Jeanne Daly - Ethical Intersections: Health Research, Methods And Researcher Responsibility

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E THICAL INTERSECTIONS

Ethical Intersections

Health research, methods and researcher responsibility

Edited by Jeanne Daly

First published 1996 by Westview Press

Published 2018 by Routledge
52 Vanderbilt Avenue, New York, NY 10017
2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN

Routledge is an imprint of the Taylor & Francis Group, an informa business

Copyright this collection Jeanne Daly 1996
Copyright in individual essays remains with their authors

All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers.

Notice:
Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe.

Library of Congress Cataloging-in-Publication
Data available upon request

Set in 10/12pt Goudy Old Style by DOCUPRO, Sydney

ISBN 13: 978-0-367-00973-1 (hbk)

Contents

Jeanne Daly and Ian McDonald

Max Charlesworth

Paul M. McNeill

Judith Lumley

Paul Komesaroff

Richard Larkins

Terry Nolan

Gordon Guyatt

Ian McDonald

Jeanne Daly

Allan Kellehear

Pranee Liamputtong Rice

William Noble

Terri Jackson

Hal Kendig

Ian Anderson

Johanna Wyn, Judith Lumley, Jeanne Daly

Rhonda Galbally

Ian McDonald

Alvan R. Feinstein

Howard Waitzkin

Peter Mudge

Jeanne Daly

Guide

1. FIGURES
2. TABLES

These papers were written for a conference on research ethics funded by St Vincent's Hospital, the Australian Institute for Health and Welfare, and the Research and Development Grants Advisory Committee of the Australian Federal Department of Human Services and Health. Ian McDonald and Evan Willis made an invaluable contribution to the organisation of the conference and to developing the ideas for this volume.

Ian Anderson is Chief Executive Officer of the Victorian Aboriginal Health Service in Melbourne. He is a medical practitioner and doing postgraduate research in sociology. He is the author of Koorie Health in Koorie Hands (Koorie Health Unit, Health Department, Victoria, 1988).

Max Charlesworth is Emeritus Professor, formerly Professor of Philosophy and Dean of the School of Humanities at Deakin University, Melbourne. In 1990 he was made an officer of the Order of Australia (AO) for his contribution to philosophy and bioethics. He is the author of Life, Death, Genes and Ethics (ABC Books, 1989) and Bioethics in a Liberal Society (Cambridge University Press, 1993).

Jeanne Daly holds a PhD in sociology, and also holds degrees in environmental science and chemistry. She teaches medical sociology and research method in the School of Sociology and Anthropology at La Trobe University. She is co-editor of Researching Health Care: designs, dilemmas and disciplines (Routledge, 1992), Technologies in Health Care: Policies and politics (Australian Government Publishing Service, 1987) and The Social Sciences and Health Research (Public Health Association, 1990).

Alvan R. Feinstein is Sterling Professor of Medicine and Epidemiology in the School of Medicine, Yale University, New Haven. He pioneered the field of clinical epidemiology and has received many international awards for his work. He is editor of the Journal of Clinical Epidemiology and the author of a large number of books and articles. His books include the landmark publication Clinical Judgment (Williams & Wilkins, 1967), as well as Clinical Biostatistics (C.V. Mosby, 1977), Clinical Epidemiology: the archi -

tecture of clinical research (W.B. Saunders, 1985) and Clinimetrics (Yale University Press, 1987).

Rhonda Galbally is director of the Victorian Health Promotion Foundation, a funding body which supports health research and health promotion programs through a tax on tobacco sales. She has a long history of activism in the health and social services fields.

Gordon Guyatt is a Professor of Medicine and Clinical Epidemiology and Biostatistics at McMaster University, Canada. He has a distinguished publishing career in the fields of clinical trials methodology, quality of life measurement, and technology assessment. He has contributed extensively to the evidence-based medicine movement in medical education and practice and is editor of a series of papers in Journal of the American Medical Association entitled 'User's Guides to the Medical Literature'.

Terri Jackson is senior research fellow in the Monash University Health Economics Unit of the Centre for Health Program Evaluation, Melbourne. She has had a long association with the consumer health movement. Her research interests are in costing and utilisation management of hospital services and resource allocation in health care. She is a member of the Australian Health Ethics Committee.

Allan Kellehear is senior lecturer in the School of Sociology and Anthropology, La Trobe University, Melbourne. He has published widely and is the author of a number of books, including The Unobtrusive Researcher: a guide to methods (Allen & Unwin, 1993) and co-editor of Health Research in Practice Vol. 1 (Chapman and Hall, 1993) and Vol. 2 (Chapman and Hall, 1996).

Hal Kendig conducts and teaches applied research as director of the Lincoln Gerontology Centre in the Faculty of Health Sciences at La Trobe University. He is a Fellow of the Academy of Social Sciences in Australia, a Life Member of the Australian Council on the Ageing, and a member of the Australian Health Ethics Committee.

Paul Komesaroff is active in the areas of clinical endocrinology, medical research and the philosophy of medicine. He is executive director of the Eleanor Shaw Centre for the Study of Medicine, Society and Law at the Baker Medical Research Institute, Melbourne. He is the author of Objectivity, Science and Society (Routledge & Kegan Paul, 1986), editor of Troubled Bodies: critical perspectives on postmodernism, medical ethics and the body (Duke, 1995) and co-editor of Reinterpreting Menopause (Routledge, forthcoming).

Richard Larkins is the James Stewart Professor of Medicine at the University of Melbourne.

Pranee Liamputtong Rice was born in a small town in the south of Thailand. She is senior lecturer in the School of Sociology and Anthropology, La Trobe University, Melbourne, and Research Fellow at the Centre for Mothers' and Children's Health. Her research into the experience of migrant women during childbirth has been published in My Forty Days (The Vietnamese Antenatal/Postnatal Support Project, 1993) and Asian Mothers, Australian Birth (Ausmed, 1994).

Judith Lumley was director of the Centre for Mothers' and Children's Health at Monash University, Melbourne. She is now director of the National Perinatal Epidemiology Unit at Oxford University. Her books include Birth Rites, Birth Rights (Penguin, 1980) and Missing Voices (Oxford University Press, 1994).

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