Deborah Dooler - The Book On Home Hospice: Living and Dying in Comfort With Dignity

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THE BOOK ON HOME HOSPICE:

LIVING AND DYING IN COMFORT WITH DIGNITY

Copyright 2017 DEBORAH DOOLER

ISBN-13: 978-1979369954
eISBN: 978-1772772029

ISBN-10: 197936995X

All rights reserved. No portion of this book may be reproduced mechanically, electronically, or by any other means, including photocopying, without permission of the publisher or author except in the case of brief quotations embodied in critical articles and reviews. It is illegal to copy this book, post it to a website, or distribute it by any other means without permission from the publisher or author.

Limits of Liability and Disclaimer of Warranty

The author and publisher shall not be liable for your misuse of the enclosed material. This book is strictly for informational and educational purposes only.

Warning - Disclaimer

The purpose of this book is to educate and entertain. The author and/or publisher do not guarantee that anyone following these techniques, suggestions, tips, ideas, or strategies will become successful. The author and/or publisher shall have neither liability nor responsibility to anyone with respect to any loss or damage caused, or alleged to be caused, directly or indirectly by the information contained in this book.

Medical Disclaimer

The medical or health information in this book is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education, does not create any patient-physician relationship, and should not be used as a substitute for professional diagnosis and treatment.

Publisher

10-10-10 Publishing

Markham, ON

Canada

Dedication

I dedicate this book to my cousin, Maxine Gopsill Small, who died from cancer way too young. She faced every day with courage and laughter. She was the strongest person I have ever known. She has been an inspiration to me and is loved and missed by many.

I also dedicate this book to you, the reader, and to all the people you hold near and dear. You are the true star of this book, whether a recipient of care, a caregiver, or healthcare angel. You are the everyday heroes who make this world a better, more compassionate place to be. My wish is that your journey be filled with love, light, comfort, and dignity.

Preface

I consider myself to be an old-fashioned country doctor in many ways. I come to your home with my black medical bag, I sit at your bedside, and I hold your hand and offer comfort and support in your last months, days, and hours. I laugh with you, and I cry with you, but most of all, I listen. I look into your eyes and ask how you are feeling today, and what it is that is most important to you. I want to know about your wishes and your hopes and dreams for the future. I am only a small part of the home hospice team; we are all here to support and offer hope to those who are dying, and to their families.

I see you at your best and at your worst. You dont need to get dressed for me. I will see you where you are, whether that is at the kitchen table or in bed. You are the star of the show; it is your life and your journey. I have written this book to offer you some valuable information, and share my experiences of caring for people at the end of life in their home.

It is a true privilege to be welcomed into your home. I feel truly blessed to be able to do what I am passionate about and love: to provide comfort to those in need.

My hope is that you will read this book and feel empowered to ask for and, if need be, demand that you receive home hospice care in your area. I cannot be there personally for everyone, but it is my belief that we all deserve to have access to quality home hospice care.

I send much love and blessings to you, the reader.

Dr. Deborah Dooler
Palliative Care Specialist
Award Winning Author

Foreword

The Book on Home Hospice: Living and Dying in Comfort with Dignity by Dr. Deborah Dooler is written to help you understand what it means to be diagnosed with a terminal illness. It offers practical suggestions to help you or your loved ones to manage care in your own home.

This book is an excellent resource, whether you or a loved one has been diagnosed with cancer, COPD, heart failure, ALS or any other life-limiting illness. At this difficult time in your life, The Book on Home Hospice: Living and Dying in Comfort with Dignity offers you valuable information on coping with a terminal illness, including managing the physical, psychological and spiritual challenges that you or your loved ones may be struggling with. It also offers you insights into the complexities and great rewards of home hospice care. You will find the book to be the most comprehensive resource on end-of-life care in the home. It can be used as a manual and journal on your journey.

Dr. Deborah Dooler is the authority on home hospice care, and she brings her vast knowledge and experience to you. Her passion for helping you to cope with trauma and loss is evident in every chapter of the book. Her book deals with death and dying in a compassionate and straightforward manner. Having met Dr. Dooler in person, I know her to be a tireless advocate for providing compassionate palliative care in the comfort of your own home.

This book contains a great deal of wisdom, and I highly recommend you read it. I found it to be an inspiration, and I am sure you will too.

Raymond Aaron

New York Times Bestselling Author

Acknowledgements

Thank you to my husband, John Dooler, for your unconditional love and unfailing support for everything I do. Thank you for all the hours you have spent proof reading this book; you have made it so much better than I ever dreamed it would be. I love you. You are my true soulmate.

Thank you to my children, Rick, Amy, and Johnathon Dooler. Having you in my life has been my one true success. I am so proud of the beautiful, loving, successful people you have become. I love you with all my heart.

I would like to offer a special thank you to my parents, Kathy Nock and John Nock. Without you, I would not be the person I am today.

I wish to say thank you to Joan Clover and Alan (Bunny) Clover for always supporting me and cheering me on. Your kind and caring nature has been an inspiration to me.

I would like to say an enormous thank you to my colleagues and friends on the South Niagara Palliative Care Team (aka Southern Comfort):

Sue Battersby-Campbell, NP - You are a force to be reckoned with, and I could not do it without you. You are a true expert in the field of palliative care.

Susan DeCicco - I am blessed to have you in my life. Your compassion and willingness to go above and beyond to help people is truly inspirational.

Petrusia Mulholland - You make my life so much easier. You are an amazing woman, and I am glad you are on my team.

Clarence Braun - Clare, you have been with me from day one. You carried me when I couldnt walk, and you heal my soul on a daily basis. Thank you for all you do.

Sandra Deaves - I am in awe of your compassion and resilience. Your work with children and their families has made you a perfect addition to our team.

Joanna Mataya -

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