De - Facing Pelvic Pain: A Guide for Patients and Their Families

Facing Pelvic Pain A Guide for Patients and Their Families

Copyright 2021 by The Massachusetts General Hospital Psychiatry Academy. All rights reserved. Printed in the United States of America. Except as permitted under the United States Copyright Act of 1976, no part of this publication may be reproduced or distributed in any form or by any means, or stored in a data base or retrieval system, without the prior written permission of the publisher.

ISBN-13: 978-1-951166-22-9 (Print)

ISBN-13: 978-1-951166-24-3 (Ebook)

Cover Design: Falcone Creative Design, LLC

Book Design: Dianne Russell, Octal Productions, LLC

Book Production: Octal Productions, LLC

Managing Director: Jane Pimental, MGH Psychiatry Academy

Program Manager: Heather Giza, MGH Psychiatry Academy

Administrative Coodinator: Alexandra D. Fowler, MGH Psychiatry Academy

Printing and Binding: RP Graphics

This book is printed on acid-free paper.

Elise J.B. De, MD is an Associate Professor of Surgery at Harvard Medical School, a Staff Urologist at Massachusetts General Hospital (MGH) in the Department of Urology and the Center for Pelvic Floor Disorders, the Director of Urology Training for Female Pelvic Medicine and Reconstructive Surgery, and the Director of Neurourology Services for the Spaulding Rehabilitation Network. She is Chair of The Education Committee for the International Continence Society, has published scores of articles and book chapters on voiding dysfunction, pelvic reconstruction, neurogenic bladder, and pelvic pain, has edited a surgical video atlas on pelvic floor reconstruction, and delivered hundreds of presentations worldwide. Dr. Des current research focuses on pelvic pain and voiding dysfunction. Along with her colleagues she has developed two large networks for the multidisciplinary care of pelvic painat Albany Pelvic Heath Center and at the MGH.

Theodore A. Stern, MD is the Ned H. Cassem Professor of Psychiatry in the field of Psychosomatic Medicine/Consultation, Harvard Medical School and Chief Emeritus of the Avery D. Weisman Psychiatry Consultation Service, and Director of the Thomas P. Hackett Center for Scholarship in Psychosomatic Medicine at the Massachusetts General Hospital in Boston, Massachusetts. Dr. Stern has written more than 450 scientific articles and book chapters and edited more than 40 books, including the Massachusetts General Hospital Handbook of General Hospital Psychiatry (4/e7/e), Massachusetts General Hospital Comprehensive Clinical Psychiatry (1/e, 2/e), Massachusetts General Hospital Guide to Primary Care Psychiatry (1/e, 2/e), Massachusetts General Hospital Psychiatry Update and Board Preparation (1/e4/e), and Facing Cancer , Facing Heart Disease , Facing Diabetes , Facing Rheumatoid Arthritis, Facing Immunotherapy , Facing Transplantation , Facing Cystic Fibrosis , Facing Lupus , Facing Osteoporosis , Facing Scleroderma , Facing Eczema , Facing Psoriasis , Facing Vitiligo , Facing Postoperative Pain , and Facing Overweight and Obesity . He is also the Editor-in-Chief of Psychosomatics .

To people facing pelvic pain, their families,

our students, our colleagues, our mentors,

and our families...

EJBD & TAS

OUR THANKS

This book would not have come into being if not for members of the pelvic pain community who expressed their need for information and support navigating the experience of diagnosing, managing, and living with pelvic pain. They have been generous in including us in their day-to-day triumphs and struggles. Without the contributions and knowledge of so many dedicated people who have faced pelvic pain, their loved ones, and members of multidisciplinary care teams, this book would never have been completed.

We thank our contributors for their thoughtfulness and gifted writing as well as their tolerance of our deadlines and edits. We thank Melanie Morin, PT, PhD, for her review of Chapter 7. We also thank our teachers and mentors for imbuing in us a sense of responsibility to educate, to write with rigor, and, most importantly, to provide exceptional care to our patients. We would like to thank Sean Mackey, MD, PhD, from Stanford for permission to use the CHOIR body map, and Elsevier for allowing us to reproduce a number of Grays Anatomy images for the benefit of our readers.

At the Massachusetts General Hospital Psychiatry Academy, we thank Jane Pimental our managing director, Heather Giza our program manager, and administrative coordinator Alexandra D. Fowler for their assistance and support. At Falcone Creative Design, LLC, we thank Lynda Falcone for her thoughtful representation of our message. At Octal Productions, LLC, our thanks go to Dianne Russell for overseeing the production of this book with grace and style.

EJBD

TAS

Alexandra R. Adler, MD

Anesthesia and Pain Management,

Lowell General Hospital;

Lowell, MA

Charles Argoff, MD

Professor of Neurology,

Albany Medical Center;

Albany, NY

Antje M. Barreveld, MD

Assistant Professor of Anesthesiology,

Tufts University School of Medicine;

Medical Director, Pain Management Services,

Director of Education and Outreach, Substance Use Services,

Anesthesiologist, Commonwealth Anesthesia Associates,

Newton Wellesley Hospital;

Newton, MA

C. Andres Bedoya, PhD

Assistant Professor of Psychology,

Harvard Medical School;

Clinical Director, Behavioral Medicine Program,

Department of Psychiatry,

Massachusetts General Hospital;

Boston, MA

Annie Chen, MD

Resident in Urology,

Stony Brook Medical Center;

Stony Brook, NY

Peter Cole, MD

Associate Professor of Obstetrics and Gynecology,

Albany Medical College;

Chief, Division of Gynecology,

Albany Medical Center;

Albany, NY

Erin Crosby, MD

Associate Professor of Obstetrics and Gynecology,

Albany Medical College;

Residency Director, Obstetrics and Gynecology,

Albany Medical Center;

Albany, NY

Elise J.B. De, MD

Associate Professor of Surgery,

Harvard Medical School;

Staff Urologist,

Department of Urology and the Center for Pelvic Floor Disorders,

Massachusetts General Hospital;

Director of Urology Training for Female Pelvic Medicine and Reconstructive Surgery,