Unknown - The Simplicity of Dementia

The Simplicity of Dementia of related interestDancing with DementiaMy Story of Living Positively with DementiaChristine Bryden ISBN 1 84310 332 X Care-based Therapy for Reducing Stress-RelatedBehaviours in Persons with DementiaChris Bonner ISBN 1 84310 349 4 Perspectives on Rehabilitation and DementiaEdited by Mary Marshall ISBN 1 84310 286 2 Dementia and Social InclusionMarginalised Groups and Marginalised Areas of DementiaResearch, Care and PracticeEdited by Anthea Innes, Carole Archibald and Charlie Murphy ISBN 1 84310 174 2 Hearing the Voice of People with DementiaOpportunities and ObstaclesMalcolm Goldsmith

The Simplicity of Dementia A Guide for Family and Carers Huub Buijssen Jessica Kingsley Publishers London and Philadelphia All rights reserved. No part of this publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, 90 Tottenham Court Road, London, England W1T 4LP. Applications for the copyright owners written permission to reproduce any part of this publication should be addressed to the publisher. Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution. The right of Huub Buijssen to be identified as author of this work has been asserted by him in accordance with the Copyright, Designs and Patents Act 1988. First published in Dutch in 1999 by De Stiel, Nijmegen and Tred Uitgeverij, Tilburg as Deheldere eenvoud van dementie: Een gids voor dee familie.

First published in English in 2005 by Jessica Kingsley Publishers 116 Pentonville Road London N1 9JB, UK and 400 Market Street, Suite 400 Philadelphia, PA 19106, USA www.jkp.com Copyright Huub Buijssen 2005 Second impression 2005 Library of Congress Cataloging in Publication Data Buijssen, H. P. J. [Heldere eenvoud van dementie. English] The simplicity of dementia : a guide for family and carers / Huub Buijssen. cm. cm.

Includes bibliographical references and index. ISBN-13: 978-1-84310-321-9 (pbk.) ISBN-10: 1-84310-321-4 (pbk.) 1. Dementia. 2. Caregivers. 3.

Dementia--Patients--Care. 4. Dementia--Patients--Family relationships. I. Title. RC521.B856 2005 616.8'3--dc22 2004027024 British Library Cataloguing in Publication Data A CIP catalogue record for this book is available from the British Library ISBN-13: 978 1 84310 321 9 ISBN-10: 1 84310 321 4 ISBN pdf eBook: 1 84642 096 2 Printed and Bound in Great Britain by Athenaeum Press, Gateshead, Tyne and Wear For my mother, who gave her all to keep Father at home for as long as was conceivably possible The author would like to thank the publishers and authors who have kindly given permission to reproduce the following material: Quotes on pp.13, 57, 144, 1612 and 1689 from Ze is de vioolmuziek vergeten (1995) by Marjan van den Berg, published by Van Reemst.

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Watt Ltd on behalf of Linda Grant. Quote on p.32 from Memory (1987) by Margaret Mahy, published by Collins Flamingo. Used with permission from HarperCollins Publishers Ltd and Watson Little. Quote on p.35 from De moeder van Nicolien (1999) by J.J. Voskuil, published by G.A. van Oorschot.

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Used with permission from the daughters of C. Vergoed. Quotes on pp.133 and 1345 from Het verhaal achter de feiten (1996) by Mia Duijnstee, published by Hbuitgevers. Used with permission from the publisher. Quote on p.148 from Meegesleurd in de hel van een Alzheimerpatint (1996) by Willy Wielek, published by Opzij. Used with permission from the publisher.

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Contents

What is dementia? Dementia in many forms Prevalence Causes The simple logic behind dementia How we remember The first law of dementia:disturbed encoding The second law of dementia:the roll-back memory The experience of dementia How can we know how someone is experiencing dementia? 52 The preliminary phase The need-for-supervision phase The need-for-care phase The need-for-nursing-care phase Communication Next page