Peter Beresford - Social Care, Service Users and User Involvement

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Social Care, Service Users and User Involvement

Edited by Peter Beresford and Sarah Carr

Foreword by Simon Denegri

Research Highlights 55

Jessica Kingsley Publishers

London and Philadelphia

Research Highlights in Social Work 55

Editors: Peter Beresford and Sarah Carr

Secretary: Elaine Webster

Editorial Advisory Committee

Professor Andrew Kendrick Editorial Director, University of Strathclyde

Joy Barlow MBE Scottish Training on Drugs and Alcohol (STRADA), University of Glasgow

Stewart Black Edinburgh

Professor Iain Broom Centre for Obesity Research and Epidemiology (CORE), Robert Gordon University

Susan Hunter University of Edinburgh

Stephen Jones Jessica Kingsley Publishers

Professor Gill McIvor (Criminology) Stirling University

Alison Petch Institute for Research and Innovation in Social Services (IRISS)

Dr Kate Skinner IRISS

Professor Julie Taylor University of Dundee

Gordon Watt Childrens Hearing Branch

Heather Wilkinson University of Edinburgh

Robert Gordon University

School of Applied Social Studies

Faculty of Health and Social Care

Garthdee Road Aberdeen AB10 7QG

The SCIE has kindly given permission for the quotes in Chapter 2.

Figure 10.1 on p.182 from Barnes, Mercer and Morgan (2001) has been reprinted with permission from Disability Press.

Table 10.1 on p.185 from Barnes, Mercer and Morgan, (2000) has been reprinted with permission from Disability Press.

Table 10.2 on p.186 from Morgan, Barnes and Mercer, (2001) has been reprinted with permission from Disability Press.

Crown Copyright material is reproduced with the permission of the Controller of HMSO and the Queens Printer for Scotland.

Figure 13.2 on p.232 has been reproduced with kind permission from Shaw, C., Brady, L.M., and Davey, C. of the National Childrens Bureau.

First published in 2012

by Jessica Kingsley Publishers

116 Pentonville Road

London N1 9JB, UK

and

400 Market Street, Suite 400

Philadelphia, PA 19106, USA

www.jkp.com

Copyright Jessica Kingsley Publishers 2012

Foreword copyright Simon Denegri 2012

All rights reserved. No part of this publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, Saffron House, 610 Kirby Street, London EC1N 8TS. Applications for the copyright owners written permission to reproduce any part of this publication should be addressed to the publisher.

Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution.

Library of Congress Cataloging in Publication Data

Social care, service users and user involvement / edited by Peter Beresford and Sarah Carr ; foreword by

Simon Denegri.

p. cm. -- (Research highlights ; 55)

Includes bibliographical references and index.

ISBN 978-1-84905-075-3 (alk. paper)

1. Social service--Great Britain. I. Beresford, Peter. II. Carr, Sarah, 1971-

HV245.S6143 2012

361.941--dc23

2012029186

British Library Cataloguing in Publication Data

A CIP catalogue record for this book is available from the British Library

ISBN 978 1 84905 075 3

eISBN 978 0 85700 264 8

Converted to eBook by EasyEPUB

Peter: Dedicated to the memory of my friend, Chris Harrison, fellow member of the Coordinating Group of Survivors Speak Out, psychiatric system survivor and blind person and pioneer of both the disabled peoples and the survivor movement. He understood and was an expression of the best of both of them.

Sarah: Dedicated to the life, work and memory of Nasa Begum 19632011. Sister, struggler, survivor. Inspiration and friend.

Peter and Sarah both wish a warm welcome to the books production babies and congratulations to Angela Sweeny, Louca-Mai Brady, Kath Browne and Helen Bowers.

Foreword

Simon Denegri

Where does public participation and user involvement in social care stand today?

On the one hand, the breaking waves of national and local consultations and initiatives with their crowns of participatory language, give the impression that public participation and user involvement is now part of mainstream thinking and activity. On the other, the ebb and flow of this tide can seem to do little more than leave the participation and involvement agenda obscured if not stranded in ever deeper and murkier pools of stagnated policy and policy-making.

We hear both views expressed equally forcefully. Indeed, in the current climate of reform, restructure and unsettling austerity, we can forgive ourselves for oscillating between these opinions in our own minds, sometimes on the same day.

Yet, given the opportunity to pause and sit a moment, and if I look back over my own ladder of involvement beginning at the Alzheimers Society in the nineties as people with dementia found their voice and challenged the prevailing consensus about their needs as defined by others, to the world I inhabit now as Chair of INVOLVE and NIHR National Director for Public Participation and Engagement in Research I would argue strongly that the shoreline of social care has changed because of public participation and user involvement.

But with progress comes new challenges to add to existing ones. Alongside the all too familiar institutional and cultural barriers, the need for practical tools fit for our time, as well as our own search for definition, identity and confidence, we must add that thing called impact. Or rather proof of impact; driven as much by our own desire for improvement and learning as it is by the need for providers, commissioners and policy-makers to justify their actions. It requires reflection rather than reaction. It must be built on evidence rather than simple opinion such as mine expressed above.

Who better to provide us with the means and the opportunity to reflect in this way, to present such evidence as well as contextualise it, than Peter Beresford and Sarah Carr? Two of the countrys leading and most respected voices and practitioners in user involvement as well as much-admired colleagues.

In the latest Research Highlights series, looking at Social Care, Service Users and User Involvement, Peter and Sarah have thoughtfully collated and deftly introduce this collection of research-based contributions by experts in their field. The common theme that binds them together is their examination of the impact of user involvement as well as the difference that can be made by service users in its research and evaluation.

It is a timely and important book. These are unique and absorbing perspectives. They will provoke new thought and further debate. For the practically minded, each presents fresh and actionable insights and new learning in an area which is challenging and exacting. All of the contributions could stand alone on their own merits.

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