Margaret Sleeboom-Faulkner - Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement

Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement — read online for free the complete book (whole text) full work

Below is the text of the book, divided by pages. System saving the place of the last page read, allows you to conveniently read the book "Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement" online for free, without having to search again every time where you left off. Put a bookmark, and you can go to the page where you finished reading at any time.

Light

Font size:

↓

↑

Georgia Tahoma Arial Verdana

Reset

Interval:

↓

↑

Bookmark:

Make

1234567...64

Human Genetic Biobanks in Asia

This volume investigates human genetic biobanking and its regulation in various Asian countries and areas, including Japan, Mainland China, Taiwan, Hong Kong, India and Indonesia. It sheds light on how cultural, socio-political and economic factors influence the set-up of bioethical regulation for human genetic biobanks and how bioethical sensitivities surrounding biobanks are handled.

Apart from placing discourses of trust in an international perspective, the comparative materials presented in this volume also put into perspective the concepts of genetic theft and exploitation, and genetic wealth and trust. This collection contains case studies of biobanking practices in societies with different needs and welfare levels, and provides insights into government strategies towards genetic resources by examining bioethics as practised at home.

Margaret Sleeboom-Faulkner is Reader in Anthropology at the University of Sussex.

Routledge Contemporary Asia Series

1. Taiwan and Post-Communist Europe
   Shopping for allies
   Czeslaw Tubilewicz
2. The Asia-Europe Meeting
   The theory and practice of interregionalism
   Alfredo C. Robles, Jr
3. Islamic Legitimacy in a Plural Asia
   Edited by Anthony Reid and Michael Gilsenan
4. Asian-European Relations
   Building blocks for global governance?
   Edited by Jrgen Rland, Gunter Schubert, Gnter Schucher and Cornelia Storz
5. Taiwans Environmental Struggle
   Toward a green silicon island
   Jack F. Williams and Chang-yi David Chang
6. Taiwans Relations with Mainland China
   A tail wagging two dogs
   Su Chi
7. The Politics of Civic Space in Asia
   Building urban communities Civic Space in Asia Edited by Amrita Daniere and Mike Douglass
8. Trade and Contemporary Society along the Silk Road
   An ethno-history of Ladakh
   Jacqueline Fewkes
9. Lessons from the Asian Financial Crisis
   Edited by Richard Carney
10. Kim Jong IIs Leadership of North Korea
    Jae-Cheon Lim
11. Education as a Political Tool in Asia
    Edited by Marie Lall and Edward Vickers
12. Human Genetic Biobanks in Asia
    Politics of trust and scientific advancement
    Edited by Margaret Sleeboom-Faulkner

Human Genetic Biobanks in Asia

Politics of trust and scientific advancement

Edited by
Margaret Sleeboom-Faulkner

First published 2009
by Routledge
2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN

Simultaneously published in the USA and Canada
by Routledge
270 Madison Ave, New York, NY 10016

Routledge is an imprint of the Taylor & Francis Group, an informa business

This edition published in the Taylor & Francis e-Library, 2008.

To purchase your own copy of this or any of Taylor & Francis or Routledges collection of thousands of eBooks please go to www.eBookstore.tandf.co.uk.

2009 Editorial selection and matter, Margaret Sleeboom-Faulkner; individual chapters, the contributors

All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers.

British Library Cataloguing in Publication Data
A catalogue record for this book is available from the British Library

Library of Congress Cataloging in Publication Data
Human genetic biobanks in Asia: politics of trust and scientific advancement/edited by Margaret Sleeboom-Faulkner.
p. ; cm.(Routledge contemporary Asia series; 12)
Includes bibliographical references.
1. Human gene librariesAsia. 2. BiobanksAsia. 3. Human geneticsGovernment policyAsia. I. Sleeboom-Faulkner, Margaret, 1961 II. Series.
[DNLM: 1. Biological Specimen BanksethicsAsia. 2. Biological Specimen Bankslegislation & jurisprudenceAsia. 3. Cultural CharacteristicsAsia. 4. Databases, Nucleic AcidethicsAsia. 5. Databases, Nucleic Acidlegislation & jurisprudenceAsia. 6. Socioeconomic FactorsAsia. QU 23 H918 2009]
QH442.4.H86 2009
174.957095dc22 2008027933

ISBN 0-203-88460-4 Master e-book ISBN

ISBN10: 0-7103-1341-1 (hbk)
ISBN10: 0-203-88460-4 (ebk)

ISBN13: 978-0-7103-1341-6 (hbk)
ISBN13: 978-0-203-88460-7 (ebk)

Illustrations

Tables

Changes in the titles of the Declaration of Helsinki

Attitudes about different consent forms

The respondents attitudes towards the right to know

Arguments for family consent

Arguments against family consent

Figures

The degree of self-reported understanding of genetic diseases

Genetic information should be kept as confidential data

Should one use donors genetic materials for other research projects without further consent?

