Griskewicz Mary P. - Participatory healthcare: a person-centered approach to healthcare transformation

Participatory Healthcare

A Person-Centered Approach to Healthcare Transformation

Participatory Healthcare

A Person-Centered Approach to Healthcare Transformation

Editor, Jan Oldenburg

Associate Editor, Mary P. Griskewicz

Foreword by Dr. Paul Kleeberg Afterword by Dr. Danny Sands

CRC Press

Taylor & Francis Group

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Boca Raton, FL 33487-2742

2017 by HIMSS

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Printed on acid-free paper

Version Date: 20160426

International Standard Book Number-13: 978-1-4987-6962-4 (Paperback)

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Library of Congress Cataloging-in-Publication Data

Names: Oldenburg, Jan, editor. | Griskewicz, Mary P., editor.

Title: Participatory healthcare : a person-centered approach to healthcare transformation / editor, Jan Oldenburg and associate editor, Mary P. Griskewicz

Description: Boca Raton : Taylor & Francis, 2016. | Includes bibliographical references and index.

Identifiers: LCCN 2016003446 | ISBN 9781498769624 (hardcover : alk. paper)

Subjects: | MESH: Patient Participation | Delivery of Health Care--methods | Professional-Patient Relations | Medical Informatics | Anecdotes

Classification: LCC R727.3 | NLM W 85 | DDC 610.69/6--dc23

LC record available at https://lccn.loc.gov/2016003446

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Contents

JAN OLDENBURG, FHIMSS

JANE SARASOHN-KAHN, MA, MHSA

CATHERINE D. SERIO, MS, PhD, AND SUSAN W. BUTTERWORTH, MS, PhD

JAN OLDENBURG, FHIMSS

JAN OLDENBURG, FHIMSS

MARY P. GRISKEWICZ, MS, FHIMSS

MARYANNE STERLING, CEA

JOHN SHARP, MA, MSSA, PMP, FHIMSS

JAN OLDENBURG, FHIMSS

JAN OLDENBURG, FHIMSS WITH KELLY

JAN OLDENBURG, FHIMSS WITH CATHERINE ROSE, MBA, PhD

JAN OLDENBURG, FHIMSS WITH BRITTANY DRAPER

JAN OLDENBURG, FHIMSS WITH HUGO CAMPOS

MARY P. GRISKEWICZ, MS, FHIMSS

JAN OLDENBURG, FHIMSS WITH KAY

JAN OLDENBURG, FHIMSS WITH ELIZABETH, JD

STASIA KAHN, MD

ANNA-LISA SILVESTRE, MPH

JAN OLDENBURG, FHIMSS WITH KEVIN FOWLER

JAN OLDENBURG, FHIMSS WITH PAUL, MD

MARY P. GRISKEWICZ, MS, FHIMSS WITH ROBERTA, MS, CISSP

JAN OLDENBURG, FHIMSS WITH SUSAN

JAN OLDENBURG, FHIMSS AND MARY P. GRISKEWICZ, MS, FHIMSS WITH NANCY

JAN OLDENBURG, FHIMSS WITH AMANDA

JAN OLDENBURG, FHIMSS WITH DANA M. LEWIS

JAN OLDENBURG, FHIMSS WITH SUSAN, MBA

JAN OLDENBURG, FHIMSS WITH KAIT B. ROE

JAN OLDENBURG, FHIMSS WITH JOAN

JAN OLDENBURG, FHIMSS WITH JANIE

JAN OLDENBURG, FHIMSS WITH BETH, MEd, MBA

RACHEL KATZ

JAN OLDENBURG, FHIMSS WITH DON

JAN OLDENBURG, FHIMSS WITH JON, MA

JAN OLDENBURG, FHIMSS WITH KATIE McCURDY, MSI

JAN OLDENBURG, FHIMSS WITH JESSICA JACOBS, MHSA, CPHIMS

JAN OLDENBURG, FHIMSS WITH PAULA, MA, SPECIAL EDUCATION WITH ENDORSEMENT IN VISUAL IMPAIRMENT

Only advanced degrees are listed

You hold in your hands a book that contains the keys to transforming our healthcare system from one in which patients are receivers of care to one in which they are collaborators in care.

We are in an interesting transitional time. Historically, physicians were the holders of knowledge and truth. Physicians from Hippocrates to those in the midtwentieth century were expected to make decisions for patients, and patients were expected to do the things that were ordered. Toward the latter part of the twentieth century into the twenty-first century, a proliferation of information available to everyone is shifting this balance of power. The Gutenberg printing press revolutionized science and religion in the fifteenth and sixteenth centuries by giving everyone access to primary sources and enabling others to let their works and voices be heard. The Internet and social technologies have made this access several orders of magnitude easier. No longer do we have to go to the library and search bound texts or research articles to learn about health and disease. Today, detailed and timely health information is keystrokes away and many resources are written in easy-to-understand language from reliable sources. Now that we have access to this information, we are able to become better educated and ask more intelligent questions of physicians and caregivers. This allows us to play a greater role in decisions affecting our health. Since we are now in a better position to be able to manage our own health and be active participants in the decision-making process, the old medical paradigm needs to change.

Jan Oldenburg, the principal editor/author of this book, has had a lifelong experience with the healthcare system; her brother and sister had significant health issues growing up and their healthcare struggles were the stuff of family folklore. Later, her experience as a patient, parent, and partner to a patient helped her to see firsthand the benefits of patient engagement. This experience has driven her to work inside the healthcare system to incorporate technology, behavior, culture change, and system redesign in care delivery. It has made her passionate about advocating for a system that is person centered, one that is designed from the perspective of patients and caregivers.

Her first book, Engage! Transforming Healthcare through Digital Patient Engagement