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Lorraine Johnston - Non-Hodgkins Lymphomas: Making Sense of Diagnosis, Treatment and Options

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Non-Hodgkins Lymphomas: Making Sense of Diagnosis, Treatment and Options: summary, description and annotation

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Prior to publication of this resource guide, no book on the market targeted the non-Hodgkins lymphoma survivors need for understandable information. While there are medical texts on the non-Hodgkins lymphomas as well as inspirational first-person accounts from survivors of related cancers such as leukemia, between these two sources of information existed a considerable information gap. In straightforward language and in a format that anticipates the readers questions, this book addresses diagnosis and its emotional tumult, finding a good oncologist, the theories and practical aspects of treatment, characteristics of non-Hodgkins lymphomas, side effects and long-term effects of treatment, medical tests and procedures, and prognoses. Other topics of interest examined are coping with hospitalization, stress and its effects on the immune system, sexuality and fertility after treatment, how to interact successfully with medical personnel, and getting support from family, friends, employers and the broader community. The end of successful treatment and its sometimes surprising effects on ones emotions are covered in a separate chapter, as is the experience of relapse and how to select second-line treatment to regain remission. Clinical trials of promising new therapies grounded in Western medicine are covered in depth. The theories and experiences of marrow transplantation and stem cell support are surveyed. Two frank chapters on recordkeeping, finances, insurance, employment issues, traveling for care, and finding free treatment are included. Throughout the text and in several appendices, the reader is referred to other books, Web sites, and organizations that can provide more detail on a given topic. This book is intended for both newly diagnosed and long-term survivors of the non-Hodgkins lymphomas, their caregivers and loved ones, and for medical personnel who interact with survivors of the non-Hodgkins lymphomas.

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Page iii
Non-Hodgkin's Lymphomas
Making Sense of Diagnosis, Treatment & Options
Lorraine Johnston
Page iv Non-Hodgkins Lymphomas Making Sense of Diagnosis Treatment and - photo 2
Page iv
Non-Hodgkin's Lymphomas: Making Sense of Diagnosis, Treatment, and Options
by Lorraine Johnston
Copyright 1999 O'Reilly & Associates, Inc. All rights reserved.
Printed in the United States of America.
Published by O'Reilly & Associates, Inc., 101 Morris Street, Sebastopol, CA 95472.
Editor: Linda Lamb
Production Editor: Claire Cloutier LeBlanc
Printing History:
May 1999: First Edition
The O'Reilly logo is a registered trademark of O'Reilly & Associates, Inc. Many of the designations used by manufacturers and sellers to distinguish their products are claimed as trademarks. Where those designations appear in this book, and O'Reilly & Associates, Inc. was aware of a trademark claim, the designations have been printed in caps or initial caps.
This book is meant to educate and should not be used as an alternative for professional medical care. Although we have exerted every effort to ensure that the information presented is accurate at the time of publication, there is no guarantee that this information will remain current over time. Appropriate medical professionals should be consulted before adopting any procedures or treatments discussed in this book.
Library of Congress Cataloging-in-Publication Data:
Johnston, Lorraine.
Non-Hodgkin's lymphomas: making sense of diagnosis, treatment, and options /
Lorraine Johnston.
p. cm.(Patient-centered guides)
Includes bibliographical references and index.
ISBN 1-56592-444-4 (pbk.)
1. LymphomasPopular works. I. Title. II. Series.
R280.L9J64 1999
616.99'446dc21
98-55468
CIP
Picture 3This book is printed on acid-free paper with 85% recycled content, 15% post-consumer waste. O'Reilly & Associates is committed to using paper with the highest recycled content available consistent with high quality.
Page v
To my wonderful husband, Larry
Page vii
Table of Contents
Foreword
ix
Preface
xv
1. Symptoms and Diagnosis
1
2. Finding the Right Oncologist
16
3. What Are the Non-Hodgkin's Lymphomas?
27
4. Prognoses
51
5. Tests and Procedures
69
6. How the NHLs Are Treated
113
7. What to Expect During Chemotherapy
142
8. What to Expect During Radiotherapy
157
9. Side Effects of Treatment
165
10. If You're Hospitalized
189
11. Stress and the Immune System
205
12. Interacting with Medical Personnel
234
13. Getting Support
248
14. Insurance, Finances, Employment, Record-Keeping
281
15. After Treatment Ends
297
16. Late Effects, Late Complications
312

Page viii
17. Sexuality, Fertility, and Pregnancy
331
18. Relapse
348
19. Clinical Trials
358
20. Transplantation
381
21. Traveling for Care
410
22. If All Treatments Have Failed
418
23. The Future of Therapy
432
24. Researching Your Lymphoma
459
A. Resources
481
B. Blood and Marrow Test Values
505
C. Body Surface Area in Square Meters
507
D. Classification Systems
509
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