Elizabeth MacKinlay - Facilitating Spiritual Reminiscence for People with Dementia: A Learning Guide

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This practical follow-up to the authors earlier work on finding meaning in dementia through spiritual reminiscence is most welcome. It encourages small group leaders to develop and employ the requisite empathetic and communication skills, and offers a course based on six topics that have proved fruitful in helping those attending to feel that they have really been listened to.

Revd Dr Albert Jewell, editor of Spirituality and Personhood in Dementia and of the Christian Council on Ageings Dementia Newsletter, Visiting Research Fellow at Glyndwyr University

This helpful handbook shows that spirituality is not the province of experts. Carers can ask: who is this person? Step by step strategies prompt discussion of grief, guilt, fears, regrets, joys; also uncovering the dreaded issues of death and dying. The authors central message is that symbols may be more important than words and engaging with lifes meaning better than medication.

Rosalie Hudson, Associate Professor ( honorary ) , School of Nursing, University of Melbourne and Adjunct Associate Professor, Charles Sturt University

An outstanding book that demonstrates spiritual reminiscence can be highly successful in giving meaning, hope and perspective to people living with dementia in ways not traditionally thought possible. This is an invaluable resource for facilitators, providing guidance for each session. It challenges the facilitator to explore their own spirituality to ensure they are able to journey with others.

Elizabeth Pringle, former General Manager Operations Australian Aged Care Quality Agency (AACQA) and consultant, Improvement Matters

by the same authors

Finding Meaning in the Experience of Dementia

The Place of Spiritual Reminiscence Work

Elizabeth MacKinlay and Corinne Trevitt

ISBN 978 1 84905 248 1

eISBN 978 0 85700 657 8

Palliative Care, Ageing and Spirituality

A Guide for Older People, Carers and Families

Elizabeth MacKinlay

ISBN 978 1 84905 290 0

eISBN 978 0 85700 598 4

Ageing and Spirituality across Faiths and Cultures

Edited by Elizabeth MacKinlay

ISBN 978 1 84905 006 7

eISBN 978 0 85700 374 4

Ageing, Disability and Spirituality

Addressing the Challenge of Disability in Later Life

Edited by Elizabeth MacKinlay

ISBN 978 1 84310 584 8

eISBN 978 1 84642 767 1

Spiritual Growth and Care in the Fourth Age of Life

Elizabeth MacKinlay

ISBN 978 1 84310 231 1

eISBN 978 1 84642 480 9

The Spiritual Dimension of Ageing

Elizabeth MacKinlay

ISBN 978 1 84310 008 9

eISBN 978 1 84642 037 5

of related interest

Spirituality and Personhood in Dementia

Edited by Albert Jewell

ISBN 978 1 84905 154 5

eISBN 978 0 85700 352 2

Facilitating Spiritual
Reminiscence for Older
People with Dementia

A Learning Guide

Elizabeth MacKinlay
and Corinne Trevitt

Jessica Kingsley Publishers
London and Philadelphia

First published in 2015

by Jessica Kingsley Publishers

73 Collier Street

London N1 9BE, UK

and

400 Market Street, Suite 400

Philadelphia, PA 19106, USA

www.jkp.com

Copyright Elizabeth MacKinlay and Corinne Trevitt 2015

Front cover image source: Shutterstock.

All rights reserved. No part of this publication may be reproduced in any material form (including photocopying of any pages other than those marked with a , or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, Saffron House, 610 Kirby Street, London EC1N 8TS. Applications for the copyright owners written permission to reproduce any part of this publication should be addressed to the publisher.

Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution.

All pages marked may be photocopied for personal use, but may not be reproduced for any other purpose without the permision of the publisher.

Library of Congress Cataloging in Publication Data

MacKinlay, Elizabeth, 1940-

Facilitating spiritual reminiscence for older people with dementia : a learning guide / Elizabeth MacKinlay and Corinne Trevitt.

pages cm

Includes bibliographical references.

ISBN 978-1-84905-573-4 (alk. paper)

1. Senile dementia--Patients--Care. 2. Senile dementia--Patients--Religious life. 3. Senile dementia--

Patients--Pastoral counseling of. 4. Reminiscing in old age--Therapeutic use. 5. Spirituality. I. Trevitt,

Corinne. II. Title.

RC524.M27 2015

616.83--dc23

2014047205

British Library Cataloguing in Publication Data

A CIP catalogue record for this book is available from the British Library

ISBN 978 1 84905 573 4

eISBN 978 1 78450 018 4

Contents

Acknowledgements

The learning guide could not have been completed without the support of the following funding groups:

research pilot: University of Canberra Collaborative Grant

research project: Australian Research Council (ARC) Linkage Grant

trial of the learning guide: J.O. and J.R. Wicking Trust.

The authors would like to extend their thanks to all the older people with dementia who have shared their lives with us. It has been a privilege and joy to hear their stories.

We would also like to thank the aged care facilities that supported and contributed to these grants and participated in the Spiritual Reminiscence Project from 20032005:

Anglican Retirement Community Services Canberra and Merimbula

Wesley Gardens Uniting Care Ageing, Sydney

Mirinjani Village, Uniting Care Ageing, Canberra.

Preface

Over more than a decade we have spent many hours listening and speaking to older people who have dementia. They have shared about their lives, where they find meaning; and about their hopes, fears and regrets. This has come about primarily through a project titled Finding meaning in the experience of dementia: The place of spiritual reminiscence work. It has been both a privilege and a revelation to listen to the stories and to help these people explore emotional and spiritual issues through spiritual reminiscence.

What is spiritual reminiscence?

Spiritual reminiscence is a particular way of communication that acknowledges the person as a spiritual being and seeks to engage the person in a more meaningful and personal way. It focuses on the person and their emotional and spiritual being rather than on cognitive losses. Research has demonstrated that interactions among those with dementia are increased following group work in spiritual reminiscence for a period of up to six months (MacKinlay and Trevitt, 2005, 2012). Spiritual reminiscence in small groups also helps older people with dementia bond and develop friendships in a way that is often otherwise difficult to nurture in aged care facilities. These people have often lost most of the important relationships of their lives, and their communication difficulties make it harder for them to meet and get to know others in the new environment of residential aged care.

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