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Dugas Gaé́tan - Patient Zero and the Making of the AIDS Epidemic

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Dugas Gaé́tan Patient Zero and the Making of the AIDS Epidemic

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The search for a patient zeropopularly understood to be the first person infected in an epidemichas been key to media coverage of major infectious disease outbreaks for more than three decades. Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideasand fearsabout contagion and social disorder.
McKay presents a carefully documented and sensitively written account of the life of Gatan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developedand who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North...

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Patient Zero and the Making of the AIDS Epidemic Patient Zero and the Making - photo 1

Patient Zero and the Making of the AIDS Epidemic
Patient Zero and the Making of the AIDS Epidemic

RICHARD A. MCKAY

The University of Chicago Press

CHICAGO & LONDON

The University of Chicago Press, Chicago 60637

The University of Chicago Press, Ltd., London

2017 by The University of Chicago

All rights reserved. No part of this book may be used or reproduced in any manner whatsoever without written permission, except in the case of brief quotations in critical articles and reviews. For more information, contact the University of Chicago Press, 1427 E. 60th St., Chicago, IL 60637.

Published 2017

Printed in the United States of America

26 25 24 23 22 21 20 19 18 17 1 2 3 4 5

ISBN-13: 978-0-226-06381-2 (cloth)

ISBN-13: 978-0-226-06395-9 (paper)

ISBN-13: 978-0-226-06400-0 (e-book)

DOI: 10.7208/chicago/9780226064000.001.0001

Bill Russells Epitaph for the Sexual Revolution is reprinted with permission from Samuel French, Inc.

Portions of the research presented in this book first appeared in Richard A. McKay, Patient Zero: The Absence of a Patients View of the Early North American AIDS Epidemic, Bulletin of the History of Medicine 88, no. 1 (Spring 2014): 16194, 2014 The Johns Hopkins University Press.

Interviews listed in the appendix are from Richard A. McKay, 2007 and 2008, Imagining Patient Zero: Interviews about the History of the North American AIDS Epidemic, Richard A. McKay and The British Library, Reference C1491.

Library of Congress Cataloging-in-Publication Data

Names: McKay, Richard Andrew, 1978 author.

Title: Patient zero and the making of the AIDS epidemic / Richard A. McKay.

Description: Chicago : The University of Chicago Press, 2017. | Includes bibliographical references and index.

Identifiers: LCCN 2017018054 | ISBN 9780226063812 (cloth : alk. paper) | ISBN 9780226063959 (pbk. : alk. paper) | ISBN 9780226064000 (e-book)

Subjects: LCSH: aids (Disease)North AmericaHistory. | EpidemicsNorth America. | AIDS (Disease)North AmericaHistoriography. | Dugas, Gatan, 19521984. | AIDS (Disease)Patients.

Classification: LCC RA643.86.N7 M46 2017 | DDC 362.19697/920097dc23

LC record available at https://lccn.loc.gov/2017018054

Picture 2 This paper meets the requirements of ANSI/NISO Z39.481992 (Permanence of Paper).

whats your name

whats your sign

whats your disease

i saw you standing there

pretty as you please

and couldnt help wondering

which of these

afflicts you:

sores around the mouth

or further south

swelling of the joints

or other points

lesions or lumps

blisters or bumps

or feeling generally queasy

from being too easy

seems everyone has something

and is avoiding something more

from the saints among us

to those who are hor

monally imbalanced

and cant get enough

of that funky stuff

im not casting aspersions

or condemning diversions

just a prudent inspection

to compare your infection

with mine

im in no position

to judge your condition

or condemn you

and call you a sleaze

but before were encased

in something debased

please tell me

whats your disease

Bill Russell, Epitaph for the Sexual Revolution, Christopher Street, December 1982

Contents

I am greatly indebted to my funding agencies, without whose financial support this work would not have been possible. These include the J. Armand Bombardier Foundation for an Internationalist Fellowship and the Wellcome Trust for a masters studentshipboth of which supported the early stages of this research. The bulk of the project was made possible with a generous award from the Wellcome Trust (080651) and support from the University of Oxfords Clarendon Fund. Travel awards from Green Templeton College, the American Association for the History of Medicine, and the Canadian Society for the History of Medicine also helped enable me to visit North America for research trips and conferences. In addition, research fellowships from the Economic and Social Research Council (PTA-026272838) and the Wellcome Trust (098705) provided opportunities for further research and writing.

For their early support and enthusiasm, I owe a great debt to Gareth Davies and Sloan Mahone. Their thoughtful questions and insightful feedback have improved this book immeasurably. At times when matters appeared particularly bleak, their encouragement made all the difference. Also heartening were discussions with Allan Brandt, Dorothy Porter, George Rousseau, Judith Leavitt, Virginia Berridge, Margaret Pelling, Pietro Corsi, Jason Szabo, Jacalyn Duffin, Naomi Rogers, and John Harley Warner. For their wonderful early teaching that helped put me on this path, I will always be grateful to Betty Anne Rivers Wang and the late Jerry Falk in South Surrey, British Columbia.

I would like to recognize the generous time and effort put in by each of my interviewees, whose trust and heartfelt reminiscences have enriched my work tremendously. I hope that I have succeeded in representing their views accurately and, where our interpretations have diverged, handled this with fairness and tact. I would like to thank Bill Darrow, Jean Robert, Joseph Sonnabend, Michael Brown, and Ray Redford for allowing me to consult copies of documents in their personal collections, and the siblings of Gatan Dugas for granting me permission to quote from their brothers correspondence. I must also thank the archivists and staff at the following archives and libraries for their time, patience, and assistance: Archives gaies de Qubec; Bibliothque et Archives nationales du Qubec; the British Columbia Gay and Lesbian Archives (BCGLA); the Canadian Lesbian and Gay Archives (CLGA); Columbia Universitys Center for Oral History Archives; the Gay, Lesbian, Bisexual, Transgender Historical Society; the John Hay Library; Library and Archives Canada; the Lesbian, Gay, Bisexual and Transgender Community Center National History Archive; the National Library of Medicine; the New York Public Library; ONE National Gay and Lesbian Archives at the USC [University of Southern California] Libraries; the Parish of Notre-Dame-de-LAnnonciation, Ancienne-Lorette; Ronald Reagan Presidential Library; San Francisco Public Library (SFPL); Sir James Dunn Law Library; the Toronto International Film Festival Groups Film Reference Library; and the University of CaliforniaSan Francisco (UCSF) Library and Center for Knowledge Management, Archives and Special Collections Division. Special mention must go to Alan Miller at CLGA; Josu Hurtado, formerly of UCSF; Ron Dutton at BCGLA; and Tim Wilson at SFPL for their exceptionally high level of assistance, as well as to the dedicated volunteer staff members at LGBT archives across North America, whose commitment to preserving and sharing records of the past are fundamentally important for historical endeavors like this one.

My time at Oxford would not have been the same without the wonderful people at the Wellcome Unit (particularly Carol Brady and Belinda Michaelides) and at Greenand later Green TempletonCollege. I cannot imagine better-suited environments for carrying out several years of research and reflectionparticularly when fueled by the tremendous food and interdisciplinary collegiality of Greens legendary lunchesand I will always feel fortunate to have lived and studied there. Out of this incredibly stimulating and welcoming community, a special thank-you is due to Pat Markus and her late husband Andrew for their ongoing guidance, support, and warm friendship. Mark Harrison and John Howard generously helped shape this book with their careful readings of an earlier iteration, as did two anonymous reviewers for the University of Chicago Press.

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