David B. Schwartz - Who Cares?: Rediscovering Community
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A wonderfully engaging and accessible book, Who Cares? emphasizes finding humane responses to developmentally and physically disabled individuals that are community driven rather than solely reliant on problem-solution oriented social service organizations. David Schwartz examines the roles of both informal communities and sectarian communities for examples and practical techniques that can be applied to the readers situation. The beautifully written, touching accounts of individual lives swept under the carpet of the social services system make it impossible to read this book without being affected by the storiessuch as the boy who was afraid of white,Nancy who moved to an apartment after forty years in a nursing home, and everyday life in a small east coast town whose inhabitants help one another in times of need.Schwartz does not advocate the overthrow or dismantling of the social services, but instead proposes supplemental responses that will lead to richer, better lives for both the recipient and the caregiving individual and community. The practical, easily encouraged methods of building informal models suggested by the author grow out of both his own practice and his informed experiences as director of a state social services agency and are grounded in the basic desires for nurturing, belonging, and a sense of community. Who Cares? will appeal to those working in the field of social services as well as the general reader searching for ways to bring meaning into the modern, disconnected life.
David B. Schwartz: author's other books
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David B. Schwartz
Laura Schwartz
Heather Schwartz
Matthew Schwartz
David G. Schwartz
David J Schwartz
Barry Schwartz
Lynne Sharon Schwartz
David J. Schwartz
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WHO CARES?
WHO
REDISCOVERING COMMUNITY
CARES?
REDISCOVERING COMMUNITY
CARES?
DAVID B. SCHWARTZ
First published 1997 by Westview Press
Published 2018 by Routledge
52 Vanderbilt Avenue, New York, NY 10017
2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN
52 Vanderbilt Avenue, New York, NY 10017
2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN
Routledge it an imprint of the Taylor & Francis Group, an informa business
Copyright 1997 Taylor & Francis
All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers.
Notice:
Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe.
Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe.
Library of Congress Cataloging-in-Publication Data
Schwartz, David B., 1948
Who cares?: rediscovering community / David B. Schwartz.
p. cm.
Includes bibliographical references and index.
ISBN 0-8133-3207-9 (hc). ISBN 0-8133-3208-7 (pb)
1. HandicappedCare. 2. Caregivers. 3. Community. I. Title.
HV1568.S38 1997
362.4dc20
Schwartz, David B., 1948
Who cares?: rediscovering community / David B. Schwartz.
p. cm.
Includes bibliographical references and index.
ISBN 0-8133-3207-9 (hc). ISBN 0-8133-3208-7 (pb)
1. HandicappedCare. 2. Caregivers. 3. Community. I. Title.
HV1568.S38 1997
362.4dc20
96-34625
CIP
CIP
ISBN 13: 978-0-8133-3208-6 (pbk)
TO LEE HOINACKI AND SEYMOUR B. SARASON
Suppose, again, that the other endured labour and weariness in teaching me; that, besides the ordinary sayings of teachers, there are things which he has transmitted and instilled into me; that by his encouragement he aroused the best that was in me, at one time inspirited me by his praise, at another warned me to put aside sloth; that, laying hand, so to speak, on my mental powers that then were hidden and inert, he drew them forth into the light; that, instead of doling out his knowledge grudgingly in order that there might be the longer need of his service, he was eager, if he could, to pour the whole of it into meif I do not owe to such a man all the love that I give to those to whom I am bound by the most grateful ties, I am indeed ungrateful.
Seneca
The triumph of the industrial economy is the fall of community. But the fall of community reveals how precious and how necessary community is. For when community falls, so must fall all the things that only community life can engender and protect: the care of the old, the care and education of children, family life, neighborly work, the handing down of memory, the care of the earth, respect for nature and the lives of wild creatures.
Wendell Berry
Nobody would choose to live without friends even if he had all the other good things.
