Joanne Wolfe - Interdisciplinary Pediatric Palliative Care

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Oxford University Press 2022

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Library of Congress Cataloging-in-Publication Data

Names: Wolfe, Joanne, editor. | Hinds, Pamela S., editor. |

Sourkes, Barbara M., editor.

Title: Interdisciplinary pediatric palliative care / [edited by] Joanne

Wolfe, Pamela S. Hinds, Barbara M. Sourkes.

Other titles: Textbook of interdisciplinary pediatric palliative care

Description: 2. | New York, NY : Oxford University Press, [2022] |

Preceded by Textbook of interdisciplinary pediatric palliative care / [edited by]

Joanne Wolfe, Pamela S. Hinds, Barbara M. Sourkes. 2011. |

Includes bibliographical references and index.

Identifiers: LCCN 2021027440 (print) | LCCN 2021027441 (ebook) |

ISBN 9780190090012 (hardback) | ISBN 9780190090036 (epub) |

ISBN 9780190090043 (online)

Subjects: MESH: Palliative Care | Child | Patient Care Team |

Professional-Patient Relations | Professional-Family Relations |

Terminal Care | Infant | Adolescent

Classification: LCC RJ249 (print) | LCC RJ249 (ebook) | NLM WS 220 |

DDC 618.92/0029dc23

LC record available at https://lccn.loc.gov/2021027440

LC ebook record available at https://lccn.loc.gov/2021027441

DOI: 10.1093/med/9780190090012.001.0001

This material is not intended to be, and should not be considered, a substitute for medical or other professional advice. Treatment for the conditions described in this material is highly dependent on the individual circumstances. And, while this material is designed to offer accurate information with respect to the subject matter covered and to be current as of the time it was written, research and knowledge about medical and health issues is constantly evolving and dose schedules for medications are being revised continually, with new side effects recognized and accounted for regularly. Readers must therefore always check the product information and clinical procedures with the most up-to-date published product information and data sheets provided by the manufacturers and the most recent codes of conduct and safety regulation. The publisher and the authors make no representations or warranties to readers, express or implied, as to the accuracy or completeness of this material. Without limiting the foregoing, the publisher and the authors make no representations or warranties as to the accuracy or efficacy of the drug dosages mentioned in the material. The authors and the publisher do not accept, and expressly disclaim, any responsibility for any liability, loss, or risk that may be claimed or incurred as a consequence of the use and/ or application of any of the contents of this material.

To Drs. David Nathan, Sam Lux, and Ed Benz, long-time sponsors and allies, for supporting pediatric palliative care and innovation that has transformed from afterthought to essential forethought in the care of seriously ill children and their families,

and

As always, to Sam, Hannah, Ben, and Michael with love.

Joanne Wolfe

To every child who has suffered and to every childs family that has observed that suffering, and to my husband, children, and grandchildren who have shared my caring about ill children.

Pamela S. Hinds

In memory of my parents, teachers of the heart, and for Talia Jade my shining heart.

Barbara M. Sourkes