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Allison Watson - Transplanted: My Cystic Fibrosis Double-Lung Transplant Story

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Allison Watson Transplanted: My Cystic Fibrosis Double-Lung Transplant Story
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Transplanted: My Cystic Fibrosis Double-Lung Transplant Story: summary, description and annotation

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A poignant, witty memoir of learning to cope with a frightening genetic diseaseand of a life transformed thanks to an organ donor.
When Allison Watson awoke that day, she knew she was in a hospital bed. Thats all. She had no idea how much time had passed since shed seen her family. When she tried to focus, her vision was blurry, and when she tried to wave someone down, she became so exhausted she thought she was dying. Hours later, when Watson was able to communicate, she asked a nurse if the news was good or bad. Its good news, the nurse replied. You had your lung transplant four days ago.
Many cystic fibrosis patients are living longer today, thanks, in part, to transplantsthough they are not easy to obtain. In this candid memoir, Watson describes living under the shadow of this incurable disease; her special bond with her sister, Amy, who also grew up with CF; and her life-altering surgery in Toronto in 2014. ; the r. Nor was the road to full recovery. In this book, Watson, who cycled across Canada with her brother in 2008 to raise awareness of CF, describes her journey.
Watson tells her resilient story of living with cystic fibrosis (CF), her progressive lung damage, the stress of waiting for an organ donor, her lifesaving transplant and life in the almost five years since her major surgery. The Guardian (Prince Edward Island, Canada)

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Copyright Copyright 2019 Allison Watson All rights reserved No part of this - photo 1
Copyright

Copyright 2019, Allison Watson

All rights reserved. No part of this book may be reproduced, stored in a retrieval system or transmitted in any form or by any means without the prior written permission from the publisher, or, in the case of photocopying or other reprographic copying, permission from Access Copyright, 1 Yonge Street, Suite 1900, Toronto, Ontario M5E 1E5.

Nimbus Publishing Limited

3660 Strawberry Hill Street, Halifax, NS, B3K 5A9

(902) 455-4286 nimbus.ca

Printed and bound in Canada

NB1358

Editor: Paula Sarson

Design: John van der Woude, JVDW Designs

Library and Archives Canada Cataloguing in Publication

Title: Transplanted : my cystic fibrosis double-lung transplant story / Allison Watson

Names: Watson, Allison, author.

Identifiers: Canadiana (print) 20189068310 | Canadiana (ebook) 20189068329 | ISBN 9781771087179 (softcover) | ISBN 9781771087186 (HTML)

Subjects: LCSH: Watson, Allison. | LCSH: Watson, AllisonHealth. | LCSH: Cystic fibrosisPatientsCanadaBiography. | LCSH: LungsTransplantationPatientsCanadaBiography.

Classification: LCC RC858.C95 W38 2019 | DDC 362.1963/720092dc23

Nimbus Publishing acknowledges the financial support for its publishing - photo 2

Nimbus Publishing acknowledges the financial support for its publishing activities from the Government of Canada, the Canada Council for the Arts, and from the Province of Nova Scotia. We are pleased to work in partnership with the Province of Nova Scotia to develop and promote our creative industries for the benefit of all Nova Scotians.

Dedication

For my organ donor; thank you for saving my life.

Disclaimer

This is my transplant story as I remember it. I was heavily medicated for most of the important parts and may not remember all the events in chronological order. For the retelling of this story, Ive relied on my blog posts and others memories, the latter of which may not be entirely accurate as my family was doing their best to support me at the time instead of taking detailed notes for a future book.

I have done my best to describe medical terms and events, but I am not a medical professional. My view of procedures may be vastly different from that of a doctor or nurse. Dr. Internet can help provide examples in areas I have missed.

This book is not intended as medical advice! Do not treat it as such.

