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Jay Wellons - All That Moves Us: A Pediatric Neurosurgeon, His Young Patients, and Their Stories of Grace and Resilience

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Jay Wellons All That Moves Us: A Pediatric Neurosurgeon, His Young Patients, and Their Stories of Grace and Resilience
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All That Moves Us: A Pediatric Neurosurgeon, His Young Patients, and Their Stories of Grace and Resilience: summary, description and annotation

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The surgical interventions in these pages are dizzying, but the fact that Jay Wellons can write as well as he can operate provides a whole other level of amazement.Ann Patchett, #1 New York Times bestselling author of Commonwealth
A powerful and moving account of the intense joys and sorrows of being a pediatric neurosurgeon.Henry Marsh, New York Times bestselling author of Do No Harm: Stories of Life, Death, and Brain Surgery

ONE OF THE BEST BOOKS OF THE YEAR: The New Yorker, Publishers Weekly
Tumors, injuries, ruptured vascular malformationsthere is almost no such thing as a non-urgent brain surgery when it comes to kids. For a pediatric neurosurgeon working in the medical minefield of the brainin which a single millimeter in every direction governs something that makes us essentially humanevery day presents the challenge, and the opportunity, to give a new lease on life to a child for whom nothing is yet fully determined and all possibilities still exist.
In All That Moves Us, Dr. Jay Wellons pulls back the curtain to reveal the profoundly moving triumphs, haunting complications, and harrowing close calls that characterize the life of a pediatric neurosurgeon, bringing the high-stakes drama of the operating room to life with astonishing candor and honest compassion. Reflecting on lessons learned over twenty-five years and thousands of operations completed on some of the most vulnerable and precious among us, Wellons recounts in gripping detail the moments that have shaped him as a doctor, as a parent, and as the only hope for countless patients whose young lives are in his hands.
Wellons shares scenes of his early days as the son of a military pilot, the years of grueling surgical training, and true stories of what its like to treat the brave children he meets on the threshold between life and death. From the little boy who arrived at the hospital near death from a gunshot wound to the head, to the eight-year-old whose shredded nerves were repaired using suture as fine as human hair, to the brave mother-to-be undergoing fetal spinal cord surgery, All That Moves Us is an unforgettable portrait of the countless human dramas that take place in a busy modern childrens hospitaland a meditation on the marvel of life as seen from under the white-hot lights of the operating room.

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Copyright 2022 by John C Wellons III MD All rights reserved Published in the - photo 1
Copyright 2022 by John C Wellons III MD All rights reserved Published in the - photo 2

Copyright 2022 by John C. Wellons III, MD

All rights reserved.

Published in the United States by Random House, an imprint and division of Penguin Random House LLC, New York.

Random House and the House colophon are registered trademarks of Penguin Random House LLC.

Library of Congress Cataloging-in-Publication Data

Names: Wellons, Jay, author.

Title: All that moves us: A pediatric neurosurgeon, his young patients, and their stories of grace and resilience / Jay Wellons.

Description: First edition. | New York: Random House, [2022] | Includes index.

Identifiers: LCCN 2021045920 (print) | LCCN 2021045921 (ebook) | ISBN 9780593243367 (hardcover; alk. paper) | ISBN 9780593243374 (ebook)

Subjects: MESH: Central Nervous System Diseasessurgery | Child | Infant | Adolescent | Neurosurgical Procedures | Neurosurgeons | Pediatrics | Tennessee | Personal Narrative

Classification: LCC RD593 (print) | LCC RD593 (ebook) | NLM WS 340.5 | DDC 617.4/8083dc23

LC record available at https://lccn.loc.gov/2021045920

LC ebook record available at https://lccn.loc.gov/2021045921

Ebook ISBN9780593243374

randomhousebooks.com

Cover design: Rachel Ake Kuech

Cover photograph: Getty Images/Md. Ar-Rafi Waseq Hossain

ep_prh_6.0_140224945_c0_r0

Contents

His soul swooned slowly as he heard the snow falling faintly through the universe and faintly falling, like the descent of their last end, upon all the living and the dead.

