Jenna Farmer - Managing IBD: A Balanced Guide to Inflammatory Bowel Disease
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- Book:Managing IBD: A Balanced Guide to Inflammatory Bowel Disease
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- Year:2017
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First published in 2017 by Hammersmith Health Books an imprint of Hammersmith Books Limited
4/4A Bloomsbury Square, London WC1A 2RP, UK
www.hammersmithbooks.co.uk
2017, Jenna Farmer
Figure 3 (The Bristol Stool Chart) Rome Foundation.
Cover photograph JL Pfeifer/shutterstock.com
All rights reserved. No part of this publication may be reproduced, stored in any retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise, without the prior permission of the publishers and copyright holder.
Disclaimer: The information in this book is of a general nature and is meant for educational purposes only. It is not intended as medical advice. The contents may not be used to treat, or diagnose, any particular disease or any particular person. Applying elements from this publication does not constitute a professional relationship or professional advice or services. No endorsement or warranty is explicitly given or implied by any entity connected to this content.
As always, if you are have pre-existing health issues and especially if you are taking any medications, you are advised first to consult your health practitioner before making any changes to your lifestyle and diet.
British Library Cataloguing in Publication Data: a CIP record of this book is available from the British Library.
Print ISBN: 9781781610985
Ebook ISBN: 9781781610992
Editor: Georgina Bentliff
Cover design: Sylvia Kwan
Text designed and typeset by: Sylvia Kwan
Index: Dr Laurence Errington
Production: Helen Whitehorn of Path Projects Ltd
Printed and bound by: TJ International Ltd, Cornwall, UK
This book is dedicated to the best family a girl could ask for to my husband Matt, who held my hand on our first date at 17 and has never stopped taking care of me since then; to my Mom and Dad, whose support has been constant and unwavering; to Jonathan, Jack, Leanne and Kate and my beautiful niece Ophelia who can brag that she already has her name in print at a few months old. None of this would be possible without each of you and I love you all.
Jenna xx
A huge thank you to all of my readers who made this possible and the IBD community who so willingly shared their feedback and stories (especially Bexie and all the other lovely folks in the Healthy Living with IBD Facebook group).
Jenna has written an honest and very personal account of her journey with Crohns disease from well before diagnosis and through many of her most difficult and painful moments. She also describes her personal battles and the difficult decisions she has taken. Her nutrition background helps this book stand apart from many other personal accounts of living with Crohns disease, with a great deal of detail on diet and dietary therapies, and the section written by Kay Grevson, a specialist IBD nurse, adds clinical detail which the reader will find helpful.
Many patients with Crohns and ulcerative colitis will find Jennas words resonate with them and this book will provide support and comfort to them, especially the experiences of other IBD sufferers and the broad range of topics covered which deal with many of the less commonly discussed aspects of IBD. There are tips on dealing with investigations, advice about taking care of oneself and discussion of several controversial and important topics in IBD such as diet, anxiety and complementary therapies.
At times funny (the description of inpatient care in China is almost unbelievable!), always engaging, this book is a mixture of advice, information and a warm hug, which IBD sufferers will enjoy reading and which does exactly what Jenna promises: Help you take a balanced and holistic approach to managing your life with inflammatory bowel disease.
forCrohns, 2017
Jenna Farmer was first diagnosed with Crohns disease in 2012 and has been passionate about raising awareness of what it is like to live with the condition ever since. Her love for healthy eating led to her studying for several Nutritional Therapy qualifications and she began to chronicle her attempts at living a balanced, healthy lifestyle with IBD on her blog www.abalancedbelly.co.uk in 2013. The website covers everything from travelling with the disease to easy-to-digest recipes and medication tips. Over the years, her site has grown significantly and Jenna has written for a variety of other health and nutrition websites also.
Kay Greveson has worked as an Inflammatory Bowel Disease nurse specialist since 2005 and now works as Lead IBD nurse specialist at the Royal Free Hospital Centre for Gastroenterology, London, UK, where in 2014 she founded IBDpassport, an evidence-based resource containing useful information regarding travel and IBD (www.ibdpassport.com). She also has personal experience of IBD, having been diagnosed with Crohns disease aged 13. Following university, she embarked on a year-long solo round-the-world trip that gave her personal insight into and empathy with the challenges faced in balancing life and travel with a chronic illness.
Sally Baker is a therapist, speaker and writer who has been working in London for more than a decade. She specialises in helping clients to resolve self-sabotaging behaviour in whatever form it shows up and to resolve and release limiting beliefs that inhibit them from living to their full potential. As well as being a hypnotherapist, she is a Master Practitioner of PSTEC (percussive suggestion technique) and an Advanced Practitioner of EFT (emotional freedom technique).
Most books about chronic conditions begin with the facts, perhaps the percentage of people who suffer from the disease, a clinical definition or a checklist of symptoms you mght be experiencing. Yet if you are reading this, then I am sure inflammatory bowel disease needs no introduction. I am certain that, like me, you are all too familiar with the symptoms: the classic ones the textbooks list (diarrhoea, pain, mouth ulcers) and the extra intestinal manifestations that nobody seems to really understand but are just as big a part of the disease (anxiety, skin rashes, nutritional deficiencies Im looking at you!). When we are first diagnosed with this (at times, extremely debilitating) disease, a doctor thrusts a leaflet into our hands and sends us on our way. This book does not aim to be one of these leaflets.
I know that facts certainly have their place and there are plenty of websites that will tell you the average age of diagnosis or the percentage of people who require surgery if thats what you are looking for. Instead, this book aims to do everything else. It aims to provide a practical and balanced approach to help you live with your Crohns disease or ulcerative colitis, to provide all the information on things youd like to ask your doctor but cant, from figuring out the foods that work for you, to making the most of your appointments to balancing your medication with the appropriate supplement routine.
So what makes me the expert? Well, this book is the culmination of my struggles and triumphs. From the 12 years I lived with stomach pain, anaemia, diarrhoea and abscesses only to be told I had IBS and stress. Its the story of the moment of diagnosis and beyond, as I learnt to live with and accept my disease.
My diagnosis could be a book in itself, for it took a move to the exotic land of China to finally figure out what was wrong with me. I had always felt unwell but since I had been labelled as suffering from IBS, managing my symptoms seemed almost part of my daily routine. Yet around a year after I moved abroad, I started to deteriorate and suffered from vomiting and weight loss; within days of seeing a doctor I was finally given a proper colonoscopy and diagnosed with Crohns disease. Being alone in a foreign country (the language of which I could not speak not a word!) forced me to become my own doctor, nutritionist and health advocate all rolled into one. As Crohns is extremely rare in China, I could not rely completely on the expertise of the medical professionals and thus began researching everything to do with the disease, treatment and ways to manage it. I navigated my way through hospital visits, Infliximab treatments, blood tests and colonoscopies, all while trying to master the basics of the language and adjust to the reality that my body had been trying to fight itself for the past 10 years.
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