Robert F. Weir - Genes and human self-knowledge: historical and philosophical reflections on modern genetics

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title	:	Genes and Human Self-knowledge : Historical and Philosophical Reflections On Modern Genetics
author	:	Weir, Robert F.
publisher	:	University of Iowa Press
isbn10 | asin	:	0877454566
print isbn13	:	9780877454564
ebook isbn13	:	9781587292484
language	:	English
subject	Human Genome Project, Human gene mapping--Moral and ethical aspects, Human genetics--History, Human genetics--Philosophy.
publication date	:	1994
lcc	:	QH445.2.G443 1994eb
ddc	:	573.2/1/01
subject	:	Human Genome Project, Human gene mapping--Moral and ethical aspects, Human genetics--History, Human genetics--Philosophy.

Page iii Genes and Human Self-Knowledge Historical and Philosophical Reflections on Modern Genetics Edited by Robert F. Weir, Susan C. Lawrence, and Evan Fales University of Iowa Press Iowa City

Page iv University of Iowa Press, Iowa City 52242 Copyright 1994 by the University of Iowa Press All rights reserved Printed in the United States of America No part of this book may be reproduced or used in any form or by any means, electronic or mechanical, including photocopying and recording, without permission in writing from the publisher. Printed on acid-free paper The symposium on genes and human self-knowledge was supported by the Iowa Humanities Board, the National Endowment for the Humanities, the University of Iowa Center for Advanced Studies, Office of Academic Affairs, College of Medicine Lecture Committee, University Lecture Committee, College of Law, Department of Pediatrics, Department of History, School of Religion, Program in Biomedical Ethics, History of Medicine Society, Humanities Society, and the Iowa Medical Society. The descriptions, opinions, and conclusions in this book do not necessarily represent the views of the Iowa Humanities Board, the National Endowment for the Humanities, or any of the other sponsors. Library of Congress Cataloging-in-Publication Data Genes and human self-knowledge: historical and philosophical reflections on modern genetics / edited by Robert F. Weir, Susan C. Lawrence, and Evan Fales. p. cm. Includes bibliographical references. ISBN 0-87745-455-8, ISBN 0-87745-456-6 (pbk.) 1. Human Genome Project-Moral and ethical aspects. 2. Human genetics-History. 3. Human genetics-Philosophy. I. Weir, Robert F. II. Lawrence, Susan C. III. Fales, Evan. QH445.2.G443 1994 93-45453 573.2'1'01-dc20 CIP 98 97 96 95 94 C 5 4 3 2 1 98 97 96 95 94 P 5 4 3 2 1

Page v CONTENTS Preface ix Acknowledgments xix I. Genetic Identity and Self-Knowledge A Few Words from a "Wise" Woman Kimberly A. Quaid 3 The Human Genome Project and Human Identity Dan W. Brock 18 Knowledge in Human Genetics: Some Epistemological Questions Michael Ruse 34 Some Concerns about Self-Knowledge and the Human Genome Project Panayot Butchvarov 46 Reductionism and Genetics: A Response William E. Carroll 49 The Human Genome Project and Epistemology Evan Fales 53 Commentary on Genetic Knowledge and Self-Understanding Diana Fritz Cates 59 Genes and Osteogenesis Imperfecta Christine Carney 63

Page vi II. The Possible Uses and Abuses of Genetic Knowledge Is Human Genetics Disguised Eugenics? Diane B. Paul 67 Molecular Biology: How Can We Translate the Laboratory? Joseph D. McInerney 84 Communicating Genetics: Journalists' Role in Helping the Public Understand Genetics Larry Thompson 104 Genetic Discrimination: The Use of Genetically Based Diagnostic and Prognostic Tests by Employers and Insurers Larry Gostin 122 Human Capital and the Discourse of Control: Comment on Paul Mitchell G. Ash 164 Commentary on Paul Alan I. Marcus 169 Communicating Complex Genetic Information Elizabeth J. Thomson 172 Problems Translating Laboratory Information for High School Students: Are We Doomed? Kevin Koepnick 178 Reflections on the Law and Ethics of the Human Genome Project Peter David Blanck 183 Why Fund ELSI Projects? Robert F. Weir 189

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