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This handbook advises adults experiencing a significant hearing loss on how to maximize whatever hearing remains, communicate without words, take charge, and accept that some things may be beyond control.
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Gallaudet University Press Washington, DC 20002 1993 by Gallaudet University. All rights reserved Published 1993. Second printing, 1993
Printed in the United States of America
Library of Congress Cataloging-in-Publication Data
Thomsett. Kay. 1952 Missing words : the familv handbook on adult hearing loss / Kay Thomsett, Eve Nickerson. p. cm. Icludes bibliographical references and index. ISBN 1-56368-023-8: $21.95 1. Deafness- Popular works. 2. PresbycusisPopular works. 3. Postlingual deafnessPatientsFamily relationships. 1. Nickerson. Eve. 1920- II. Title. RF29135.T48. 1993 93-668 617.8-dc20 CIP
The paper used in this publication meets the minimum requirements of American National Standard for Information SciencesPerimanence of Paper for Printed Librarv Materials. ANSI Z39.48-1984.
Page v
CONTENTS
Foreword
vii
Preface
ix
Part One A Personal Journey
Chapter 1 Missing Words
3
Chapter 2 Making the Most of Voices
30
Chapter 3 You and Your Environment
42
Chapter 4 Communication Beyond Words
57
Chapter 5 Taking Control and Letting Go
76
Chapter 6 Naming Shadows
99
Part Two Language and the Mind
Introduction
120
Chapter 7 Predicting Meaning
123
Chapter 8 Rethinking Sound
138
Chapter 9 Working Within and Beyond Limitations
147
Chapter 10 Language, Power, and Politeness
158
Part Three Communication
Chapter 11 The Basics of Communicating with a Hard of Hearing Person
180
Chapter 12 Techniques for Improving Communication
198
Afterword
213
Part Four Resources
Resources
218
Bibliography
235
Index
238
Page vii
FOREWORD
In 1975, Bill and Eve Nickerson walked into my office in Portland, Oregon. They were accompanied by Dr. Ian Brown, a neurologist, who introduced them to me. On that first visit, Bill was the reason for our meeting. Dr. Brown was kind enough to acquaint me with some of the background of this man who was a Marine combat fighter pilot in World War II and who had suffered trauma that had left him a legacy of chronic pain, which I was asked to help alleviate.
Later that same year, with Bill responding somewhat under treatment, Eve Nickerson also became a patient because she was having a problem with a progressive loss of hearing, which had worsened to the point that her ability to function as a schoolteacher was threatened. Testing revealed that the problem was a progressive bilateral sensorineural (nerve-type) hearing loss. Through the fifteen years since those initial visits, much has happened to Bill and Eve, and our odyssey together has drawn us close as we have struggled together through various problems of life, with some wins and some losses.
Now, in 1993, Eve Nickerson has gone the whole distance of hearing lossfrom mild to profoundin both cars. She has resorted to various remediesfrom the use of lipreading and hearing aids to a cochlear implant in the right ear that was done in 1985, followed by a revision of that implant in 1988. Dr. F Owen Black was the surgeon for both implant operations.
Eve was forced to give up her teaching as the burden of communication with her students became overwhelming. Of more critical importance was the forced retreat into a world of growing silence and the challenge of coping with it. To lose the enjoyment of music, the songs of the birds in one's yard on a pleasant morning, easy conversation with friends. the essential professional discussions on either one's business or health, the banter of family gatherings and the laughter of children, all of these taken-for-granted
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