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Steve Silberman - NeuroTribes: The Legacy of Autism and the Future of Neurodiversity

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Steve Silberman NeuroTribes: The Legacy of Autism and the Future of Neurodiversity

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Going back to the earliest days of autism research and chronicling the brave and lonely journey of autistic people and their families through the decades, Silberman provides long-sought solutions to the autism puzzle, while mapping out a path for our society toward a more humane world in which people with learning differences and those who love them have access to the resources they need to live happier, healthier, more secure, and more meaningful lives. Along the way, he reveals the untold story of Hans Asperger, the father of Aspergers syndrome, whose little professors were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of neurodiversity activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.

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Hans Asperger and children at the University of Vienna 1930s - photo 1
Hans Asperger and children at the University of Vienna 1930s An imprint - photo 2

Hans Asperger and children at the University of Vienna, 1930s.

NeuroTribes The Legacy of Autism and the Future of Neurodiversity - image 3

NeuroTribes The Legacy of Autism and the Future of Neurodiversity - image 4

An imprint of Penguin Random House LLC

375 Hudson Street

New York, New York 10014

NeuroTribes The Legacy of Autism and the Future of Neurodiversity - image 5

A portion of the introduction, Beyond the Geek Syndrome, appeared in a different form in Wired magazine.

Photograph of Dr. Hans Asperger is courtesy of Dr. Maria Asperger Felder.

Copyright 2015 by Steve Silberman

Penguin supports copyright. Copyright fuels creativity, encourages diverse voices, promotes free speech, and creates a vibrant culture. Thank you for buying an authorized edition of this book and for complying with copyright laws by not reproducing, scanning, or distributing any part of it in any form without permission. You are supporting writers and allowing Penguin to continue to publish books for every reader.

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Library of Congress Cataloging-in-Publication Data

Silberman, Steve.

Neurotribes : the legacy of autism and the future of neurodiversity / Steve Silberman.

p. cm

ISBN 978-1-101-63964-1

1. Autism. 2. Autistic people. 3. Neurobehavioral disorders. 4. Neuropsychology. I. Title.

RC553.A88S54 2015 2015006545

616.85'882dc23

Neither the publisher nor the author is engaged in rendering professional advice or services to the individual reader. The ideas, procedures, and suggestions contained in this book are not intended as a substitute for consulting with your physician. All matters regarding your health require medical supervision. Neither the author nor the publisher shall be liable or responsible for any loss or damage allegedly arising from any information or suggestion in this book.

While the author has made every effort to provide accurate telephone numbers, Internet addresses, and other contact information at the time of publication, neither the publisher nor the author assumes any responsibility for errors, or for changes that occur after publication. Further, the publisher does not have any control over and does not assume any responsibility for author or third-party websites or their content.

Version_1

For Keith Karraker

Contents
Foreword

BY OLIVER SACKS

I first met Steve Silberman in 2001. He was a young journalist then, assigned to do a profile of me before the publication of my memoir Uncle Tungsten. He quickly gained my confidence, and I was to spend many hours talking with him, going with him to London, where I grew up, and introducing him to many of my friends and colleagues. Steve always dug deeper, asked more penetrating questions. He thought about things and made connections.

Around that time, he developed an interest in the growing epidemic of autism and Aspergers syndrome. He had been intrigued when I wrote about Temple Grandin and the savant artist Stephen Wiltshire in An Anthropologist on Mars, and now he set out to talk to researchers, physicians and therapists, parents of autistic children, andmost importantlyautistic people themselves. I know of no one else who has spent so much time simply listening, trying to understand what it is like to be autistic. Steves journalistic instincts and skills led him to do a tremendous amount of research, illuminating as no one has before the history of Leo Kanner and Hans Asperger and their clinics, as well as those who followed. He has portrayed the remarkable shifting of attitudes toward autism and Aspergers over the past few decades.

NeuroTribes is a sweeping and penetrating history of all this, presented with a rare sympathy and sensitivity. It is fascinating reading; it will change how you think of autism, and it belongs alongside the works of Temple Grandin and Clara Claiborne Park, on the bookshelf of anyone interested in autism and the workings of the human brain.

Introduction:
Beyond the Geek Syndrome

There is more than one way to do it.

L ARRY W ALL

O n a bright May morning in 2000, I was standing on the deck of a ship churning toward Alaskas Inside Passage with more than a hundred computer programmers. The glittering towers of Vancouver receded behind us as we slipped under the Lions Gate Bridge heading out to the Salish Sea. The occasion was the first Geek Cruisean entrepreneurs bid to replace technology conferences in lifeless convention centers with oceangoing trips to exotic destinations. I booked passage on the ship, a Holland America liner called the Volendam, to cover the maiden voyage for Wired magazine.

Of the many legendary coders on board, the uncontested geek star was Larry Wall, creator of Perl, one of the first and most widely used open-source programming languages in the world. Thousands of websites we rely on dailyincluding Amazon, Craigslist, and the Internet Movie Databasewould never have gotten off the ground without Perl, the beloved Swiss Army chainsaw of harried systems administrators everywhere.

To an unusual and colorful extent, the language is an expression of the mind of its author, a boyishly handsome former linguist with a Yosemite Sam mustache. Sections of the code open with epigrams from Larrys favorite literary trilogy, The Lord of the Rings, such as a fair jaw-cracker dwarf-language must be. All sorts of goofy backronyms have been invented to explain the name (including Pathologically Eclectic Rubbish Lister), but Larry says that he derived it from the parable of the pearl of great price in the Gospel of Matthew. He told me that he wanted the code to be like Jesus in its own humble way: Free, life-changing, and available to everyone. One often-used command is called bless.

But the secret of Perls versatility is that its also an expression of the minds of Larrys far-flung network of collaborators: the global community of Perl hackers. The code is designed to encourage programmers to develop their own style and everyone is invited to help improve it; the official motto of this community is There is more than one way to do it.

In this way, the culture of Perl has become a thriving digital meritocracy in which ideas are judged on their usefulness and originality rather than on personal charisma or clout. These values of flexibility, democracy, and openness have enabled the code to become ubiquitousthe duct tape that holds the Internet together, as Perl hackers say. As the Volendam steered into open water, I watched with admiration as my fellow passengers pulled Ethernet cables, routers, and other networking paraphernalia out of their bags to upgrade the ships communication systems. Instead of dozing in chaise longues by the pool, my nerdy shipmates were eager to figure out how things work and help make them work better. By midweek, they persuaded the captain to give them a tour of the engine room.

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