Hepatology and Nutrition North American Society for - Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving
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- Book:Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving
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Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving: summary, description and annotation
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When a child has inflammatory bowel disease, the family has many concerns: Why is my child sick? What can we do to help him get better? What does the future hold for her? In this book, an expert team of pediatric gastroenterologists explains the symptoms, diagnoses, and treatments associated with Crohn disease, ulcerative colitis, and indeterminate colitis to help parents and children cope with the challenges of IBD.
The authors empathy and experience are evident throughout as they answer such questions as:
What are inflammatory bowel disease, Crohn disease, and ulcerative colitis? Is there a cure for IBD? How is IBD going to affect my childs daily life? Will my childs diet change? Can my child still play sports? Will my child need surgery? What are the side effects of commonly prescribed medications?
The book also provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older. Additional information on IBD medications, complementary treatments, and further reading round out this comprehensive and reliable resource.
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Your Child with Inflammatory
Bowel Disease
A Johns Hopkins Press Health Book
Bowel Disease
A Family Guide for Caregiving
North American Society for Pediatric Gastroenterology, Hepatology and Nutrition
EDITORS-IN-CHIEF
Maria Oliva-Hemker, M.D.
David Ziring, M.D.
Athos Bousvaros, M.D.
2010 The Johns Hopkins University Press
All rights reserved. Published 2010
Printed in the United States of America on acid-free paper
9 8 7 6 5 4 3 2 1
The Johns Hopkins University Press
2715 North Charles Street
Baltimore, Maryland 21218-4363
www.press.jhu.edu
ISBN-13: 978-0-8018-9555-5 (hardcover)
ISBN-10: 0-8018-9555-3 (hardcover)
ISBN-13: 978-0-8018-9556-2 (paperback)
ISBN-10: 0-8018-9556-1 (paperback)
Illustrations on pages 5, 6, 8, 12, 14, 22, 26, 37, 38, 49, 51, 83, 129, 131, 136, 169, 174 by Jacqueline Schaffer
Illustrations on pages 21, 47, 59, 65, 78, 90, 159, 163, 185, 195, 198, 203, 219 by Susanna Natti
Special discounts are available for bulk purchases of this book. For more information, please contact Special Sales at 410-516-6936 or specialsales@press.jhu.edu.
The Johns Hopkins University Press uses environmentally friendly book materials, including recycled text paper that is composed of at least 30 percent post-consumer waste, whenever possible. All of our book papers are acid-free, and our jackets and covers are printed on paper with recycled content.
The facing page and last printed page of this book are extensions of this copyright page.
Notes to the Reader:This book is meant to be an educational resource for parents of children and adolescents who have been diagnosed with Crohn disease or ulcerative colitis. It contains material that can help make sense of the bewildering amount of information that can overwhelm families when a child is diagnosed with one of these forms of inflammatory bowel disease (IBD). The materials contained in this book are for general education. The book should help parents understand what is happening, or might happen, to their specific children who have been diagnosed with a chronic intestinal condition. The book is not intended as a substitute for ongoing consultation with a health care provider, and your childs treatment should not be based solely on what is written here. Your childs treatment must be developed in a dialogue between you and your childs physician. Our book is written to help you with that dialogue.
No statements within the text should be considered recommendations concerning specific tests or treatments for an individual patient. The information provided should serve as the basis for a discussion between the family and health care provider and not as medical advice for any particular situation. The members of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN) stand ready to provide expert care for any child with IBD. To obtain a list of qualified physicians in your area, log on to the NASPGHAN Web site, www.naspghan.org.
Drug dosage: The author and publisher have made reasonable efforts to determine that the selection and dosage of drugs discussed in this text conform to the practices of the general medical community. The medications described do not necessarily have specific approval by the U.S. Food and Drug Administration for use in the diseases and dosages for which they are recommended. In view of ongoing research, changes in governmental regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert of each drug for any change in indications and dosage and for warnings and precautions. This is particularly important when the recommended agent is a new or infrequently used drug.
Susan S. Baker, M.D., Ph.D.
Childrens Hospital of Buffalo
Buffalo, New York
Robert N. Baldassano, M.D.*
Childrens Hospital of Philadelphia
Philadelphia, Pennsylvania
Keith J. Benkov, M.D.*
Mt. Sinai Medical Center
New York, New York
Athos Bousvaros, M.D.
Childrens Hospital
Boston, Massachusetts
Jeffrey B. Brown, M.D.
Childrens Memorial Hospital
Chicago, Illinois
Steven Brown, M.B.B.S., Ph.D.
Mount Sinai School of Medicine
New York, New York
Mitchell B. Cohen, M.D.
Cincinnati Childrens Hospital Medical Center
Cincinnati, Ohio
Stanley A. Cohen, M.D.
Childrens Center for Digestive Healthcare
Atlanta, Georgia
Richard B. Colletti, M.D.
University of Vermont
Burlington, Vermont
Wallace V. Crandall, M.D.
Nationwide Childrens Hospital
Columbus, Ohio
Karen Denise Crissinger, M.D., Ph.D.
University of South Alabama
Mobile, Alabama
Fredric Daum, M.D.
Winthrop University Hospital
New York, New York
Marla Dubinsky, M.D.
Cedars-Sinai Medical Center
Los Angeles, California
Adi R. Ferrara**
Bellevue, Washington
George D. Ferry, M.D.
Texas Childrens Hospital
Houston, Texas
Benjamin Gold, M.D.
Childrens Center for Digestive Healthcare
Atlanta, Georgia
Anne M. Griffiths, M.D.*
Hospital for Sick Children
Toronto, Ontario, Canada
Sandeep Gupta, M.D.
Riley Hospital for Children
Indianapolis, Indiana
Melvin B. Heyman, M.D., M.P.H.
San Francisco Childrens Hospital
San Francisco, California
Leslie M. Higuchi, M.D.
Childrens Hospital
Boston, Massachusetts
Jeffrey S. Hyams, M.D.*
Connecticut Childrens Medical Center
Hartford, Connecticut
Mark J. Integlia, M.D.
Cape Elizabeth, Maine
David M. Israel, M.D., F.R.C.P.
British Columbia Childrens Hospital
Vancouver, British Columbia,
Canada
Esther Israel, M.D.
Massachusetts General Hospital
Boston, Massachusetts
Robert M. Issenman, M.D.
McMaster Childrens Hospital
Hamilton, Ontario, CanadaHoward
A. Kader, M.D.
Sinai Hospital of Baltimore
Baltimore, Maryland
Marsha Kay, M.D.
Cleveland Clinic Foundation
Cleveland, Ohio
David J. Keljo, M.D., Ph.D.
University of Pittsburgh School of Medicine
Pittsburgh, Pennsylvania
Barbara S. Kirschner, M.D.
University of Chicago Childrens Hospital
Chicago, Illinois
Alan M. Leichtner, M.D.
Childrens Hospital
Boston, Massachusetts
David R. Mack, M.D.
Childrens Hospital of Eastern Ontario
Ottawa, Ontario, Canada
Laura Mackner
Nationwide Childrens Hospital
Columbus, Ohio
Lori Mahajan, M.D.
Cleveland Clinic Foundation
Cleveland, Ohio
Petar Mamula, M.D.
Childrens Hospital of Philadelphia
Philadelphia, Pennsylvania
James F. Markowitz, M.D.*
North ShoreLIJ Health System
New Hyde Park, New York
Jonathan E. Markowitz, M.D.
Greenville Childrens Hospital
Greenville, South Carolina
Adelina McDuffie, R.N., M.S., C.P.N.P.
Childrens Hospital of Kings Daughters
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