Julia Botsford - Dementia, Culture and Ethnicity: Issues for All
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With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities.Drawing together evidence-based research and expert practitioners experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity.This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.
Julia Botsford: author's other books
Who wrote Dementia, Culture and Ethnicity: Issues for All? Find out the surname, the name of the author of the book and a list of all author's works by series.
Julia Botsford
Ruth Bartlett
Rachael Wonderlin
Karen Harrison Dening
Bernard Coope
Dementia, Culture and Ethnicity: Issues for All — read online for free the complete book (whole text) full work
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This is a book which is absolutely essential to anyone interested in people living with dementia and their care. It is rare to find a text that addresses the complexity of culture and ethnicity in such a person centred way, and unravels for us the implications for how we provide services and make care available to people of all backgrounds.
Charlotte L. Clarke, Professor of Health in Social Science, University of Edinburgh
This book is extremely timely and is a welcome contribution to our understanding and thinking about how to support people with dementia and their families from an increasingly diverse background. Within the different chapters it skilfully combines a range of important issues and useful information as well as including powerful stories and perspectives of families affected by dementia. Definitely one for the bookshelf for both those supporting families affected by dementia as well as policy decision makers.
Rachel Thompson, Professional & Practice Development Lead for Admiral Nursing, Dementia UK
of related interest
Personalisation and Dementia
A Guide for Person-centred Practice
Helen Sanderson and Gill Bailey
Foreword by Jeremy Hughes
ISBN 978 1 849053 792
eISBN 978 0 857007 346
Creating Culturally Appropriate Outside Spaces and Experiences for People with Dementia
Using Nature and the Outdoors in Person-centred Care
Mary Marshall and Jane Gilliard
ISBN 978 1 849055 147
eISBN 978 0 857009 272
Dementia and Social Inclusion
Marginalised Groups and Marginalised Areas of Dementia Research, Care and Practice
Edited by Anthea Innes, Carole Archibald and Charlie Murphy
ISBN 978 1 843101 741
eISBN 978 1 846420 252
DEMENTIA,
CULTURE AND
ETHNICITY
CULTURE AND
ETHNICITY
ISSUES FOR ALL
Edited by Julia Botsford and Karen Harrison Dening
Foreword by Alistair Burns
Jessica Kingsley Publishers
London and Philadelphia
London and Philadelphia
First published in 2015
by Jessica Kingsley Publishers
73 Collier Street
London N1 9BE, UK
and
400 Market Street, Suite 400
Philadelphia, PA 19106, USA
www.jkp.com
Copyright Jessica Kingsley Publishers 2015
Foreword copyright Alistair Burns 2015
All rights reserved. No part of this publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, Saffron House, 610 Kirby Street, London EC1N 8TS. Applications for the copyright owners written permission to reproduce any part of this publication should be addressed to the publisher.
Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution.
Library of Congress Cataloging in Publication Data
Dementia, culture and ethnicity: issues for all/edited by Julia Botsford and Karen Harrison Dening.
p. ; cm.
Includes bibliographical references and index.
ISBN 978-1-84905-486-7 (alk. paper)
I. Botsford, Julia, editor. II. Harrison Dening, Karen, 1957- , editor.
[DNLM: 1. Dementia--ethnology--Great Britain. 2. Attitude to Health--ethnology--Great Britain. 3.
Cultural Characteristics--Great Britain. 4. Cultural Competency--Great Britain. 5. Ethnic Groups--Great
Britain. WM 220]
RC521
362.1968300941--dc23
2014040509
British Library Cataloguing in Publication Data
A CIP catalogue record for this book is available from the British Library
ISBN 978 1 849054 867
eISBN 978 0 857008 817
Printed and bound in Great Britain
CONTENTS
FOREWORD
It is a pleasure to write a foreword for this important contribution to the field of dementia. Most people would agree that the profile and awareness of dementia has never been higher. In February 2015 the Prime Minster announced a follow up to his 2012 Dementia Challenge outlining the significant changes that had occurred in dementia over the preceding three years, building on the previous three years since the birth of the landmark National Dementia Strategy. While the themes are similar in terms of living well with dementia, risk reduction, public awareness, diagnosis, post diagnostic support, end-of-life care and research (to name but a few) the conversations about dementia are maturing to encompass the whole range of experience of people affected by dementia and their carers.
It is in that space that this book strikes a particular chord in that it deals with culture and ethnicity to further our understanding of the individual experience of dementia and how that impacts on the person, their carers and their families. It is so rewarding and illuminating to drill down to tap the huge resource of personal experience and how extraneous factors can influence the expression and experience of dementia.
Each chapter is a standalone treatise on important aspects of dementia. Understanding the effects of our culture, ethnic background but most importantly the combination of these will further our depth of understanding and empathy that we all know is the cornerstone of good person-centred care. In this way we can strive to improve the lived experience of dementia.
The editors and contributors are to be congratulated on bringing to life this hitherto relatively neglected but incredibly important aspect of dementia.
Alistair Burns CBE
Professor of Old Age Psychiatry
University of Manchester
Professor of Old Age Psychiatry
University of Manchester
INTRODUCTION
____________ Julia Botsford ____________
This book is about the relationship between culture, ethnicity and dementia. It explores the ways in which ethnic and cultural identities impact on people with dementia, their families and friends, as well as those who seek to diagnose, treat, care for and provide services for them. It is aimed at anyone who works in the field of dementia care or who is interested in this area. It is, as far as we know, the first book of its kind to be published in the UK.
Dementia, culture and ethnicity in context
Dementia is a growing global concern. Around 800,000 people in the UK and 44 million worldwide are currently estimated to have Alzheimers disease or another form of dementia (Alzheimers Research UK 2014), and these numbers are set to increase exponentially in the coming decades.
Wherever you are in the world, the likelihood of being affected by dementia is already huge. To illustrate, in 2010 the Alzheimers Research Trust estimated that as many as 25 million people (42% of the UK population) were affected through knowing a close friend or family member with the condition (Alzheimers Research Trust 2010). And yet, how we perceive the many and varied impacts of dementia, as well as the ways in which we react, is not the same for everyone. There is growing evidence that ethnicity and cultural backgrounds are significant in relation to how both individuals and communities deal with the onset of the cognitive changes associated with dementia. In addition, ethnicity and culture appear to have an impact on how people are supported, or not, by family, communities and statutory and non-statutory services, through the experience of living and dying with dementia.
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