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Timothy J. Steiner - Societal Impact of Headache: Burden, Costs and Response

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Timothy J. Steiner Societal Impact of Headache: Burden, Costs and Response

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This volume describes the impact of headache disorders on public health, and their adverse consequences for society. It opens with an overview of relevant headache disorders before describing, qualitatively, how the burdens attributable to these disorders fall upon adults, adolescents and children. In the second section, beginning with a methodological introduction discussing the principles and potential pitfalls of epidemiological studies assessing prevalence, headache-attributed burden and functional impact, the burdens of headache including financial cost are examined quantitatively and in detail. The third section critically reviews societys response, its inadequacies and the scope for improvement. Topics here include the political failure to recognize the public ill-health and cost that are the consequences of inadequate headache care; the role of the WHO in addressing the problem; headache service organization, delivery and quality; and the effectiveness and cost-effectiveness of interventions. The book closes by considering the way forward. This volume contains important messages for primary care and is likely to be of even greater interest to headache specialists and those concerned with public health and health policy. --

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Headache Series Editor Paolo Martelletti Roma Italy The purpose of this - photo 1
Headache
Series Editor
Paolo Martelletti
Roma, Italy

The purpose of this Series, endorsed by the European Headache Federation (EHF), is to describe in detail all aspects of headache disorders that are of importance in primary care and the hospital setting, including pathophysiology, diagnosis, management, comorbidities, and issues in particular patient groups. A key feature of the Series is its multidisciplinary approach, and it will have wide appeal to internists, rheumatologists, neurologists, pain doctors, general practitioners, primary care givers, and pediatricians. Readers will find that the Series assists not only in understanding, recognizing, and treating the primary headache disorders, but also in identifying the potentially dangerous underlying causes of secondary headache disorders and avoiding mismanagement and overuse of medications for acute headache, which are major risk factors for disease aggravation. Each volume is designed to meet the needs of both more experienced professionals and medical students, residents, and trainees.

More information about this series at http://www.springer.com/series/11801

Editors
Timothy J. Steiner and Lars Jacob Stovner
Societal Impact of Headache
Burden, Costs and Response
Editors Timothy J Steiner Department of Neuromedicine and Movement Science - photo 2
Editors Timothy J Steiner Department of Neuromedicine and Movement Science - photo 3
Editors
Timothy J. Steiner
Department of Neuromedicine and Movement Science, NTNU Norwegian University of Science and Technology, Trondheim, Norway
Division of Brain Sciences, Imperial College London, London, UK
Lars Jacob Stovner
Department of Neuromedicine and Movement Science, NTNU Norwegian University of Science and Technology, Trondheim, Norway
Norwegian Advisory Unit on Headaches, Department of Neurology and Clinical Neurophysiology, St Olavs University Hospital, Trondheim, Norway
ISSN 2197-652X e-ISSN 2197-6538
Headache
ISBN 978-3-030-24726-3 e-ISBN 978-3-030-24728-7
https://doi.org/10.1007/978-3-030-24728-7
Springer Nature Switzerland AG 2019
This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed.
The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use.
The publisher, the authors, and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, expressed or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

This Springer imprint is published by the registered company Springer Nature Switzerland AG

The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland

Foreword

Headache disorders are ubiquitous, highly prevalent and disabling. In the Global Burden of Disease Study 2010, tension-type headache and migraine were recognized as the second and third most prevalent disorders in the world. Headache is experienced by nearly everybody at some time or times in their lives. At any one time, at least 40% of the worlds adults have personal experience of one or more headache disorders, while recent surveys suggest the proportion of adults with headache on any particular day exceeds 1 in 20. In the Global Burden of Disease Study 2016, migraine was ranked as the second highest cause of disability overall and first in young adults (aged 1549 years).

The high prevalence of headache disorders gives rise to ill health and disability on a very substantial scale, which is being increasingly acknowledged. This monograph considers the public health perspective, and societal impact, of these conditions. While our understanding of the global burden attributable to headache disorders is still incomplete and our knowledge of healthcare resource allocation to headache is scant, there is good evidence to indicate that very large numbers of people disabled by headache do not receive effective healthcare. The barriers responsible for this vary throughout the world, but poor awareness in a context of limited resources generallyand for healthcare in particularis undoubtedly high among them.

The World Health Organizations Atlas of Headache Disorders and Resources in the World 2011 had this message for health planners and policy-makers:

The facts and figures presented [in the Atlas ] illuminate the worldwide neglect of a major cause of public ill-health and reveal the inadequacies of responses to it in countries throughout the world.

Moreover:

Given the very high indirect costs of headache, greater investment in health care that treats headache effectively, through well-organized health services and supported by education, may well be cost-saving overall.

This, therefore, is a monograph not so much about headache, or headache disorders, but rather about public health. In particular, the book provides a detailed analysis of the epidemiological and socioeconomic consequences of headache disorders, together with proposed and ongoing institutional and societal responses over the life course and across health and other sectors.

Dan Chisholm
Abbreviations
BASH

British Association for the Study of Headache

BMI

Body mass index

CATI

Computer-assisted telephone interview

CG

Condition group (in ICF)

CH

Cluster headache

CI

Confidence interval

CM

Chronic migraine

CMSCs

Chronic musculoskeletal complaints

COI

Cost of illness

CSF

Cerebrospinal fluid

CT

Computer tomography

DALY

Disability-adjusted life year

DW

Disability weight (applied to a health state in GBD)

EBC

European Brain Council

EC

European Commission

EEM

Equal effects model

EHF

European Headache Federation

EM

Episodic migraine

ENT

Ear, nose and throat

ERB

Ethics review board

EU

European Union

GBD

Global Burden of Disease (study)

GCA

Giant cell arteritis

GDP

Gross domestic product

GP

General (medical) practitioner

GPAC

Global Patient Advocacy Coalition

HADS

Hospital Anxiety and Depression Scale

HALT

Headache-attributed lost time (index)

HARDSHIP

Headache-attributed restriction, disability, social handicap and impaired participation (questionnaire)

HCP

Healthcare provider

HOH

Headache on the (Capitol) Hill

HUNT
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