Redesigning Health Care for Children with Disabilities
Redesigning Health Care for Children with Disabilities
Strengthening Inclusion, Contribution, and Health
by
Heidi M. Feldman, M.D., Ph.D.
Neonatal and Developmental Medicine Pediatrics
Stanford University School of Medicine
Palo Alto, CA
Paul H. Brookes Publishing Co.
Post Office Box 10624
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Copyright 2013 by Paul H. Brookes Publishing Co., Inc.
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Cover photo Veer/Denys Kuvaiev.
The publisher and the authors have made every effort to ensure that all of the information and instructions given in this book are accurate and safe, but they cannot accept liability for any resulting injury, damage, or loss to either person or property, whether direct or consequential and however it occurs. Medical advice should only be provided under the direction of a qualified health care professional.
The individuals described in this book are composites or real people whose situations are based on the authors experiences. Actual names and details are used by permission. In some instances, names and identifying details have been changed for confidentiality.
Library of Congress Cataloging-in-Publication Data
Feldman, Heidi M.
Redesigning health care for children with disabilities : strengthening inclusion, contribution, and health / by Heidi M. Feldman.
p. ; cm.
Includes bibliographical references and index.
ISBN 978-1-59857-234-6ISBN 1-59857-234-2 (paperback)
ISBN 978-1-59857-404-3 (EPUB)
I. Title.
[DNLM: 1. Comprehensive Health Care. 2. Disabled Children. 3. Delivery of Health Care.
4. Inservice Trainingmethods. 5. Patient Care Team. W 84.5]
RC570
British Library Cataloguing in Publication data are available from the British Library.
Version 1.0
Contents
Heidi M. Feldman, M.D., Ph.D. , holds the Ballinger-Swindells Endowed Professorship in Developmental and Behavioral Pediatrics at Stanford University School of Medicine and serves as the Medical Director of the Mary L. Johnson Developmental-Behavioral Pediatrics Clinical Programs at Lucile Packard Childrens Hospital. She earned a Ph.D. in Developmental Psychology at the University of Pennsylvania in 1975. Her dissertation research was indicative of her early interest in children with disabilities; in collaboration with fellow graduate student Susan Goldin-Meadow, she conducted a study on how children who were deaf, born to hearing parents, and educated in the oral tradition learned to communicate. With an irrepressible desire to serve and understand children with disabilities, she decided to go to medical school at the University of California, San Diego School of Medicine, earning an M.D. degree in 1979. She then completed pediatric residency training at the University of California, San Diego Medical Center in 1982. Her primary mentor was Martin J. Stein, M.D., who demonstrated the power of the biopsychosocial model of pediatrics. Her fellowship training at the Childrens Hospital Boston in 19831984 was an individualized program. She studied under three productive pioneers in the emerging field of developmental-behavioral pediatrics: Melvin D. Levine M.D., who focused on the assessment and treatment of children with high-prevalence neurodevelopmental disorders; T. Berry Brazelton, M.D., who studied child development with an emphasis on infants; and Eli H. Newberger, M.D., who explored the causes and treatments of child abuse.
In 1984, Dr. Feldman joined the faculty at the University of Pittsburgh and worked at the Childrens Hospital of Pittsburgh. She initially served as the Director of the Child Development Unit, an interdisciplinary team that served children with disabilities. In a major restructuring in 1993, the unit joined the Division of General Academic Pediatrics to integrate developmental-behavioral pediatrics with primary care pediatrics, adolescent medicine, and child abuse services into a single division. Dr. Feldman served as Division Chief from 1993 to 2001.
A seminal event in Dr. Feldmans career was the creation of the University, Community, Leaders, and Individuals with Disabilities (UCLID) Center at the University of Pittsburgh. In response to a request for proposals from the Maternal and Child Health Bureau of Health Resources and Services Administration in the U.S. Public Health Service, a diverse group of colleagues from across the campus and hospitals of the University of Pittsburgh successfully prepared a grant proposal to launch the Leadership Education in Neurodevelopmental Disabilities program at the University of Pittsburgh. Dr. Feldman was the Project Director of the UCLID Center from 1995 to 2006; it brought together university faculty and students, community leaders, and individuals with disabilities. The center trained advanced professionals from 11 disciplines, hosted workshops and conferences, created model programs, and advocated for comprehensive and high-quality services for children with disabilities and their families.
In 2006, Dr. Feldman moved to Stanford University School of Medicine to assume her current position. She continues to conduct research on language and cognition in children with health care conditions that put language learning at risk. She is an active teacher. She teaches an undergraduate course; is a research mentor to medical and graduate students and to postdoctoral fellows; and provides professional training for developmental-behavioral pediatrics fellows, medical residents and fellows from a variety of disciplines, and practicing pediatricians throughout the country and the world. She advocates for children and for children with disabilities through projects funded by First 5 San Mateo County and by participation in the Board of Directors of Abilities United in Palo Alto, California.
Dr. Feldman has held several leadership positions nationally in the American Academy of Pediatrics. She is past President of the Society for Developmental and Behavioral Pediatrics and former Chair of the Sub-Board of Developmental-Behavioral Pediatrics of the American Board of Pediatrics. She is also one of the editors of the premier textbook in the field of developmental-behavioral pediatrics. In 2012, she received the prestigious C. Anderson Aldrich Award of the American Academy of Pediatrics, which honors physicians who make lasting contributions to the field of child development.
Dr. Feldman is also a dedicated yoga enthusiast and certified yoga teacher.
For many of you entering a health profession, a substantial portion of your professional life will be dedicated to providing care for individuals with disabilities and related conditions. For those of you who have been practicing for some time, unless you have subspecialized, you may be noticing a steady shift toward increasing numbers of individuals with disabilities in your practice. The Institute of Medicine reports that chronic illness, a compilation of many different specific diseases and disorders, is the fastest growing category of health conditions in the United States and Western world (Institute of Medicine, 2001).
