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Lara Goitein - The ICU Guide for Families: Understanding Intensive Care and How You Can Support Your Loved One

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ICU events are not uncommon but knowing what to do when a loved one is placed there is. This work explores the ICU with an eye toward guiding families to getting the best care for their beloved patient

Intensive care will touch almost all of us at some point whether directly, or through our families and or friends. This book is for every family of patients in the ICU, who have suddenly entered an intimidating and alien world, in which they feel powerless and out of control. In simple, direct language, Lara Goitein, MD, gives clear explanations of all aspects of intensive care what all those lines and tubes are; common conditions such as sepsis and acute respiratory distress syndrome (ARDS); physical changes in patients and what they mean; common procedures and their risks and benefits; and the people and the culture of the ICU. One full section of the book is devoted to Covid-19-specific issues.

In addition, the book provides concrete advice for how family members can be effective advocates on behalf of their loved ones what to know before giving consent for procedures, how to interact with ICU staff, how to help the ICU team guard against common complications of ICU care, and how to approach important decisions about end-of-life care. Along the way, the author gently reminds of us of what, in the end, matters most in the ICU.

For readers who may be distracted and exhausted, this is a clear, accessible guide with concrete recommendations for getting the best care and asking the right questions along the way. A compassionate resource in a time of extreme stress, this book offers support to anyone touched by an ICU stay.

Lara Goitein: author's other books


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Dr. Lara Goitein is a Harvard-trained physician specializing in pulmonary and critical care medicine who has worked as a doctor in intensive care units for 12 years. Currently she is President-Elect of Medical Staff at Christus St. Vincent Regional Medical Center in Santa Fe, New Mexico, and founding medical director of a hospital quality program called Clinician-Directed Performance Improvement. She is on the editorial board and is a frequent writer for the medical journal JAMA Internal Medicine, and is a reviewer for its series Physician Work Environment and Well-Being. Dr. Goitein also writes for the lay press, including an article in the New York Review of Books called, Training Young Doctors: The Current Crisis. Her professional interests include measuring and improving healthcare quality, physicians professional well-being, graduate medical education, the effects of the financial environment on the teaching and practice of medicine, and care at the end of life. She is a graduate of the Intermountain Advanced Training Program in Healthcare Delivery Improvement. Dr. Goiteins work in quality improvement at Chris-tus St. Vincent Regional Medical Center has received national attention: she was a speaker at the IHI/NPSF Patient Safety Congress in Boston in May of 2018, and recently wrote an article about the quality improvement program she directed in Health Affairs. Right now, Dr. Goitein is taking a break from clinical practice, and is home with her two sons while they do online school, in Santa Fe, New Mexico.

I would like to thank my three readers for their generous gifts of time and insight. Im profoundly grateful to my brother-in-law, Jerry Hauser. His thoughtfulness and ability to empathize with imagined family members in the ICU, no doubt sharpened by his own recent experiences, were invaluable. My colleague Dr. Susan Pasnick once again proved herself one of the smartest and most knowledgeable ICU doctors I know it is immeasurably reassuring to have had her expert eyes on this project. And last but not least, my mother, Dr. Marcia Angell, brought the same elegance, heart, intelligence, and perfect grammar with which she has edited my writing since I was five years old. Not everyone is lucky enough to have an editor-in-chief of the New England Journal of Medicine as a mother, and Marcia Angell, at that. I would like to thank my many mentors and teachers of ICU medicine, including Dr. Taylor Thompson, Dr. Mark Tonelli, Dr. Gordon Rubenfeld, Dr. J. Randall Curtis, and Dr. Leonard Hudson. It is amazing to see that the most interesting things being written about ICU medicine are now being written by the kids with whom I trained, including Dr. Jeremy Kahn and Dr. Catherine Lee (Terri) Hough now they are my teachers, too. I greatly appreciate the tutelage of Ms. Wanda Jiron in issues pertaining to hospital billing. I would like to thank my wise agent, Ms. Alice Martell, and my publishing editor Ms. Suzanne Staszak-Silva. Finally, thanks to my husband, Tom Burdick. He is also a doctor, and contributed his intelligence and experience to these pages during many conversations at the dinner table. He helped me to carve out the time for this project with his typical warm generosity, good humor, and enthusiasm.

