Dana Mahr - De-Sequencing: Identity Work with Genes

Medicine, health care, and the wider social meaning and management of health are undergoing major changes. In part this reflects developments in science and technology, which enable new forms of diagnosis, treatment and delivery of health care. It also reflects changes in the locus of care and the social management of health. Locating technical developments in wider socio-economic and political processes, each book in the series discusses and critiques recent developments in health technologies in specific areas, drawing on a range of analyses provided by the social sciences. Some have a more theoretical focus, some a more applied focus but all draw on recent research by the authors. The series also looks toward the medium term in anticipating the likely configurations of health in advanced industrial society and does so comparatively, through exploring the globalization and internationalization of health.

More information about this series at http://www.palgrave.com/gp/series/14875

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Medicine, health care, and the wider social meanings and management of health are continually in the process of change. While the birth of the clinic heralded the process through which health and illness became increasingly subject to the surveillance of medicine, for example, surveillance has become more complex, sophisticated, and targetedas seen in the search for precision medicine and now precision public health. Both surveillance and health itself emerge as more provisional, uncertain, and risk-laden as a consequence, and we might also ask what now constitutes the clinic, how meaningful a concept of a clinic ultimately is, and where else might we now find (or not find) healthcare spaces and interventions.

Ongoing developments in science and technology are helping to enable and propel new forms of diagnosis, treatment, and the delivery of health care. In many contexts, these innovations both reflect and further contribute to changes in the locus of care and burden of responsibility for health. Genetics, informatics, imagingto name but a feware redefining collective and individual understandings of the body, health, and disease. At the same time, long established and even ostensibly mundane technologies and techniques can generate ripples in local discourse and practices as ideas about the nature and focus of healthcare shift in response to global debates about, for instance, One Health and Planetary Health.

The very technologies that (re)define health are also the means through which the individualisation of health care can occurthrough, for instance, digital health, diagnostic tests, and the commodification of restorative tissue. This individualisation of health is both culturally-derived and state-sponsored, as exemplified by the promotion of self-care. These shifts are simultaneously welcomed and contested by professionals, patients, and wider publics. Hence they at once signal and instantiate wider societal ambivalences and divisions

This Series explores these processes within and beyond the conventional domain of the clinic, and asks whether they amount to a qualitative shift in the social ordering and value of medicine and health. Locating technical use and developments in wider socio-economic and political processes, each book discusses and critiques the dynamics between health, technology, and society through a variety of specific cases, and drawing on a range of analyses provided by the social sciences.

The Series has already published more than twenty books that have explored many of these issues, drawing on novel, critical, and deeply informed research undertaken by their authors. In doing so, the books have shown how the boundaries between the three core dimensions that underpin the whole Serieshealth, technology, and societyare changing in fundamental ways.

In De-Sequencing, the editors and contributors focus on an area that has galvanised so much of the scholarship that the HTS series draws from and extends: genetics. This interdisciplinary collectionwhich draws together researchers from the social sciences and humanities across a range of countriesconsiders the movement of genetic information between a number of sites, both material and discursive. In doing so, it illustrates the complexities of, and transformations that can happen through, diverse forms of medi(atis)ation, and the ways in which personal identities shape and are shaped by responses to genetic information. Accordingly, De-Sequencing challenges any claim that persons are their genetic sequences, and vividly demonstrates the traffic between health, technologies, and societies.