Aristotle
CONTENTS
, Ivan Illich
The Circulating Swing, a Treatment for Insanity, 1818
Hobo Symbols:
Kind-Hearted Woman Lives Here
Food Here if You Work
Kind-Hearted Woman Lives Here
Food Here if You Work
Hobo Symbols:
A Religious Talk Here Will Get You a Free Meal
If You Are Sick, They'll Care for You Here
This Is a Good Place for a Handout
You May Sleep in the Hayloft Here
An Ill-Tempered Man Lives Here. Danger
A Doctor Lives Here. He Wont Charge for His Services
A Religious Talk Here Will Get You a Free Meal
If You Are Sick, They'll Care for You Here
This Is a Good Place for a Handout
You May Sleep in the Hayloft Here
An Ill-Tempered Man Lives Here. Danger
A Doctor Lives Here. He Wont Charge for His Services
When David Schwartz finished the manuscript for this book, he invited me to Harrisburg. I arrived, and we met at a sidewalk caf, a pleasant adornment to the not quite matching but nicely maintained row houses in the shadow of the robber baron State Capitol;. Schwartz was at the end of a months vacation. He had spent a lot of time sitting at his usual table at the North Street Caf, touching peoples lives This sometimes resulted in a certain match between two peoplefor exmple, a woman in a wheelchair with a shy and lonely but generous computer operator; a bright, twelve-year-old dyslexic boy with a palsied bachelor lawyer. Each had something to give the other.
Schwartz the man fits in no category. He has nothing of the meddler; rather, he possesses an unusual eye for the unexpected havens of sanity through which people respond to each other. He is not a do-gooder; when he invites two people to reach out to one another, he has no vision of the outcome. He does not fall into the role of matchmaker or gossip; he challenges those who meet through him to let themselves be surprised. His wit and dry humor have helped protect him from a pitfall of social service professionals; he has recovered from well-intentioned reforms that channel clients into mimicries of neighborhood, thereby confirming their inmate status.
With painful clear-sightedness, Schwartz has seen two things: what professional diagnosis, therapy, and institutional care do to the handicapped and, more important, the degree to which ritual segregation and treatment cement societys negative expectations about them. He does not repeat but rather complements the work of his predecessors John McKnight, Jerome Miller, and Nils Christie. Further, in one very important way Schwartz goes beyond them: He shows how these negative expectations are the main reason for an endemic blindness to the widespread readiness of ordinary people to provide individual handicapped persons with lifelong hospitality.
Ivan Illich
Grateful acknowledgment is made to the following for permission to quote or to reproduce figures:
Corbis-Bettmann; image of the Circulating Swing, frontispiece.
Gladwin, Thomas. East Is a Big Bird: Navigation and Logic on Puluwat Atoll. Cambridge, MA: Harvard University Press, 1970. Copyright 1970 by the president and fellows of Harvard College. Reprinted by permission of Harvard University Press.
Sarason, Seymour B. The Psychological Sense of Community: Prospects for a Community Psychology. San Francisco: Jossey-Bass, 1977.
Seal of the Pennsylvania Hospital, courtesy of the Pennsylvania Hospital, Philadelphia.
Stan Richards and Associates. Hobo Signs: A Lament for the Most Communicative Symbolism of Them All. Dallas: Stan Richards and Associates, 1974.
Stewart, Norman R., Bob Winiborn, Richard Johnson, Herbert Burns Jr., and James Engelkes. Systematic Counseling. Lansing: Michigan State University, College of Education, 1977.
Zborowski, Mark, and Elizabeth Herzog. Life Is with People: The Culture of the Shtetl. New York: Schocken, 1973. By permission of International Universities Press, Inc.
WHO CARES?
When I was a boy, I sometimes used to go along in the truck with my Uncle Erwin to fix big refrigeration systems. I got to carry his toolbox, in which his wrenches and gauges were laid out in precise order. We would climb way up into the attic of some movie theater to the place where massive air-conditioning machinery whirred to find out what was broken.
Uncle Erwin always did the same thing: He crouched down on his haunches in front of some big, complicated unit bristling with pipes and hoses and wires and ducts and motors and fanbelts, and he listened. He would cock his head from side to side and listen to all of the different noises. Sometimes he wrinkled his nose and sniffed for overheated oil or a slight electrical burning odor. After a long time, during which I was squirming, anxiously waiting to break out the tools and tear that big thing apart looking for the problem, he would get up. Hed walk over to some of the pipes and put one rough hand around the cold pipe and one around the warm return, and hed look off reflectively into space. His reverie, I believe, concerned physics. Refrigeration works by the way liquids, turning to their gaseous state, transfer energy as heat. With one hand on a copper pipe full of hot gas and the other on one filled with cold liquid, he was assessing the dynamic physical chemistry of the system.
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