James Joyce, The Dead, Dubliners

Authors Note
The stories in All That Moves Us are true The children their parents and my - photo 3

The stories in All That Moves Us are true. The children, their parents, and my colleagues written about in these pages are real people. I spoke with nearly all the parents (or the patients themselves) in order to ensure that they would allow me to share the details of their respective journeys. I also sent the most recent version of the essay in which they or their child were mentioned. Each and every person that I communicated with gave me permission to use their childs (and/or their own) name and identifying information. In a few circumstances, I had the honor of reading the story to the parent in person and sharing the emotion relived, just for a moment.

There are some examples where I was unable to locate a parent, or a patient was not able to be found, and in those cases I did make changes to identifying characteristics to protect privacy. Some of my past co-worker names, such as in the chapter entitled A Mississippi Nick, have also been altered. In all of these circumstances, none of the changes materially affected the reality of the lived experience.

Prologue
The Littlest Among Us I am a pediatric neurosurgeon That means I operate on - photo 4

The Littlest Among Us

I am a pediatric neurosurgeon. That means I operate on children of all ages with brain and spinal cord problems. Those problems translate to tumors, blood vessel malformations, brain or skull development problems that need surgery, hydrocephalus, spina bifida, trauma; the list is long. I sew nerves back together if they are torn during birth using suture as fine as human hair. Some operations we do on teenagers on the verge of adulthood and some in the first week of life, including premature infants that weigh even less than one kilogram. I used to think that was small until I started doing spinal cord surgery on fetuses inside the uterus a few years back.

For the record, I dont usually lead at parties with my work. When people outside the hospital ask me what I do, I tell them I work in healthcare. Then, over about five more questions, if they take it that far, the term pediatric neurosurgeon finally comes out. My wife tells me that nothing can bring a party to a halt like talking about the importance of car seats and bicycle helmets, especially if I start telling stories from work.

My father had wanted to be a doctor. I feel it is important that you know that before we get started. Well before I was born, he had considered leaving a successful career in business and entering medical school. It was risky, but as a Korean Warera National Guard pilot he was used to risk. Earlier in his life, just after air force flight school and before the start of his first job, he had worked with a family medicine doctor, and the experience never left him. The kind older doctor had given my father his own stethoscope after their time together and told him that he would make a wonderful doctor one day. I have that stethoscope now. There is a little inscription on the bell that has Dads name and MD after it. Its like a relic from an alternate history. In a brief one-year push after leaving the working world, my father took postgraduate classes and passed entrance tests and came to the very cusp of getting himself there, but by then he had two small children and a wife at home and no way to pay for it or to make any kind of living for them. He tried. Ive seen the letters detailing unsuccessful attempts to secure the finances necessary for tuition. So, over time, he set that dream aside. Then, years later, I was born, a third child, very unexpected. From nearly that moment on, it was his hope that I would be a doctor.

At least initially, I fully bought into that dream. As a child, a few times I found myself interested in other careers. I was fascinated by flight and wore my fathers flight helmet around the house. Taking that path, I was told, meant too much time away from family. Such irony now. Focus on what could be accomplished on the ground. I realized just how pleased my parents were when I wrote my grade school career essay on being a doctor.

Over time, like most teenagers and proto-adults, I decided to take a different path, make my own way. I became an English major and tried to focus on writing but somehow, somehow kept taking premed classes and did well enough on the MCAT to get into medical school. I studied Joyce and Yeats and Shakespeare in college with professors who had trained at Trinity College in Dublin and at Oxford, and I took creative writing from Barry Hannah one semester and Ellen Douglas the next. The former pinched the filters off whatever cigarettes he was chain-smoking at the time in our small by-permission-only class and gave me a B minus on my writing. The latter sat with me and helped me and later wrote to me in a copy of Black Cloud, White Cloud, To Jay, whose works I remember with great fondness. (And no one knows until right now that I turned in the same stories to them both.) Despite all of that, I looked up after boarding school and college and found myself in medical school living my fathers dream, and that was just fine. I thought maybe I was there to learn something about what it means to be alive. I really had no idea what was to unfold over the next twenty-five years.

I cannot even begin to count the number of people outside the field who told me not to be a neurosurgeon. You are nothing like them, they said. Neurosurgeons are tired and grumpy. Egotistical. They work too much. The patients do terrible. Everyone dies.

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