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Elizabeth Landsverk - Living in the Moment: A Guide to Overcoming Challenges and Finding Moments of Joy in Alzheimers Disease and Other Dementias

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Elizabeth Landsverk Living in the Moment: A Guide to Overcoming Challenges and Finding Moments of Joy in Alzheimers Disease and Other Dementias
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An invaluable, comprehensive guide that explains everything you and your family need to know about living well with Alzheimers disease and other dementias.
A loved ones dementia diagnosis can leave you feeling scared and overwhelmed. Now a renowned geriatrician who has helped thousands of families live happy, engaged livesafter a dementia diagnosisshares her expertise in this easy-to-follow guide.
Filled with must-have information, practical advice, and unique and comforting insights, here is everything you need to know about caring for your loved one and making his or her life the best possiblestarting now, even as the disease progresses. Inside, youll find:
How to create a plan of action for todayand tomorrowthat will help all involved cope with this new normal
How to keep your vulnerable loved one safe and secureboth physically and financially
Lifestyle changes, innovative new activities, and holistic interventions that can slow the progression of dementia
Comprehensive information on both prescription and OTC medications that can help or hurt dementia patients
Dealing with day-to-day challenges, from staying mobile to overcoming agitation and aggression without resorting to sedation
How and where to get help, including online support groups, home health care agencies, care managers, neuropsychologists, communities and day programs for people with dementia, and government agencies
Tips on keeping your loved one at home versus placement in a long-term care facility
In addition to all the essential advice, Dr. Landsverk demystifies the ins and outs of dementia, explaining what it is and what its not, and making sure you and your loved one will be ready to address whatever develops and maintain quality of life. Uniquely, Living in the Moment will transform how you think about dementia, providing comfort and support for the best life possibleat any stage.

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Table of Contents Acknowledgments Thank you to My family who have put - photo 1
Table of Contents

Acknowledgments
Thank you to:
My family, who have put up with me for the last years working endlessly on house calls, developing an education program, and the book.
My team, especially Jane, who has been my Radar OReilly to keep me going in the right direction.
Heather, whose grace with words made my work come alive.
Jennifer Chen Tran, my agent, for believing in me when I was not sure, and Denise Silvestro, my editor, who patiently guided me in tucking in all the last details.
Nancy, whose work with the Connected Horse helped me to see that a needed project is worthy of going the extra mile.
The caregivers and thousands of families who have trusted me to work with their suffering elders.
The 3,500 practicing clinical geriatricians who take the extra time to sort out exactly what care is needed and to look at the whole person.
Final Note
M Y MOTHER HAD DEMENTIA , as did my grandmother and my mother-in-law. And in my practice of over twenty years, I have seen over twenty thousand elders with dementia. Every situation is different, but I have included in this guide the main themes affecting areas of care for all elders.
You are not alone. I strongly suggest finding a support group, locally or online, that can encourage, guide, and aid you on this journey.
The most important point is that there are solutions to all the problems that arise. You might not like all the solutions, but they are available. As long as you work for the benefit of your loved one, help them live the life they want (as much as is practically possible), and be available to console and to enjoy moments of joy, you are giving them the greatest gift. If it is not possible to be there in person, then assemble the team that will provide attentive, knowledgeable, timely care with an eye to engagement. A team that will fill the elders days with meaningful activities and meaningful relationships, and will act in the best interest of the elders health and finances. Even if you are the primary caregiver, having a team is essential. No one can care for another, especially an elder with dementia, alone. Studies show that caregivers risk serious decline of their own health if they do not have help.
Reading this book and having this information is a giant first step in caring for your loved one. Now, I suggest you go out for a walk. Really. Learning to pace oneself and take time for oneself is job number one for a caregiver. Yes, the elder will need someone else to supervise them while you are gone, but take time for yourself. You will have more energy, empathy, and tolerance for the quirks and demands of dementia care. Care for yourself so you can care for another. Its a cli-ch because it is true. And when the road ahead seems daunting, remember that you can do this. What a gift you are giving!
Resources and Further Information
O RGANIZATIONS
Administration on Aging Long-Term Care Ombudsman Program

aoa.gov/AoARoot/AoA_Programs/Elder_Rights/Ombudsman/index.aspx
Advocates nationally for residents of nursing
homes, board and care homes, assisted-living
facilities, and similar adult care facilities. They
work to resolve problems of individual residents
and to bring about changes at the local, state, and
national levels that will improve residents care
and quality of life.

