First published in Great Britain in 2016 by
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To Brian and Marina Jarman for making everything possible
To our wives, Elizabeth Stubbs and Hilary Rowell, and our children for being able to see right through us and know us for who we are
The muck and dirt, the king with fleas. For theft, mutilation; for the wrong thoughts, death. An infant mortality rate as astronomical as the life-expectancy was minute, and the whole grisly, working package wrapped in a skein of wealth and advantage designed to maintain the dark dominion of the knowing over the ignorant (and the worst of it was the pattern; the repetition; the twisted variations of the same depraved theme in so many different places). Iain M Banks
Use of WeaponsAbout the authors
Roger Taylor is an entrepreneur and writer. He is co-founder and chair of the Open Public Services Network at the Royal Society of Arts. His first book God Bless the NHS was published by Faber and Faber and was a Guardian best-seller. He cofounded Dr Foster, the healthcare information business that has pioneered transparency in healthcare and was one of the UKs fastest growing start-ups.
He is a board member of Ofqual, the exam regulator in the UK and a trustee of SafeLives, the domestic abuse charity. He has worked with governments, NGOs and leading media organisations globally on the use of open data and public reporting. He is a strong advocate for the role of greater transparency as a mechanism for improved public services and consumer protection. He is currently working with the Careers and Enterprise Company in the UK, a social enterprise working to help young people move successfully from education into work.
Roger began his career as a journalist working as a correspondent for the Financial Times in the UK and the US and, before that, as a researcher for the Consumers Association.
Follow Roger on twitter @RTaylorOpenData
Tim Kelsey was the British governments first director of transparency and open data. In 2012 he was appointed national director for patients and information in the National Health Service (NHS) the worlds largest unitary health system - a role which combined the functions of chief technology and information officer with responsibility for patient and public participation. At that time, he was also chair of the National Information Board and, in that capacity, led design of a new strategy for technology and transparency in English healthcare to 2020 which has been adopted by the British government as formal policy. In 2014 Tim was named one of the 500 most influential people in the UK by the Sunday Times.
In 2000, Tim was co-founder of Dr Foster, a company which pioneered publication of patient outcomes in healthcare. Before Dr Foster, Tim was a national newspaper journalist and a television reporter. He worked for the Independent and the Sunday Times, as well as Channel 4 and the BBC. He is author of Dervish: Travels in Modern Turkey, published by Hamish Hamilton and Penguin Books.
Tim Kelsey is now a director of Telstra Health, and lives in Melbourne, Australia. He is also a visiting professor in the Institute of Global Health Innovation, Imperial College, London.
Follow Tim on twitter @tkelsey1
Acknowledgements
For giving us their time and wisdom in writing this book: Joel Adler, Prof. David Anderson, Paul Arnott, Prof. Ian Ayres, Ranajit Battacharyya, Sir Tim Berners-Lee, Godfrey Boniventura, Ania Calderon, Risha Chande, Ana Christina Ruelas, Eduardo Clark, Martyn Day, Sam Eastwood, Prof. Paul Elliott, Nancy Fletcher, Prof. John Fox, Paul Freeman, Alex Gordy, Helena Hofbauer, Ellen Klaus, Tariq Khokar, Warren Krafchik, Prof. Julian LeGrand, Tim Leunig, Kati Lopez, Adriana Lukas, January Makamba, Fina Mango, Anthony Maskell, Caroline Mauldin, Nick Maxwell, Cassie McGoldrick, Jonas Moberg, Karin Mochan, Prof. Beth Simone Noveck, Juan Pardinas, Haydee Perez Garrido, Ashley Petrons, Rakesh Rajani, Marko Rakar, Anthony Richter, Joel Salas, Eric Schadt, Florian Schweitzer, Chad Smolinski, Amanda Spielman, Glenys Stacey, Martin Tisne, Alexandra Zapata Hojel, Enrique Zapata
