilometres away and I havent lived there for twenty years. Yet part of me still feels rooted in that place, roots nourished by the presence of a queer chosen family Ive cultivated as an adult. I dont know the answer to my friends question but thanks to my hometown chosen family I know who to ask. Theres something magical in that knowing: I text a friend who texts a friend and it doesnt take long to figure out which youth drop-in might be the most welcoming place for this young person, and where their parents might be able to access resources. We do what queers do: we work our networks across distance and relationships to help someone wed never met, because its one of the ways we know how to take care of each other and keep each other alive.

My hair stylista fellow queer femmeis cutting my hair and updating me about her efforts to get pregnant through IVF. Shes being implanted with her partners egg and donor sperm. Theyre paying out of pocket at the fertility clinic known as the go-to place for queers in Vancouver, but the rainbow flag on the website doesnt protect against the kind of institutionalized heteronormativity they encounter at every turn. I watch her in the mirror as she tells me about how the clinic keeps mixing her up with her partner when it communicates with them by phone or email, how they were given an information sheet for straight couples and told to ignore the instructions for the man. I go on a feminist rant about patriarchy and evidence-based medicine when she describes how the clinic told her not to have an orgasm for three weeks after the first implantation attempt. Later, I post a question about the validity of these instructions on social media. A group of mostly queer friends that includes a midwife, a labour and delivery nurse, a naturopath, several of North Americas leading sex researchers, and a handful of parents collectively arrive at an answer. They dont make pamphlets for this sort of thing.

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