The number of people who had previously heard of biobanking

Do you support having a DNA biobank in Hong Kong?

If Hong Kong were to carry out research related to DNA biobanking, would you be willing to donate your DNA?

If the DNA were to be owned jointly by the donors and the researcher, would you be willing to donate your DNA?

If there were some type of reward for donating DNA, would you be willing to donate your DNA?

During the process of the research, would you be willing to let the DNA sample that you donate be used by other agencies or educational institutions participating on a collaborative basis?

Do you agree with the statement that having genetic diseases is something of which to be ashamed?

Would you discuss genetic diseases with your friends?

If one of your family members had a genetic disease, would you actively find out its cause?

If your child had a genetic disease, would you feel responsible for it?

If a child has problem reading and writing, what do you think might be the reason for the problem?

Contributors

Ho, Connie Department of Psychology, University of Hong Kong, Hong Kong.

Kumar, Nandini K. Indian Council of Medical Research, New Delhi, India.

Liu, Hung-En Department of Law, National Taipei University, Taipei, Taiwan.

Masui, Tohru JCRB Cell Bank, Division of Bioresources, National Institute of Biomedical Innovation, Osaka, Japan.

Patra, Prasanna Kumar International Institute for Asian Studies (IIAS), Leiden, The Netherlands.

Porter, Gerard AHRC Research Centre for Studies in Intellectual Property and Technology Law, School of Law, University of Edinburgh, Edinburgh, United Kingdom.

Sleeboom-Faulkner, Margaret Department of Anthropology, University of Sussex, Brighton, United Kingdom.

Sung, Wen-Ching Department of Anthropology, University of Toronto, Toronto, Canada.

Tai, Terence Hua Department of Philosophy, National Chengchi University, Taipei, Taiwan.

Waye, Mary Miu Yee Department of Biochemistry, Croucher Foundation of Human Genomics, Chinese University of Hong Kong, Hong Kong.

Zhang, Xinqing Center for Bioethics, Peking Union Medical College, Beijing, Peoples Republic of China.

Acknowledgements

This collection of case studies is the result of collaborative efforts of an international group of scientists and thinkers studying the impact of biobanking and the establishment of genetic databases on society. They have exerted great efforts, both linguistically and in the area of theorising the socio-economic and cultural dimensions of biobanking.

Next page

1234567...64

Light

Font size:

↓

↑

Georgia Tahoma Arial Verdana

Reset

Interval:

↓

↑

Bookmark:

Make

Similar books «Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement»

Look at similar books to Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement. We have selected literature similar in name and meaning in the hope of providing readers with more options to find new, interesting, not yet read works.

Margaret Sleeboom-Faulkner

Genomics In Asia

Jada Benn Torres

Genetic Ancestry: Our Stories, Our Pasts

Robin Bunton

The New Genetics and the Publics Health

James Wolfe

Genetic Testing and Gene Therapy

Matthew Cobb

As Gods: A Moral History of the Genetic Age

Benjamin Gregg

Creating Human Nature: The Political Challenges of Genetic Engineering

Sarah Boslaugh

Genetic Testing

Franco Joseph Vizeacoumar

Mapping Genetic Interactions

Tabish Qidwai

Exploration of Host Genetic Factors associated with Malaria

Seedhouse

Beyond Human: Engineering Our Future Evolution

Gyan Prakash (editor)

Advances in Vision Research Volume II: Genetic Eye Research in Asia and the Pacific: 1

National Research Council (U.S.). Committee on Human Genome

Evaluating human genetic diversity

Discussion, reviews of the book Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement and just readers' own opinions. Leave your comments, write what you think about the work, its meaning or the main characters. Specify what exactly you liked and what you didn't like, and why you think so.