Published by Sellers Publishing, Inc.
Written by Tami C. Gaines
Illustrations by Roni Orlina
Cover and interior design by Heather Zschock
Back cover photo and back flap photo www.tonyturnerphotography.com
Sellers Publishing, Inc.
161 John Roberts Road, South Portland, Maine 04106
Visit our Web site:
eISBN: 978-1-4162-0680-4
Preemie Parents copyright 2011 by Full Frequency Transformation, LLC. All rights reserved under International and Pan-American copyright Conventions. By Payment of the required fees, you have been granted the non-exclusive, non-transferable right to access and read the text of this e-book on-screen. No part of this text may be reproduced, transmitted, down-loaded, decompiled, reverse engineered, or stored or introduced into any information storage and retrieval system, in any form, by any means, whether electronic or mechanical, now known or hereinafter invented without the express written permission of Sellers Publishing, Inc. e-books.
September 2011
The ideas and suggestions in this book are not intended as a substitute for the medical advice of your trained health professional. All matters regarding your health and your babys health require medical supervision. Where appropriate, consult your physician before adopting the suggestions in this book, as well as about any condition that may require diagnosis or medical attention. The author and publisher disclaim any liability arising directly or indirectly from the use of the book.
contents
Testimonials
Tami Gainesguides you through a place where no one wants to be, and leads you to a destination of hope, calm, and comfort. Preemie Parents is a must-read for anyone dealing with the journey between life and death.
Stephanie Brady,Mother of premature twins
In my thirty-one years of neonatal nursing practice, I have never seen anyone stop grieving the loss of their perfect pregnancy and ideal birth as quickly as Tami did. Any family who has experienced a premature birth should read Preemie Parents for its insights and to move through the experience with strength and a sense of peace.
Gail Lormand,Neonatal Intensive Care Nurse
Thank you for using your authenticity and honesty to share your journey and to teach and inspire us.
Julie G.,Mother of a premature baby
Preemie Parents will make you laugh, cry, and ultimately [it will] leave you feeling uplifted and capable of conquering all of lifes obstacles. Tami Gaines captures your heart and lifts your spirits from page one with her beautifully depicted journey through the life-changing experiences of marriage, motherhood, divorce, death, and especially life. With an open mind, a loving heart, and a positive outlook, Tami proves that anything is possibleeven the seemingly impossibleThis is a wonderful read for parents of premature babies, as well as for any member of the human race!
Erin Marie Duffy,RN, MSN
I had a twenty-four-weeker, named Ali. I was given your book by the March of Dimes support person at Capital Health System, in Trenton, New Jersey. This was one of the most terrible experiences of my life and in your book I found much truth and inspiration in our shared experience.
Donna A.,Mother of a premature baby
The depth and perspective of Preemie Parents is powerful, in a situation that makes you feel so powerless. Thank you for your faith and determination.
Anonymous
foreword
L ife begins with the first cry in the delivery room, but for premature babies, the journey starts when they enter the NICU. Although we do not know the course or outcome for the individual baby, every neonatologist awaits the predictable diseases and complications, based statistically on gestational age. We are limited in what we can prevent, but comfortable with the tools available to treat these infants. Parents enter dazed, overwhelmed by guilt and unspeakable fears for the future of their child. Many struggle with their own identity and loss of control while trying to learn how to parent their fragile child. Each week brings the bombardment of another medical hurdle to overcome and the introduction of yet another medical consultant to incorporate into the fabric of this strange, long journey.
Each story is intensely personal yet the shared experience is universal. Ms. Gaines tells a vivid and candid story of her familys experience in the NICU, while transforming her insights into powerful tools to help other families become advocates for these vulnerable infants. She challenges us as parents to look inside ourselves to find the strength, focus, and spiritual health to keep our child the priority at all times. She elevates the physician-parent relationship to a level that creates a powerful partnership that has but one goal: the well-being of a child. Over a career of twenty-five years, I have struggled to find the words that will help families during this journey. Ms. Gaines in Preemie Parents has achieved this by creating an emotional and spiritual framework for not only survival, but personal empowerment and transformation.
Gaines M. Mimms, M.D.
acknowledgments
I would like to give thanks and honor to God and my universal messengers from whom Ive received blessings, guidance, and limitless resources.
I would also like to thank the following earth angels who constantly walk with me, even when my path is uncertain
My kids, Haili, Shane, Bria, and Trey, for their inspiration, energy and for giving me a sense of purpose.
Shandrea Gilchrist who flew 3,000 miles to sleep on a cot in my hospital room for five days so that I could manage the next five weeks; for running up huge phone bills so she could check in so that I wouldnt check out.
Camari Tomlin who continues to give me a clear and hilarious voice of reason in the middle of any and all madness, whether I want to hear it or not. I love you, cuz.
Nana Tomlin and Nana Gaines for giving me a foundation of faith, a framework for motherhood, and for passing to the next life to make room for the twins in this one. I am eternally grateful for your continued influence on my life.
For my parents and family for knowing when to step in, step out, and step up.
Ouida Vendryes for her spirit and faith and reminding me to embrace and honor the same.
Tanya Coke and Cheryl Marshall-Petricoff for taking good care of my kids while I was in the hospital on bed rest, so I could focus on taking good care of myself.
Ed Blunt for stepping confidently into the craziness of my life and giving me boundless support, wisdom, inspiration, friendship, and love. Thank you is simply not enough.
Sue Gilad, for having a vision of me thats so unbelievably large and unwavering, that I have no choice but to step into it for fear of letting her down.
Dr. Judy Banks for embracing my faith, for her daily communion with me while I was on bed rest, and for her ability to know when to speak from a place of friendship.
Gail Lormand for her sage wisdom and willingness to risk being reprimanded for doing the unthinkable, for my promise of keeping it unspoken, all in the name of the growth and development of the twins, their siblings, and their mom.
Dr. Gaines M. Mimms for his humanity, commitment, sense of purpose, and sense of humor.