Preface

I opened my eyes and everything was dark. I knew I was alone, in a hospital bed, but I wasnt sure on which wing or floor. I was pretty sure I was still in the Toronto General Hospital ( tgh ) but had no idea how much time had passed since I had last seen my family. When I tried to call out for a nurse, I found I couldnt speak due to a tube lodged in my throat. My arms felt as if they were weighed down with lead, so I couldnt wave for attention either. As I looked for a call bell to summon a nurse, I realized that I couldnt focus on anything: my vision was blurry and the world was spinning a little. My glasses were nowhere to be found. I could see people moving in the hallway, but they seemed to be spinning too. No one was coming into my room. The dead silence was so unusual. No machines were beeping, no people were talking, none of the usual hospital noises.

Despite the lead feeling in my arms, I tried to wave in someone from the people milling about in the hallway, but no one was coming to check on me. They were all moving in jerky motions while I kept waving. I quickly exhausted myself and lay motionless, wondering what was happening.

I started to panic as I was suddenly positive the blurred vision and spinning world meant that I had carbon dioxide poisoning. I needed to tell someone what was wrong. My assumption wasnt such a stretch, as the last thing I remembered was being told that my carbon dioxide levels were high. I was sure I was either still in that hazy, poisoned world or that it was happening again. My panic mounted while I continued to be unable to get anyone into the room to help me. The people I kept seeing in the hallway were ignoring me. And why did the unit have a cardboard cut-out of a smiling, mustachioed man in a sombrero selling tacos?

Eventually, someone solidified in the doorway to tell me that I needed to wait for my nurse to return from her break. I tried to communicate to him through hand gestures that I was being poisoned, but he didnt understand my frantic waving. I must have somehow conveyed my panic, as he reluctantly stepped into the room. He brought in a paper and pencil and gave it to me so I could write down what I was trying to say. I grabbed them eagerly but discovered that my hands wouldnt respond to the motions I tried to make. Instead, they were shaking uncontrollably and my eyes couldnt focus enough on the paper to see what I was attempting to write. In my frustration, I wrote a bunch of squiggly lines and handed the paper back to the man.

He then summoned someone else into the room to try to decipher my scrawl, but this woman was just as befuddled as he was. After many, many tries, I managed to write co2 , and they seemed to get the point that I thought my levels were high. The woman hung a bag of something on my iv pole and I felt a bit better. (For all I know, it was just stronger pain or sleep medication.) The man then asked if he could pray over me, to which I didnt respond as I was still confused, though certain I was poisoned. He prayed and then left the room. I soon fell back asleep.

When I woke up again, lights were on and there was a nurse sitting behind the glass panel in front of my room. She noticed I was awake and came into the room, apologized for the other mans behaviour and that I had wakened alone. I gestured to my throat and the equipment in the room by way of asking why it was there and what had happened.

She responded, Need a suction?

I had no idea what she meant, but I mustve nodded as she suddenly began shoving a tube into my lungs. It felt like I was choking and made me want to cough but when I tried, it was impossible. I didnt have the energy to move the muscles required to cough. As quickly as it had started, the suctioning was over and the tube was gone. I could breathe easier, but I still had no idea what had just happened.

All the nurse told me was that it was still early and I needed to try to go back to sleep. The next time I wakened, a different nurse told me that physiotherapy would be in later that day to get me up. I gestured to convey all my questions, so she brought me a pen and paper to write again. I tried to write down my multitude of questions such as, Where am I? and, Do I have carbon dioxide poisoning? but my hands were still too shaky and my eyes still couldnt focus. Somehow, the nurse realized that I was panicking and told me I was experiencing side effects from the medication. I wasnt sure what medication she was referring to but was happy to know, at last, that I wasnt being poisoned.

About the fourth time I woke up, I finally managed to communicate to the nurse that I had no idea what had happened. Where was I? Did I have a lung transplant? Was it good news? I dont remember much from those days, but I do remember her staring at me and saying, Oh honey, yes, its good news, very good news. You had your lung transplant four days ago.

Part I Pre-Transplant
My Life until October 2013
1 Prepping for Transplant
A Hard Shift to Make
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