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Brackey - Creating Moments of Joy Along the Alzheimers Journey: A Guide for Families and Caregivers, Fifth Edition, Revised and Expanded (Revised)

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Brackey Creating Moments of Joy Along the Alzheimers Journey: A Guide for Families and Caregivers, Fifth Edition, Revised and Expanded (Revised)
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Creating Moments of Joy Along the Alzheimers Journey: A Guide for Families and Caregivers, Fifth Edition, Revised and Expanded (Revised): summary, description and annotation

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The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimers disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimers, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimers and that often what we have most to learn about is ourselves.

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Creating Moments of JOY Creating Moments of JOY Along the Alzheimers - photo 1

Creating
Moments
of
JOY
Creating
Moments
of
JOY
Along the
Alzheimers Journey
Jolene Brackey

Fifth Edition

Purdue University Press, West Lafayette, Indiana

Copyright 2017 by Jolene A. Brackey. All rights reserved.

Printed in the United States of America.

I would like to gratefully acknowledge all of the writers I have quoted for their wisdom and inspirational words. If there is an error concerning permission to reprint, I apologize and a correction will be made in subsequent editions.

Cataloging-in-Publication Data is on file with the Library of Congress.

Paper ISBN: 9781557537607

ePDF ISBN: 9781612494821

ePUB ISBN: 9781612494838

This book is sold with the understanding that neither the author nor the publisher is engaged in tendering legal, accounting, medical, or other professional advice. If such advice or other assistance is required, the personal services of a competent professional should be sought.

Beloved is the Man
no one sees

Contents
Picture 2
Picture 3
Picture 4
Picture 5
Picture 6
Picture 7

People with Alzheimers Thank you for teaching me

Nutty Caregivers You are my inspiration

Linda and Natalie Friends and experts on Alzheimers

Sisters of Providence Angel wings surrounding me

Friends at Purdue (^_^)

Friends at home Dance when the music plays

Family Love my roots

Freddy Filler of many cups

Troy Steady cool water for this flower

Sidnee Gypsy artist lava

Taylor Butterfly fly high

Keegan Who knows me better than you?

Stacie Queens for a life

Mom and Dad For giving me wings to fly

A mountain of gratitude to ALL who polished this gem:
Sister Ellen, Sister Ruth, Sister Mary Rita, Kelley, and, of course, Dustin.

Peter, this was dug up again only because you asked and
graciously offered your monkey wisdom throughout.

A sweet long embrace to Stacie my niece, friend, and
steady rock. My goodness we make a magical team.

Bless our labor of love.

I have a vision. A vision to look beyond the challenges of Alzheimers and focus on creating moments of joy. With short-term memory loss life is made up of moments. There are not perfectly wonderful days; there are perfectly wonderful moments moments that put a smile on their face and a twinkle in their eye. Five minutes later, the person will have forgotten what was said and done; the feeling, however, lingers on. This new edition of Creating Moments of Joy is sprinkled with hope, fueled with wisdom, and lightened with humor. Our greatest teacher is the person with Alzheimers, and who we explore is Ourselves.

Picture 8Defining Moments Signs that tell you its time.
Picture 9Family Moments This section will help you understand the strain the caregiver feels and how we, together, can support those giving care.
Picture 10Challenging Moments This is a difficult journey, one you did not ask for. May this section teach you little tricks to lighten the load.
Picture 11Transitioning Moments You will encounter many transitions as the person moves through this disease. Learn how to sustain and trigger memories along the way.
Picture 12Enhanced Moments In each moment there is an opportunity to create a better moment. Discover how.
Picture 13Final Moments May we all grow spiritually and cherish the teachings along the way.

Keep it simple. Open the book to one chapter that speaks to you. You will make mistakes. Mistakes are treasures too because they teach you what not to do. With short-term memory loss you get many do-overs, and each moment is a new moment. As a family, scribble notes everywhere about anything at all; one person can write with a blue pen, another with red, and another with black. When the time comes, pass on this book filled with your struggles and solutions so wants and wishes are not lost, but bound together.

Every person with Alzheimers is completely different. Therefore, I am not your teacher; your experience with this person, in each moment, is your teacher.

Its also my true desire to create moments of joy for you, the person who holds and reads this book. I have carefully selected stories, quotes, and dashes of humor may you remember, cry, laugh, love, and find a bit of hope.

Creating Moments of Joy Along the Alzheimers Journey A Guide for Families and Caregivers Fifth Edition Revised and Expanded Revised - image 14

Knowledge is the foundation of Wisdom, but Wisdom means nothing unless you apply it. THE BUNNY

Creating Moments of Joy Along the Alzheimers Journey A Guide for Families and Caregivers Fifth Edition Revised and Expanded Revised - image 15

Bob was an avid fly fisherman and loved fishing the streams of Oregon. I met him when he moved into our community after being diagnosed with Alzheimers. Bob had a wonderful relationship with his wife, and I asked her to bring me one of his fishing poles. We were all outside enjoying the sun when his wife opened the door with a fishing pole in her hand. I gave the pole to Bob and asked if he would show us how to cast. He tossed the line out with such ease and then handed me the fishing pole. Needless to say, I didnt do very well, but he enjoyed watching me try. Then I asked him, How do you tie the lures on? He grabbed into the air for a fishing line, which wasnt really there, and he moved his hands and fingers as if he were tying the knot. He looked over at me with the imaginary knot in his hand and a smile on his face. I said, Youre amazing. And he just laughed.

T his is what I mean by creating a moment of joy. Bob relived a beloved pastime: fly-fishing. If his wife had not brought his fishing pole, this moment would not have occurred. We would have missed our opportunity to create a moment of joy. Instead, we captured it. We created a moment of joy for the people who lived in our community, for me, for Bobs wife, and, most importantly, for Bob.

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