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Caralise Trayes - The Final Choice: End of Life Suffering: Is Assisted Dying the Answer?

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A Kiwi journalist on the hunt for the truth about assisted dying and the End of Life Choice Act. Join her on a journey of discovery as she tells the stories of those with terminal illness and interviews lawyers, doctors, ethicists and clerics around New Zealand and the world.

The decision about whether or not to legalise euthanasia is the single most important values decision of the 21st century. - Professor Margaret Somerville

It runs against every benefit of the law that protects human life that we have had in our country since the legal system was established. - Grant Illingworth QC

We are offering sanctuary and serenity, and a safe harbour where people can peacefully make their own choice. Opponents will do and say just about anything to undermine it. - David Seymour MP

I am the doctor potentially injecting this lethal drug. I have to be for, or against. I cant abstain from this. - Dr Sinad Donnelly

Written in a remarkably personable way while plunging into some of lifes most challenging topics, Caralise separates fact from fallacy, and resurfaces with intriguing results. Includes interviews from David Seymour MP, Shirley Seales (mother of the late Lecretia Seales), and Mary Panko of the End-of-Life Choice Society, as well as influencer and disabilities advocate Claire Freeman, palliative care expert Professor Roderick MacLeod MNZM and Disability Rights Commissioner Paula Tesoreiro MNZM among many others.

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Caralise Trayes
The Final Choice: End of Life Suffering: Is Assisted Dying the Answer?

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The decision about whether or not to legalise euthanasia is the single most - photo 1
The decision about whether or not to legalise euthanasia is the single most - photo 2
The decision about whether or not to legalise euthanasia is the single most important values decision of the 21st century.
Professor Margaret Somerville
Picture 3
We are offering sanctuary and serenity, and a safe harbour where people can peacefully make their own choice. Opponents will do and say just about anything to undermine it.
David Seymour MP
Picture 4
It runs against every benefit of the law that protects human life that we have had in our country since the legal system was established.
Grant Illingworth QC
The Final Choice End of Life Suffering Is Assisted Dying the Answer - image 5
I am the doctor potentially injecting this lethal drug. I have to be for, or against. I cant abstain from this.
Dr Sinad Donnelly
The Final Choice End of Life Suffering Is Assisted Dying the Answer - image 6
Copyright 2020 Caralise Trayes
Capture & Tell Media
Email: contact@captureandtell.nz
www.captureandtell.nz
All rights reserved. No part of this publication may be reproduced, distributed, or transmitted in any form or by any means, including photocopying, recording, or other electronic or mechanical methods without the prior written permission of the publisher, except with brief quotations embodied in reviews and certain other non-commercial uses permitted by copyright law.
Front cover photography: Kevin Carden
Back cover photography: Twigs & Sticks Media
Proofreading: Mary Dobbyn
Typesetting and layout: Janet Curle
National Library of New Zealand (Te Puna Matauranga o Aotearoa)
Title: The Final Choice. End of Life Suffering: Is Assisted Dying the Answer?
ISBN: 978-0-473-52451-7 (pbk)
ISBN: 978-0-473-52452-4 (epub)
Subjects: Euthanasia, Assisted Dying, Medical / Nursing / Palliative Care, Social Science: Death & Dying, Family & Relationships: Death, Grief & Bereavement, Life Stages / Later Years, Medical / Nursing / Social, Ethical & Legal Issues, New Zealand Non-Fiction
First printing 2020 New Zealand
International listing 2020 www.ingramspark.com
Contents
Personal Accounts:
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Preface
M y mum said something profound to me the other day. She told me Im part of a generation that for the first time in history has seen a global, unified response to an invisible threat.
Never in the history of humanity have more than 180 nations across the world closed their borders and put their nations into a coma to stem a pandemic like COVID-19. Its an unprecedented move of solidarity that will forever be marked in the books of mankind. A commonality that has spanned cultures, continents and civics like only a few other things in life can.
Its forced people on the front lines of the medical field to make impossible decisions over which lives are worth saving, and compelled nations to put the economy in second place to the health of its citizens. For many its brought us face to face with the uncomfortable reality of death. Yet in the midst of isolation it has also forced us to consider how we live life.
Its a strange time then to be faced with another life-and-death dilemma when, during the same year, we will be confronted with a vote on an assisted dying law change in our elections in New Zealand.
Yet here we are.
Its an ever-stranger turn of events for me to be sitting in my converted home office interviewing people in their homes from across New Zealand, and the world, for this book that was only an idea a few months ago.
As with the start of any good adventure, it was a curiosity that sparked the search. And good friends.
I got a call to do a freelance writing job for a friend and as part of the task, I attended a meeting where assisted dying was discussed. In retrospect, I can see I was naive in my agreement to tag along thinking it would be an easy way to earn a bit of money for our nappy funds. As a mum of two young children, even an outing that included talking about the legality of dying was a holiday.
The job finished, but it was then that something else began: I discovered the enormity and seriousness of the End of Life Choice Act us Kiwis will be voting on.
Like many of us, I thought the approaching vote was a simple yes or no tick box question around whether we would allow people the right to choose how and when they want to die. Even the fact that I knew there was a binding referendum has apparently put me ahead of a huge number of New Zealanders who dont know its due to be connected with the elections in 2020.
But following that meeting, and as I began reading, I found myself with more questions than answers. What actually is assisted dying? Who wants to use it? Will it bring relief to people suffering, and if so, why is there resistance to it? Why are doctors and lawyers, ethicists and disabled people hitting headlines for and against it? And why are we voting about it in a binding referendum?
I also found high-ranking voices making claims that this is, The biggest decision our generation will face, and that, This law could change the fabric of society. Was this just scaremongering?
Its probably because of the journalistic sense of seeking out answers which is wired into my being after ten years in the field that makes it irresistible for me to follow a lead. Every time I hear sirens and see a fire engine my heart rate increases and my palms get sweaty. There were plenty of emergencies I chased down for newspaper headlines in my years reporting for Fairfax Media outlets, and my instincts still kick in.
So when an idea of following my questions and writing a book full of answers arose, it was hard to resist. If I have questions that need answering before I can in good conscience put my pen to a vote, then most other New Zealanders will too.
One thing I learnt while working in the communitypeople are the best resource, provide the greatest interest, and hold the most value. So its people I pursue to pose questions to in the pages ahead.
Ive chosen who to interview by sifting through the Justice Select Committee submissions received when the End of Life Choice Act was before Parliament. These are people who have enough vested interest to lodge their comment. Many have spoken out publicly in the media before.
From among them are specialists and ethicists, those who are terminally ill and positively well, passionate advocates and their opposites. Some are found within the fabric of our nation, and others carry experience from their own jurisdictions internationally.
What I discovered early on was that the common voice in favour of the law change was endearingly simplistic. So in many cases I presented this case before those in opposition.
Initially I assumed this issue would provoke some religious reaction around sanctity of life and playing God, but while interviewing I found religion often did not determine which side someone sat on. In fact, it was seldom relevant to anyones reasoning. As one ethicist said, This is not a religious issue, but a societal issue.
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