Administration on Aging Pension Counseling and Information Program

aoa.gov/AoARoot/AoA_Programs/Elder_Rights/Pension_Counseling/index.aspx
Assists older Americans in accessing information about their retirement benefits and helps them to negotiate with former employers or pension plans for due compensation. The program covers twenty-nine states.

Alliance on Aging

Check your local listings. Most communities have an Alliance on Aging office.

The Alzheimers Association

www.alz.org
The Alzheimers Association has chapters throughout the country. It operates referral services, a 24/7 hotline, online communities, newsletters, and links to current research. You can access their five-thousand-volume library online.

Dementia Care Central

www.dementiacarecentral.com/about-us
Resources for dementia caregivers and more. Funded by the National Institutes of Health.

Mayo Clinic Alzheimers Disease Center

www.mayoclinic.com/health/alzheimers-disease/DS00161
In-depth, easy to understand expert overview.

Mayo Clinic Dementia Center

www.mayoclinic.com/health/dementia/DS01131
In-depth, easy to understand expert overview.

National Alliance for Caregiving

www.caregiving.org
Provides information and resources related to family caregiving.

National Association of Professional Geriatric Care Managers

www.caremanager.org
Overview of care management, referrals.

National Center on Elder Abuse

www.ncea.acl.gov
Up-to-date information on research, training, best practices, news, and resources on elder abuse, neglect, and exploitation. It features a state-by-state listing of resources.

National Institute on Agings Alzheimers Disease Education and Referral Center

www.nia.nih.gov/alzheimers
Information on research, diagnosis, clinical trials,
and government programs and resources.
www.nia.nih.gov/alzheimers/legal-and-financial-issues-people-alzheimers-disease-resource-list
Legal and financial resources list.

Professional Fiduciary Association of California

www.pfac-pro.org

B OOKS
Abbit, Linda. The Conscious Caregiver . New York: Adams Media, 2017.

Feil, Naomi. The Validation Breakthrough. Baltimore: Health Professions Press, 2012.
Kriseman, Nancy L. The Mindful Caregiver . Lanham: Rowman & Littlefield, 2014.

Roche, Lyn. Coping with Caring. Harahan: Journey Publications, 2006.

Snyder, Lisa. Living Your Best Life . North Branch: Sunrise River Press, 2010.

Williams-Paisley, Kimberly. Where the Light Gets In . New York: Crown Archetype, 2016.
C HILDRENS B OOKS
Bahr, Mary. The Memory Box . Park Ridge: Albert Whitman & Company, 1992.

Schnurbush, Barbara. Striped Shirts and Flowered Pants . Washington, DC: Magination Press, 2006

Shriver, Maria. Whats Happening to Grandpa? New York: Little, Brown Books for Young Readers, 2004.
CHAPTER ONE
First Things First
Y OURE READING THIS BOOK because someone you love has been diagnosed with dementia or you suspect that your loved ones forgetfulness or quirky behavior might be something more serious. You may be feeling confused, frustrated, hurt, or frightened. You may be aching with anxiety and grief as your relationship changes profoundly and permanently. The problem may feel so big that youre reluctant to look at it fully.
One of the most heartbreaking misconceptions I see in my practice is when families assume that a diagnosis of dementia means that life wont be worth living any longer. Nothing could be further from the truth. Life can still be rich. But this requires that we reconsider some of our assumptions and expectations about life and about dementia.
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