Thanks
To colleagues and friends with whom we have debated these topics over many years and especially Baron Adebowale of Thornes, Charlotte Alldritt, Prof Ross Anderson, John Appleby, Jake Arnold-Forster, David Ashby, Prof. Paul Aylin, Neil Bacon, Tania Baker, Duncan Baldwin, Jane Barnacle, Paul Bate, Zoe Bedford, Don Berwick, Maureen Bisognano, Dame Carol Black, Prof David Blumenthal, Jeremy Bolt, Alex Bottle, Mark Britnell, Beverley Bryant, Dame Fiona Caldicott, Alessandro Campana, Duncan Campbell, Jonathon Carr-Brown, Baron Carter of Coles, Harry Cayton, Jocelyn Cornwell, Will Cavendish, Paul Charman, Sir John Chisholm, Robert Cleary, Stephen Colegrave, Naaz Coker, Paul Corrigan, Baroness Cumberlege of Newick, Lisa Darnell, Baron Darzi of Denham, Penny Dash, Dame Sally Davies, Rhidian Wynn Davies, Sir Ciaran Devane, Anna Dixon, Jennifer Dixon, Michael Dixon, Ian Dodge, Sir Liam Donaldson, Tim Donohoe, Rt Hon. Stephen Dorrell, Emma Doyle, Prof Stephen Dunn, Helena Earl, Nigel Edwards, Deborah El-Sayed, Simon Enright, Omar Faiz, Marc Farr, Mike Farrar, Katie Farrington, Paul Farmer, Prof Steve Field, Brian Fisher, Hugo Ford, Claire Fox, Susannah Fox, Lisa Franklin, George Freeman MP, Simon Gallacher, Tony Gallagher, Pam Garside, Bridget Gill, Ben Goldacre, Malcolm Gooderham, Noel Gordon, Prof Sir Muir Gray, Sir Malcolm Grant, Tim Hailstone, Andrew Haldenby, Dame Barbara Hakin, Baroness Hayter of Kentish Town, Nicolaus Henke, Rt Hon Patricia Hewitt, Jamie Heywood, Sir Jeremy Heywood, Prof Howard Hiatt, Dame Deirdre Hine, Frank Hollendoner, John Holman, Matthew Holt, Phil Hope, John Horner, Rt Hon Jeremy Hunt MP, Baron Hunt of Kings Heath, Baron Hutton of Furness, Jen Hyatt, Sir Donald Irvine, Tom Jackiewicz, Julian Jarman, Katherine Jarman, Sian Jarvis, Hilly Janes, Ed Jones, Gareth Jones, Prof. Simon Jones, Alex Kafetz, Prof Cor Kalmann, Prof Sir Bruce Keogh, Vinod Khosla, Roger Killen, Andrew Kliman, Baron Knight of Weymouth, Peter Lawrence, Simon Lebus, Prof Tom Lee, Charles Lewington, Geraint Lewis, Jenny Lewis, Will Lewis, Roy Lilley, Sam Lister, Ben Lucas, Jonathan Luff, Steve Macauley, Craig Manson, Baron Maude of Horsham, Liam Maxwell, Professor Alan Maynard, Barry McCormick, Alan McDermott, John McLaren, Alastair McLellan, Andy McKeon, Gita Mendis, Steve Middleton, Rt Hon Alan Milburn, Chaand Nagpaul, Sir Robert Naylor, Sir David Nicholson, Dame Una OBrien, Ronan OConnor, Christine Outram, Todd Park, Sir Nick Partridge, Alan Plunkett, Bernie Porter, Prof Michael Porter, Katie Potts, Sir Chris Powell, Ambassador Samantha Power, Phil Reid, Prof Walter Ricciardi, Sir Mike Richards, Samantha Riley, Dame Jane Roberts, Eve Roodhouse, Rosamond Roughton, Helen Rowntree, William Salomon, Heather Savory, Helen Scott, Nick Seddon, Prof Martin Severs, Prof Sir Nigel Shadbolt, Joanne Shaw, Rohan Silva, Jenny Simpson, Peter Sinden, Bryan Sivak, Clive Smee, Richard Smith, Shane Solomon, Patrick Soon-Shiong, Emma Stanton, Simon Stevens, Geraldine Strathdee, John Stewart, Holly Sutton, Matthew Swindells, Sir Hugh Taylor, Jeremy Taylor, Matt Tee, Sir Richard Thompson, Dave Thomson, Mike Treadaway, Andrew Vallance-Owen, Chris Vein, Sir Mark Walport, Tom Whitwell, Peter Wienand, Patricia Wilkie, Andy Williams, Prof Sir Norman Williams, John Witherow.