Negotiating Bioethics
The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCOs Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning.
Negotiating Bioethics presents Langlois research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme deliberation and implementation at international and national levels, Langlois explores:
how relations between developed and developing countries can be made more equal;
who should be involved in global level decision-making and how this should proceed;
how overlap between initiatives can be avoided;
what can be done to improve the implementation of international norms by sovereign states;
how far universal norms can be contextualized;
what impact the efficacy of national level governance has at international level.
Drawing on extensive empirical research, Negotiating Bioethics presents a truly global perspective on bioethics. The book will be of interest to students and scholars of sociology, politics, science and technology studies, bioethics, anthropology, international relations and public health.
Adle Langlois is Senior Lecturer in Politics and International Relations at the University of Lincoln. She has conducted fieldwork in India, Kenya and South Africa. Her research interests include the regulation of human genetic and biomedical research, polio eradication and normative theories of global governance.
Genetics and Society
Series Editors: Ruth Chadwick, Director of Cesagen, Cardiff University, John Dupr, Director of Egenis, Exeter University, David Wield, Director of Innogen, Edinburgh University and Steve Yearley, Director of the Genomics Forum, Edinburgh University.
The books in this series, all based on original research, explore the social, economic and ethical consequences of the new genetic sciences. The series is based in the Cesagen, one of the centres forming the ESRCs Genomics Network (EGN), the largest UK investment in social-science research on the implications of these innovations. With a mix of research monographs, edited collections, textbooks and a major new handbook, the series is a valuable contribution to the social analysis of developing and emergent bio-technologies.
Series titles include:
New Genetics, New Social Formations
Peter Glasner, Paul Atkinson and Helen Greenslade
New Genetics, New Identities
Paul Atkinson, Peter Glasner and Helen Greenslade
The GM Debate
Risk, politics and public engagement
Tom Horlick-Jones, John Walls, Gene Rowe, Nick Pidgeon, Wouter Poortinga, Graham Murdock and Tim ORiordan
Growth Cultures
Life sciences and economic development
Philip Cooke
Human Cloning in the Media
Joan Haran, Jenny Kitzinger, Maureen McNeil and Kate ORiordan
Local Cells, Global Science
Embryonic stem cell research in India
Aditya Bharadwaj and Peter Glasner
Handbook of Genetics and Society
Paul Atkinson, Peter Glasner and Margaret Lock
The Human Genome
Chamundeeswari Kuppuswamy
Community Genetics and Genetic Alliances
Eugenics, carrier testing and networks of risk
Aviad E. Raz
Neurogenetic Diagnoses
The power of hope and the limits of todays medicine
Carole Browner and H. Mabel Preloran
Debating Human Genetics
Contemporary issues in public policy and ethics
Alexandra Plows
Genetically Modified Crops on Trial
Opening up alternative futures of Euro-agriculture
Les Levidow
Creating Conditions
The making and remaking of a genetic condition
Katie Featherstone and Paul Atkinson
Genetic Testing
Accounts of autonomy, responsibility and blame
Michael Arribas-Allyon, Srikant Sarangi and Angus Clarke
Regulating Next Generation Agri-Food Biotechnologies
Lessons from European, North American and Asian experiences
Edited by Michael Howlett and David Laycock
Regenerating Bodies
Tissue and cell therapies in the twenty-first century
Julie Kent
Forthcoming titles include:
Scientific, Clinical and Commercial Development of the Stem Cell
From radiobiology to regenerative medicine
Alison Kraft
Gender and Genetics
Sociology of the prenatal
Kate Reed
Risky Genes
Genetics, breast cancer and Jewish identity
Jessica Mozersky
The Gene, the Clinic and the Family
Diagnosing dysmorphology, reviving medical dominance
Joanna Latimer
Barcoding Nature
Shifting cultures of taxonomy in an age of biodiversity loss
Claire Waterton, Rebecca Ellis and Brian Wynne
Negotiating Bioethics
The governance of UNESCOs Bioethics Programme
Adle Langlois
First published 2013
by Routledge
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2013 Adle Langlois
The right of Adle Langlois to be identified as author of this work has been asserted by her in accordance with sections 77 and 78 of the Copyright, Designs and Patents Act 1988.
All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers.
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British Library Cataloguing in Publication Data
A catalogue record for this book is available from the British Library
Library of Congress Cataloging in Publication Data
Langlois, Adle.
Negotiating bioethics : the governance of UNESCOs Bioethics
Programme / Adle Langlois.
pages cm. (Genetics and society)
Includes bibliographical references and index.
