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E. Fuller Torrey - American Psychosis: How the Federal Government Destroyed the Mental Illness Treatment System

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In 1963, President John F. Kennedy delivered an historic speech on mental illness and retardation. He described sweeping new programs to replace the shabby treatment of the many millions of the mentally disabled in custodial institutions with treatment in community mental health centers. This movement, later referred to as deinstitutionalization, continues to impact mental health care. Though he never publicly acknowledged it, the program was a tribute to Kennedys sister Rosemary, who was born mildly retarded and developed a schizophrenia-like illness. Terrified shed become pregnant, Joseph Kennedy arranged for his daughter to receive a lobotomy, which was a disaster and left her severely retarded.
Fifty years after Kennedys speech, E. Fuller Torreys book provides an inside perspective on the birth of the federal mental health program. On staff at the National Institute of Mental Health when the program was being developed and implemented, Torrey draws on his own first-hand account of the creation and launch of the program, extensive research, one-on-one interviews with people involved, and recently unearthed audiotapes of interviews with major figures involved in the legislation. As such, this book provides historical material previously unavailable to the public. Torrey examines the Kennedys involvement in the policy, the role of major players, the responsibility of the state versus the federal government in caring for the mentally ill, the political maneuverings required to pass the legislation, and how closing institutions resulted not in better care - as was the aim - but in underfunded programs, neglect, and higher rates of community violence. Many now wonder why public mental illness services are so ineffective. At least one-third of the homeless are seriously mentally ill, jails and prisons are grossly overcrowded, largely because the seriously mentally ill constitute 20 percent of prisoners, and public facilities are overrun by untreated individuals. As Torrey argues, it is imperative to understand how we got here in order to move forward towards providing better care for the most vulnerable.

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American Psychosis

American Psychosis

How the Federal Government Destroyed
the Mental Illness Treatment System

E. Fuller Torrey, MD

American Psychosis How the Federal Government Destroyed the Mental Illness Treatment System - image 1

American Psychosis How the Federal Government Destroyed the Mental Illness Treatment System - image 2

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Published in the United States of America by
Oxford University Press
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E. Fuller Torrey 2014

All rights reserved. No part of this publication may be reproduced, stored in a
retrieval system, or transmitted, in any form or by any means, without the prior
permission in writing of Oxford University Press, or as expressly permitted by law,
by license, or under terms agreed with the appropriate reproduction rights organization.
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and you must impose this same condition on any acquirer.

Library of Congress Cataloging-in-Publication Data

Torrey, E. Fuller (Edwin Fuller), 1937
American psychosis : how the federal government destroyed the mental illness treatment system /
E. Fuller Torrey, MD.

pages cm
Includes bibliographical references and index.

ISBN 9780199988716
1. Mentally illCareUnited StatesHistory. 2. Mentally illServices forUnited
States. 3. Mental health policyUnited States. 4. Mental health servicesUnited

StatesEvaluation. I. Title.

RC443.T66 2014
362.1968900973dc23
2013017565

1 3 5 7 9 8 6 4 2
Printed in the United States of America
on acid-free paper

For the ineffable women of my life

Barbara, Martha, Torrey, and Olivia

All royalties have been assigned to the Treatment Advocacy Center in Arlington, Virginia.

CONTENTS

I dont know why other people write books, but for me, it is a selfish enterprise. I write to answer questions that are bothering me. For many years I have been appalled to watch the unfolding disaster of services for people with serious mental illnesses. The fact that my sister suffered from severe schizophrenia has certainly accounted for part of my interest. Year after year, I observed the consequences as public mental hospitals were being emptied. It was like watching the effects of a tsunami or a Category 5 hurricane in slow motion; although I knew what would happen next, I have re-run the tape in my mind, again and again.

I worked at the National Institute of Mental Health (NIMH) from 1970 to 1976, in the midst of the events described herein. Bertram Brown, then NIMH director, was my supervisor. Although I had no formal responsibilities for the federal community mental health centers program, I interested myself in it and visited some centers. Thus, I personally was acquainted with many of the players who were responsible for the program. With few exceptions, these people were intelligent, public-spirited, well-meaning, and dedicated individuals. That fact elicited the question that bothered me: How could so many well-meaning professionals have been so wrong and been complicit in creating such a disaster? This book attempts to answer that question.

I do not pretend to be a dispassionate observer. During my years of working in a public psychiatric hospital, I observed with increasing anger the effects on my patients of inadequate community services. I continue to become choleric when I read accounts like that of Charles Furry, diagnosed with schizophrenia and Lou Gehrigs disease, living by himself in suburban Virginia and dependent on Medicaid-funded home health aides:

When we removed his socks maggots fell out. Hundreds fell out initially. There were some between his toes and under his skin. Furrys legs were swollen and his shirt was drenched in drool.

This is not what President Kennedy had in mind 50 years ago when he promised that for people like Mr. Furry reliance on the cold mercy of custodial isolation will be supplanted by the open warmth of community concern and capability.highly profitable private company. We should not allow human beings to be treated in this manner if we claim to be truly civilized.

Having lived in the nations capital for most of my adult life, I have also been intrigued by the federal angle to this story. Here is a case study of a federal policy that went astray. In most such cases, there is a course correction. Yet in this case, there has been none, even now, a half-century later. Why is that? Each day after work, thousands of government workers gather over drinks to discuss their Grand Idea for solving one national problem or another. Like Robert Felix, the first director of the NIMH, they wait for the stars to align and the approval of their supervisors to implement their Grand Idea. This is thus also a cautionary tale.

If we are to correct our errors, then it is necessary to understand how we got where we are. We have made many mistakes in how we care for the most vulnerable among us and, alarmingly, other countries such as Canada and Britain are following us down this path. What can we learn from the past?

This book would not have been possible without the generous donation of many peoples time. Special thanks go to Bertram S. Brown, who unhesitatingly shared his ideas and memories for a book that he knew would not be flattering, and to Henry Foley, who retrieved his valuable 1972 interview tapes from his garage shelf and generously shared them. Others who kindly responded to my inquiries include Robert Atwell, Jerry Dincin, Matthew Dumont, Sister Ann Dyer, Rashi Fein, Mary Herbert, Robert Keisling, Anthony Lehman, Bentson McFarland, Frank Ochberg, Lucy Ozarin, Anthony Panzetta, Roger Peele, Steven Sharfstein, Alan Stone, John Talbott, and Claudwell Thomas. Archivists and librarians are a writers best friends and I am specifically indebted to Tracy Holt at NIMH; Doug Atkins at the National Library of Medicine; Gary McMillan at the American Psychiatric Association; Amy Lutzke at the Fort Atkinson Public Library; and Eric Robinson at the New York Historical Society.

Faith Dickerson, Doris Fuller, Jeffrey Geller, Stephen Hersh, D. J. Jaffe, and Robert Taylor read portions of the text and contributed valuable comments. My best reader, as always, was Barbara Torrey, who contributed not only suggestions but everything else that makes writing a book possible. Sarah Harrington and Andrea Zekus at Oxford University Press made the revisions and publication of this book hassle-free, and it has been a great pleasure to work with them. Melissa Bolla is an excellent research assistant, and Judy Miller provided invaluable editorial and administrative assistance once again.

In addition to the above, I gratefully acknowledge the following:

Chloe Raub, Special Collections Research Center, George Washington University, for permission to use the picture of Dr. Walter Freeman

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