Patricia Woodell Brenda Niblock - Are the Keys in the Freezer? : an Advocates Guide for Alzheimers and Other Dementias

Are the Keys in the Freezer?

of related interest

Can I tell you about Dementia?

A guide for family, friends and carers

Jude Welton

Illustrated by Jane Telford

ISBN 978 1 849052 979

eISBN 978 0 857006 349

Dancing with Dementia

My Story of Living Positively with Dementia

Christine Bryden

ISBN 978 1 843103 325

eISBN 978 1 846420 955

Understanding Alzheimers Disease and Other Dementias

Brian Draper

ISBN 978 1 849053 747

eISBN 978 0 857008 831

Mindfulness for Carers

How to Manage the Demands of Caregiving While Finding a Place for Yourself

Cheryl Rezek

ISBN 978 1 849056 540

eISBN 978 1 784501 471

Are the Keys in the Freezer?

An Advocates Guide for Alzheimers and Other Dementias

Patricia Woodell, Brenda Niblock, and Jeri Warner

Jessica Kingsley Publishers
London and Philadelphia

Excerpt of bullet list on pp. 334 printed with permission from Caring.com.

Stages of Alzheimers Disease used throughout with permission from HelpGuide.org.

Quote on p.141 printed with permission from Hank Dunn, author of Hard Choices for Loving PeopleCPR, Artificial Feeding, Comfort Care & the Patient with a Life-Threatening Illness.

Bullet list on p.157 reproduced by special permission of the publisher, Psychological Assessment Resources, Inc.

First published in 2014 by CreateSpace

This edition published in 2015

by Jessica Kingsley Publishers

73 Collier Street

London N1 9BE, UK

and

400 Market Street, Suite 400

Philadelphia, PA 19106, USA

www.jkp.com

Copyright Patricia Woodell, Brenda Niblock and Jeri Warner 2014, 2015

Front cover image source:Shutterstock.

All rights reserved. No part of this publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, Saffron House, 610 Kirby Street, London EC1N 8TS. Applications for the copyright owners written permission to reproduce any part of this publication should be addressed to the publisher.

Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution.

Library of Congress Cataloging in Publication Data

Woodell, Patricia.

Are the keys in the freezer? : an advocates guide for Alzheimers and other dementias / Patricia

Woodell, Brenda Niblock and Jeri Warner.

pages cm

Includes bibliographical references.

ISBN 978-1-84905-739-4 (alk. paper)

1. Dementia--Patients--Care. 2. Dementia--Patients--Services for. 3. Alzheimers disease--Patients-

Care, 4. Alzheimers disease--Patients--Services for. 5. Caregivers. I. Niblock, Brenda. II. Warner, Jeri. III.

Title.

RC521.W64 2015

616.83--dc23

2014048963

British Library Cataloguing in Publication Data

A CIP catalogue record for this book is available from the British Library

ISBN 978 1 84905 739 4

eISBN 978 1 78450 154 9

This book is dedicated to our mother, who continued to teach us about life, even when she could no longer speak.

About the authors

Patricia Woodell, Brenda Niblock, and Jeri Warner are first-time writers in the field of dementia care. The compelling story of their mothers decline into dementia is blended with research, practical insights, and tips for families looking for direction in how to care for aging spouses or parents.

Patricia has written numerous technical publications for the Alaska Department of Commerce and Economic Development in Anchorage where she worked for twelve years as a project manager and instructor. After retirement, she volunteered for the Consumer Protection Division in the Washington State Attorney Generals Office of Consumer Protection. Pat received a bachelor of arts degree from the University of Washington in Seattle, Washington, with majors in English literature and German literature, and a masters degree in Asian studies from the University of the Philippines in Quezon City, Philippines.

Brenda is a graduate of the University of Oregon in Eugene, Oregon, and holds a masters degree in science and teaching from Portland State University in Portland, Oregon. She is a retired health educator, having advocated for prevention of tobacco use for over two decades. Brenda volunteers as a public speaker and educator for Donate Life Northwest, promoting awareness of the need for more registered organ donors. A transplant survivor herself, Brenda understands the importance of advocacy in medical issues, and uses this experience in her role as a facilitator for a liver transplant support group.

Jeri was a physical therapist for thirty five years and retired after twenty one years with Kaiser Permanente in Portland, Oregon. Her focus was orthopedics. She received her bachelors degree in physical therapy from the University of Washington in Seattle, Washington. Jeris experience in the health-care field prepared her for working with older adults faced with the physical challenges of aging. Jeri is active in her community and volunteers as an English tutor for adults.

The familys story is based on experiences in a real town and actual care facilities in the Pacific Northwest.

Contents

Disclaimer

The interpretation of documents, opinions, and viewpoints expressed in this book are solely those of the authors. The choice of material and emphasis on particular subject matter is based on the authors personal experiences, which may be different for other families. Readers are advised to do independent research on topics of interest and draw their own conclusions. Readers should seek professional advice about the specifics of their loved ones medical, legal, or regulatory circumstances as they pertain to laws in their own states.

The authors do not have any monetary affiliations with organizations or individuals mentioned in this book. They may not have personally used the services of every organization mentioned. Some organizations described in this book are for profit, and it is incumbent upon readers to verify products or services independently before making financial transactions. Naming organizations or individuals in this book does not imply an endorsement, referral, or statement about their qualifications or the accuracy of their public information. Contact addresses and telephone numbers were correct at the time of this writing, but may be subject to change.

The views of individuals quoted in this book are solely their own views and not necessarily endorsed by the authors. The authors disclaim any responsibility for actions taken by readers based on legal, medical, or other references and conclusions cited in this book.

Acknowledgments

In the beginning, our goal was to write a family story about dementia. In the course of our research, that goal changed as we gained insight into the hopes and concerns of the people we met in memory care facilities. These people taught us about patience and consideration for others who are moving through life more slowly but with a grace and dignity thats still beyond our grasp. We reshaped our writing as our understanding about their lives grew, and we hope weve adequately represented the little things that affect their everyday lives.