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David Kirby - Evidence of Harm; Mercury in vaccines and the autism epidemic

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David Kirby Evidence of Harm; Mercury in vaccines and the autism epidemic
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Avoiding hyperbole while writing about a possible medical catastrophe is no easy task, but David Kirby has created a fine balance of investigative and personal detail in Evidence of Harm. Combining stories from the parents of autistic children with reports, speeches and studies from researchers, pediatricians and government officials, he creates a picture that is as terrifying as anything dreamed up by Hitchcock.The topic at hand is determining whether high levels of organic mercury present in an inexpensive preservative used in vaccinations can cause either autism or autism-like symptoms. Kirbys in a delicate position, searching for the truth between frantic parents (he focuses on the founders of political action group Safe Mind) and the self-protective pharmaceutical industry (the author thanks the nameless person who placed a pro-Eli Lilly litigation rider into the Homeland Security Act of 2002). Hes also honest enough of a reporter to admit to the temptation of deciding mercury is the culprit behind a range of disorders, even in light of some inconclusive test results. The ultimate truth isnt clear, and Kirby is direct about each of the reasons his sources have for their biased opinions.While some of the straight research reports will likely to go over the head of anyone not well versed in the terminology, the book is never dull--there is a continual urgency in the material that resists pedantry. However undecided the experts, readers will likely land firmly in one angry camp or the other. Jill Lightner --This text refers to an out of print or unavailable edition of this title.About the AuthorDavid Kirby has been a contributor to The New York Times for eight years, where he writes articles about science and health, among other subjects. He lives in Brooklyn, New York.

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Table of Contents There are two people who deserve to be thanked first and - photo 1
Table of Contents

