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Martin J. Schreiber - My Two Elaines: Learning, Coping, and Surviving as an Alzheimers Caregiver

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Martin J. Schreiber My Two Elaines: Learning, Coping, and Surviving as an Alzheimers Caregiver

My Two Elaines: Learning, Coping, and Surviving as an Alzheimers Caregiver: summary, description and annotation

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In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and cant remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children.

One part love story, one part practical advice, this compelling book includes several unique elements:

  • Excerpts from Elaines journal, recounting her thoughts, concerns, and frustrations as the disease progresses
  • A recurring feature called What I Wish Id Known, which provides helpful takeaways for caregivers based on Martys observations about what he wishes hed known sooner and done differently
  • A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs
  • Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this diseasespouse, child, friend, or family member.

    Martin J. Schreiber: author's other books


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    Praise for My Two Elaines and Marty Schreiber

    Best Caregiver Books

    Caring.com

    100 Best Alzheimers Books of All Time

    BookAuthority

    #2 Senior Social Media Influencers You Should Follow, 2018

    Lively

    Headliner Award, 2019

    Milwaukee Press Club

    Caregiver of the Week, August 2017

    The Womens Alzheimers Movement

    Special Service Award, 2016

    Alzheimers Association

    City of Milwaukee Superhero, 2016

    Milwaukee Press Club

    If you or someone you know is a caregiver, this is a must-read. Your loved one really does become a different person. As I learned from my moms dementia, learning how to deal with her was key to everyones sanity. There are many helpful hints here.

    B ONNIE B LAIR , five-time Olympic gold medalist

    At one moment this book is a heart-wrenching account of the devastating toll of Alzheimers, and the next moment it is a heart-wrenching love story. The minute you are holding your breath at the brutality of the disease, Marty rescues you with a concrete, doable message that can lead to lovely moments of joy. No health-care professional, family member, or caregiver should be without it.

    D AWN A DLER , director, Ovation Adult Day Services, Milwaukee, Wisconsin, coauthor of Illuminate: An Integrated Curriculum for Early Memory Loss Programs

    Marty shares his personal story with dignity and grace. My Two Elaines helps the caregiver realize you must take care of yourself, have a sense of humor, and take advantage of help to survive the stressful days ahead. It is a great resource for families.

    L INDA C ODY , director, Village Walk Senior Living, Patchogue, New York

    Your book is now at the top of my listwritten from the heart, reinforcing yet honest.

    S USAN M. G ROSS , education and family care specialist, Alzheimers Association North Central Texas Chapter

    This wonderful book gives a personal perspective of a couples journey with Alzheimers disease as they reach out for help and support. The personal sharing, the compelling development of Marty, and his insights as a caregiver all provide for an important message.

    M ICHAEL M ALONE , MD, medical director, Aurora Senior Services chair; Public Policy Committee, American Geriatrics Society

    Marty has truly captured the essence of loving and caring for somebody with this disease. His book is insightful, thoughtful, heart-warming, and respectful. Martys sense of humor and abundant patience surely are a blessing for Elaine.

    S COTT M C F ADDEN , president and CEO, Lutheran Home and Harwood Place, Milwaukee, Wisconsin

    To be complete, stories about Alzheimers disease and caregiving must touch on both defeats and triumphs. In My Two Elaines, Governor Schreiber stirs the hearts of readers both with great suffering and great love inherent to the caregiving journey, lightening the load with humor. He introduces us not only to the woman he married and the person she became after Alzheimers but also to the extraordinary individual who loves them both: her Marty.

    D ANIEL C. P OTTS , MD, FAAN, attending neurologist, Tuscaloosa VA Medical Center, Alabama; founder and president, Cognitive Dynamics Foundation

    With poignant clarity and candor, Schreiber provides readers with insight into the often incomprehensible world of a person living with Alzheimers disease as well as the many challenges faced by family caregivers. My Two Elaines is easily integrated into health-care curriculum, sparking rich discussions related to dementia, caregiving, anticipatory grief, advance care planning, and community support services. Feedback has been overwhelmingly positive, with many learners expressing gratitude for the opportunity to gain a deeper understanding of the family caregiver experience.

    D R . S TACY B ARNES , director, Wisconsin Geriatric Education Center, Marquette University

    My Two Elaines demonstrates beautifully that the journey is not just for the person with the diagnosis but for the spouse and family as well, and that it is a journey to not attempt alone and unsupported. [Martys] discussions will no doubt help those who may be afraid to admit they dont have it all under control. I highly recommend this book. It is a quick read that provides a lot of great advice that will decrease the learning curve immensely.

    T ARA R EED , author of What to Do Between the Tears: A Practical Guide to Dealing with a Dementia or Alzheimers Diagnosis in the Family

    Marty Schreiber has written a book that is invaluable to the Alzheimers community. His personal experience (and wisdom gained) as a caregiver is shared in such an honest and impactful way that it should be mandatory reading for all individuals who step forward in this capacity.

    D AVID S IMBRO , senior vice president, Northwestern Mutual; former member, Alzheimers Association Board of Directors

    My Two Elaines provides real-life lessons about how to cope and survive each day with loving care, particularly when communication is lost. Marty helps caregivers work through their guilt and sheds light on making difficult decisions when professional care is needed for a loved one. Most of all, Marty brings us an amazing story of love, understanding, and hope. It is one of the most moving and powerful stories Ive read.

    J ULIE T OMBARI , administrator, New Day Adult Care Center, North Palm Beach, Florida

    I encourage my fellow health-care professionals to read and share this book.

    J UDY B EILER , RN, director, Global and Executive Health Program, Aurora Health Care

    I only wish my father had this book to help him during my own mothers illness.

    P AULA K IELY , city librarian, Milwaukee Public Library

    This book is a narrative tool to help increase peoples understanding of Alzheimers disease and related dementias (ADRDs) and the caregiver experience.... There are few narratives from the male caregiving perspective, and this resource provides a unique opportunity to learn about their challenges.... In addition, the book can be used in training programs for direct care workers to increase knowledge and understanding levels on these topics.

    C OLLEEN G ALAMBOS , PhD, ACSW, LCSW-C, FGSA, Helen Bader Chair in Applied Gerontology and Professor, University of WisconsinMilwaukee

    My Two Elaines

    Copyright 2022 by Martin Schreiber

    All rights reserved. No part of this book may be reproduced, stored in a retrieval system, or transmitted in any form or by any meanselectronic, mechanical, photocopy, recording, or otherexcept for brief quotations in critical reviews or articles, without the prior written permission of the publisher.

    Published by Harper Horizon, an imprint of HarperCollins Focus LLC.

    Any internet addresses, phone numbers, or company or product information printed in this book are offered as a resource and are not intended in any way to be or to imply an endorsement by Harper Horizon, nor does Harper Horizon vouch for the existence, content, or services of these sites, phone numbers, companies, or products beyond the life of this book.

    The information in this book has been carefully researched by the authors and is intended to be a source of information only. Readers are urged to consult with their physicians or other professional advisors to address specific medical or other issues. The author and the publisher assume no responsibility for any injuries suffered or damages incurred during or as a result of the use or application of the information contained herein.

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