Use the table on the next page as a guide to questions for nurses and doctors that may help to prevent typical complications of ICU care.

Date:________ Name of ICU Nurse:__________________
Name of ICU Doctor:____________________
QUESTIONSNOTES
Are there any lines or tubes that can come out today? (If not, what specifically are the indications to continue?)
  • Endotracheal tube
  • Central line or PICC
  • Urinary catheter
  • Chest tube
If on a ventilator:
Did the patient have a spontaneous breathing trial this morning? (If not, what were the specific contraindications?)
If on sedative medications:
  • Did the patient have a sedation vacation this morning? (If not, what were the specific contraindications?) Did he wake up, and how was he?
  • If too sleepy to sustain eye-contact. Would it be possible to lighten sedation at all?
What are the plans for mobility today? Examples:
  • Regular turning
  • Sitting upright (how long?)
  • Passive range of motion
  • Active range of motion
  • Out of bed to a chair (how long?)
  • Standing or walking
Could I help you today with:
  • Supervising patient during lighter sedation
  • Assisting with mobility/exercise
  • Swabbing patients mouth
Medications:
  • Have any new medications been started? If so, what are the possible side effects?
  • Is the patient on gastric acid suppression? If so, could sucralfate be used instead?
  • Are there any antibiotics that could be stopped or changed to narrower spectrum antibiotics today?
Nutrition:
  • Is the patient receiving tube feeds? If so, is he at goal?

Afdhal, Nezam H. Acalculous cholecystitis: Clinical manifestations, diagnosis, and management. UpToDate. Accessed February 20, 2021. https://www.uptodate.com/contents/acalculous-cholecystitis-clinical-manifestations-diagnosis-and-management.

Alper, Eric, Terrence A. OMalley, and Jeffrey Greenwald. Hospital discharge and readmission. UpToDate. Accessed February 20, 2021. https://www.uptodate.com/contents/hospital-discharge-and-readmission.

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Anderson, Deverick J., and Daniel J. Sexton. Overview of control measures for prevention of surgical site infection in adults. UpToDate. Accessed February 20, 2021. https://www.uptodate.com/contents/overview-of-control-measures-for-prevention-of-surgical-site-infection-in-adults.

Anderson, H. Vernon, Richard E. Shaw, Ralph G. Brindis, Kathleen Hewitt, Ronald J. Krone, Peter C. Block, Charles R. McKay, and William S. Weintraub. A contemporary overview of percutaneous coronary interventions: The American College of Cardiology-National Cardiovascular Data Registry (ACC-NCDR). Journal of the American College of Cardiology 39, no. 7 (April 2002): 10961103.

Anesi, George L. Coronavirus disease 2019 (COVID-19): Critical care and airway management issues. UpToDate. Accessed February 14, 2021. https://www.uptodate.com/contents/coronavirus-disease-2019-covid-19-critical-care-and-airway-management-issues.

Angus, Derek C., Amber E. Barnato, Walter T. Linde-Zwirble, Lisa A. Weissfeld, R. Scott Watson, Tim Rickert, and Gordon D. Rubenfeld. Use of intensive care at the end of life in the United States: An epidemiologic study. Critical Care Medicine 32, no. 3 (March 2004): 638643.

Auld, Sara C., Mark Caridi-Scheible, James M. Blum, Chad Robichaux, Colleen Kraft, Jesse T. Jacob, Craig S. Jabaley et al. ICU and ventilator mortality among critically ill adults with coronavirus disease 2019. Critical Care Medicine 48, no. 9 (September 2020): e799e804.

Azoulay, Elie, Frederic Pochard, Nancy Kentish-Barnes, Sylvie Chevret, Jerome Aboab, Christophe Adrie, Djilali Annane et al. Risk of post-traumatic stress symptoms in family members of intensive care unit patients.

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