There are two people who deserve to be thanked first and foremost, and they are my good friends the award-winning author David France and the multi-talented journalist Jay Blotcher. With their knowledge, experience, and good humor, David and Jay were my guides and inspiration as I worked on this project. Davids early reading of the manuscript and Jays later reading, and the long hours that each spent making suggestions, changes, and other edits, were the mark of true friends and committed comrades.
Of course, this book could never have been completed without the support and cooperation of dozens of parents of autistic kids, and their families. These parents opened their homes, and their lives, to me, and they always made me feel like a welcome and honored guest.
Lyn and Tommy Redwood and their children Drew, Hanna, and Will were wonderful subjects and gracious hosts. Lyn, especially, dedicated herself to this project with untiring enthusiasm and incalculable assistance.
Other families who graciously allowed me to enter and record their private worlds were Liz Birt and her kids Sarah, Matthew, and Andrew; Scott and Laura Bono and their children Dillan, Ashley, and Jackson; Mark and Elise Blaxill and their daughters Sydney and Michaela; Jeff and Shelley Segal and their twins Josh and Jordan; and Rick and Janna Rollens and their boys Steven and Russell.
And though I did not have a chance to visit Sallie Bernard and her family at home, I thank Sallie Bernard, her husband, Thomas, and her family for countless hours of help and guidance on the book. Other parents I want to thank include Albert Enayati, Heidi Roger, Lori McIlwain, Jo Pike, Robert Krakow, Lisa Sykes, Teri Small, Laura Weinberg Aronow, Bobbie Manning, Kelly Kerns, Daniele Sarkine Burton, Lujene and Alan Clark, Linda Weinmaster, Nancy Hokkanen, Kelli Ann Davis, Brian Hooker, Brenda Kerr, Phil Ehart, and J. B. Handley. Wendy Fournier deserves credit for designing the Web site that will be a companion to this book.
There were friends and family, too, who saw me through this project, the most difficult endeavor of my life. Special thanks go to Tim Horn, who helped, encouraged, and supported me in ways that he will never know. Special mention is also deserved for Patty Glynn Lenartz and her husband, Bob Lenartz, who furnished food, wine, and love, and David Fromm, who kept me from going completely insane. My good friend Matthew Singer read primordial drafts and provided invaluable commentary. My sister Nancy Bue supported me with love, kind words, and the occasional loan. And her kids, Michael and Jennifer, are the best. Lou Pansulla lent me his ears, money, and a whole lot more. Support and advice was also given freely by Gabriel Rotello, Doug Fredman, Ted Loos, Lizzy Bowman, Jonathan Starch, Laura Perry, James Rexroad, Shimon Attie, Georges Piette, George Calderaro, Rob Arnold, and Naan Nadar. I thank Yuri Sivo for bringing the autism epidemic to my attention. And I deeply thank Peter Downes for helping me to celebrate the books completion.
I also want to thank my New York literary agent, Todd Shuster, for believing in me and in this book from the very beginning. The project would have been unthinkable without his kindness, professionalism, good humor, and support. I also want to thank Scott Gold, in Todds office. Out in Los Angeles, I offer my heartfelt appreciation to Nancy Nigrosh, Max Roman, and Justin Winters at Innovative Artists. And Tom Acitelli, my transcriber, never missed a beat and did an impeccable job, always on time. PR gurus Jane Rohman and John Bianco, meanwhile, provided pro-bono direction that has been priceless and tremendously successful, and Peggy Klaus graciously supplied expert and gratis media training.
St. Martins Press has been stellar, a wonderful company to work with. My editor, George Witte, demonstrated patience and compassion and helped guide a first-time author through the choppy waters of publication. His former deputy, Marie Estrada, deserves a special mention for her quiet, solid support, and outside attorney Heather Florence showed patience, respectfulness, and eagle-eyed attention to detail. Publicity experts Elizabeth Coxe and Vicki Lame worked wonders to get the book noticed.
A small army of researchers have not only worked tirelessly on the thimerosal issue, but provided me with invaluable assistance throughout the course of my research and writing. Special thanks goes to Jill James, of Arkansas Childrens Hospital Research Institute, for helping a writer with a degree in liberal arts decipher some terrifically complicated data on biochemistry. The list of other researchers seemed to grow by the month. They include: Boyd Haley of the University of Kentucky; Mark and David Geier of Silver Spring, Maryland; Dr. Neal Halsey of Johns Hopkins University; Richard Deth of Northeastern University; Bill Walsh of the Pfeiffer Treatment Center; Allan Goldblatt of Long Island, New York; Bernard Rimland of the Autism Research Institute; Dr. Stephanie Cave of Baton Rouge; Dr. Jane El-Dahr of Tulane University; Dr. Jeffrey Bradstreet of the International Child Development Resource Center; Mady Hornig of Columbia University; Dr. Jim Neubrander; Dr. Sidney Baker; Rashid A. Buttar, D.O.; Dr. Marie McCormick of the Institute of Medicines Immunization Safety Committee; Dr. Paul Offit of Philadelphia Childrens Hospital; Dr. Richard Clover of the American Academy of Family Physicians; and Dr. Walter Ornstein of Emory Vaccine Center.
A number of people in politics and political activism were also essential to this effort. Chief among them are Rep. Dan Burton (R-IN) and his press secretary Nick Mutton. The support of Beth Clay, who worked for Burton when I started this book and now has her own consulting company, was priceless. Rep. Dave Weldon (R-FL) was instrumental to this book, and his aide Stuart Burns went beyond the call to help whenever he could. Other elected officials who went out of their way to help include Sen. Debbie Stabenow (D-MI) and her assistant Dave Lemmon, Eric Sapp, formerly of Sen. Ted Kennedys staff, and the offices of Sen. Patrick Leahy (D-VT) and John Conyers (D-MI).
Among the activists who helped me, I want to single out Barbara Loe Fisher of the National Vaccine Information Center, Michael Bender of the Mercury Policy Project, and Cheri Jacobus, a Republican activist and media consultant from Washington.
Many attorneys also deserve thanks. Chief among them is Jim Moody of Washington, who never failed to provide crystal-clear insight into a very murky story. Andrew Waters of Dallas was also tremendously cooperative, as well as Tom Yost of Baltimore, Cliff Shoemaker of Virginia, and Mike Williams of Portland, Oregon.
Finally, I want to thank whoever it was that placed the furtive Lilly rider into the Homeland Security Act of 2002. Without them, I might never have heard of thimerosal, and this book would not have been written.
November 5, 2004

T HIS SPRAWLING, interwoven story is far from over. Evidence to both support and refute the thimerosal-autism theory continues to trickle in from research under way around the world. Until the question is definitely resolved, the controversy will bubble and simmer. Meanwhile, determined parents will not relent in their search for new and promising treatments that could, perhaps, bring their ailing children one small step closer to normalcy. There is now tantalizing evidencebut still no definitive scientific proofthat this is possible.
What follows is a summation of many of the unresolved issues in this controversy. Its impossible to know which, if any, will be settled by the time this book is published.
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