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Rose Weitz - Life with AIDS

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Rose Weitz presents a holistic picture of the experiences of people with HIV disease, using their own words and focusing on the issues that they consider important. Her information comes from in-depth interviews with women and men who have HIV disease - from those who are asymptomatic but infected to those who have full-blown AIDS - and from interviews with doctors who treat persons with HIV disease. Weitz describes how these people are affected by and respond to the changes in their bodies and their social relationships, from the time when they realize that they are at risk of infection to the time when death approaches. It covers such issues as how individuals obtain diagnoses, develop their initial ideas about what the future will bring, and come to terms with their impending deaths. To put this into a broader context, she also explores the moral status of illness in general and looks at why some illnesses, including HIV disease, have become especially stigmatized. The author explores how doctors are affected by and cope with the unique pressures of treating persons with HIV disease. The concluding chapter theorizes about how changes in the social construction, demographic distribution, and treatment of HIV disease are changing the lives of people with AIDS.Rose Weitz is a professor of sociology at Arizona State University and chair of the Sociologists AIDS Network.

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title Life With AIDS author Weitz Rose publisher Rutgers - photo 1

title:Life With AIDS
author:Weitz, Rose.
publisher:Rutgers University Press
isbn10 | asin:0813516307
print isbn13:9780813516301
ebook isbn13:9780585029276
language:English
subjectAIDS (Disease)--Psychological aspects, AIDS (Disease)--Social aspects.
publication date:1991
lcc:RC607.A26W45 1991eb
ddc:362.1/969792
subject:AIDS (Disease)--Psychological aspects, AIDS (Disease)--Social aspects.
Life with AIDS
Rose Weitz
Rutgers University Press
New Brunswick, New Jersey
Second paperback printing, 1992
Library of Congress Cataloging-in-Publication Data
Weitz, Rose, 1952
Life with AIDS / Rose Weitz.
p. cm.
Includes bibliographical references and index.
ISBN 0-8135-1629-3 (cloth) ISBN 0-8135-1630-7 (pbk.)
1. AIDS (Disease)--Psychological aspects. 2. AIDS (Disease)--Social aspects. I. Title.
RC607.A26W45 1991
362.1'969792-dc20Picture 2Picture 3Picture 490-36219
Picture 5Picture 6Picture 7Picture 8Picture 9Picture 10CIP
British Cataloging-in-Publication information available
Copyright 1991 by Rose Weitz
All Rights Reserved
Manufactured in the United States of America
For Lilly Weitz, my mother,
and the memory of Bernard Weitz, my father
Contents
Preface and Acknowledgments
ix
CHAPTER 1 Introduction
1
CHAPTER 2 The Social Construction of HIV Disease
10
CHAPTER 3 HIV Disease and the Moral Status of Illness
34
CHAPTER 4 Becoming a Person with HIV Disease
52
CHAPTER 5 HIV Disease and the Body
79
CHAPTER 6 HIV Disease and Social Relationships
102
CHAPTER 7 Making a Life with HIV Disease
128
CHAPTER 8 The Doctors' Perspectives
147
CHAPTER 9 The Future of HIV
165
APPENDIX 1 Personal Reflections on Researching HIV Disease
187
APPENDIX 2 Methodology
195
Notes
199
Index
219
Page ix
Preface and Acknowledgments
This book had its genesis one evening when I attended the annual meeting of our local chapter of the American Civil Liberties Union. The speaker that evening was attorney and professor Jane Aiken.Jane spoke of the discrimination and other troubles experienced by persons with AIDS and other stages of HIV disease and of her work protecting their civil rights.
As a medical sociologist, I had been following news of this illness for some time. Until that evening, however, I thought of it simply as a medical curiosity and not as something that had any unusual sociological or political ramifications. Jane's talk was riveting, and convinced me to learn more.
Shortly thereafter, Jane and I met for dinner, purely for social purposes (or at least so I thought). She told me that, contrary to my assumptions, almost no social scientists had yet begun researching HIV disease, and she urged me to do so. That remark was the start of this book. I am indebted to Jane for providing the impetus that began this project, assisting me whenever I had questions about the law and HIV, and letting me know at various crucial times that I was doing important work.
I would also like to thank the Arizona State Disease Control Research Commission and the College of Liberal Arts and Sciences of Arizona State University for their financial support of this project. In addition, the Department of Sociology of Arizona State University provided the day-to-day resources that made this work possible.
Portions of Chapter 4 appeared previously in "Uncertainty in
Page x
the Lives of Persons with AIDS, "Journal of Health and Social Behavior 30 (1989):270-281, and portions of Chapter 6 in "Living with the Stigma of AIDS," Qualitative Sociology 13 (1990):23-38 . Appendix 1 is a slightly revised version of "The Interview as Legacy: A Social Scientist Confronts AIDS," Hastings Center Report 17 (1987):21-23. I am grateful to the publishers for permission to reprint these materials.
I would also like to thank the Arizona AIDS Project, Phoenix Shanti Group, Tucson AIDS Project, Tucson Shanti Group, and the University Medical Center Infectious Disease Clinic for helping me to contact persons who have HIV disease. Without their assistance, this research would have been impossible.
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