Foreword
W hat does it mean to suffer, except to perhaps come to the end of ourselves, or toward the end of ourselves. And maybe when we come to this spare and sometimes unspeakably lonely place, a new conversation, and a new journey begins. A death before a new life.
When feeling competent and strong with self-sufficiency, confidence and enthusiasm, we are full of great ideas for ourselves and others. We see things so clearly, were quite sure about our notions and methods, and that we know the way. Things wed love to share and maybe to teach others. This mastery has its own thrill and excitement.
But when nearly everything is pulled out from beneath us, this certainty and the buoyancy and lightness that goes with it may dissolve in seconds, or more slowly over months or years.
Within a city block or two right now, there are many, young and old, grieving loss, living with sickness and in pain, anxious with fear, and with an aloneness and angst that is beyond words.
What can we begin to say to this? What can we do? Perhaps this is you right now.
In my work I meet with a handful of people each week who are wandering about in this frightening cul-de-sac. Suffering and the hopelessness that can accompany loss arrive in so many different ways in our lives, and each experience can come with a nearly unbearable and sometimes crushing weight of fear and loneliness. We know that hope is essential to life, but it can feel so quickly and so completely pulled out of our grasp. And then what?
In this book, my long-time and dear friend Colleen invites you to consider what she began to discover when her health and power began to leave her. My zaniest and liveliest of friends began to stumble, and then to fall, both figuratively and literally.
Colleens life has taken a very different path than expected. A road not romanticized here, but rather, a tough and honest recollecting, with practical and thoughtful observations. With her illness and a thousand limitations and losses, Colleen set off on a voyage, writing to us from time to time in these letters along her way; a travelogue.
In Endearing Pain Colleen hasnt thought to indulge too much in the story of her particular life, perhaps having it clearly in mind that others have their own stories and lives to refer to. Instead, she has allowed her particular river of pain and loss to move her downstream at a pace not her own, but nevertheless showing her good and hopeful and even marvellous things along the canyon walls of her sometimes quiet and difficult days, always aware that God is directing the journey.
Through anxiety, uncertainly, loss and pain Colleen has experienced a kind of joy, and a life larger and more compelling and wonderful than we might imagine.
As you read, I hope you will be heartened and warmed, and challenged and encouraged. Colleen is a very good traveling companion.
Dr. Todd Sellick
Acknowledgements
I am grateful to Len, Nicholas, Jackson, Rene and Victoria for their great forbearance with me as I grappled with the challenges of writing a book, and to the friends who spurred me on to its completion. A special thank you to Victoria for her drawing that appears on the frontispiece and to Jan Sellick for relieving me of the arduous task of formatting the bibliography.
Abbreviations
Hebrew Bible / Old Testament
GenesisGen
SamuelSam
JobJob
PsalmsPs ( pl. Pss)
ProverbsProv
EcclesiastesEccl
New Testament
MarkMark
LukeLuke
JohnJohn
RomansRom
CorinthiansCor
PhilippiansPhil
HebrewsHeb
JohnJohn
RevelationRev
Introduction
He who began a good work in you will perfect it until the day of Christ Jesus .
Phil :
S ince , I have lived with a rare and progressive form of Multiple Sclerosis (MS) and have long struggled with giving an adequate answer when people ask me how Im doing. That question has always been difficult for me because there are many facets to the answer. Several years ago, to alleviate my frustration with giving an inadequate short answer to the question, I tried to explain in a letter what it was like to be in my skin and how my illness affected us as a family. I have continued to write letters several times a year, all of which collectively form the backbone of this book.
In my fifty-seven years, God has approached me countless times and in countless ways, to perfect in me the good work he began when he showed me Christ and the cross. Of course, he always allows me to respond as I choose, and my responses have varied. I have ignored, shunned and on occasion embraced his invitations. Despite how I respond, God persists in love to pursue me, and will do this, I know, as long as I live. In 2004 , God took unprecedented initiative with me, and this book tells the story of how God got my attention, how I reacted, and how life has unfolded in the years that ensued.
Just days before Christmas, I underwent brain surgery as doctors tried to diagnose a foreign body in my brain. I had good reason to fear it would be my last Christmas with my husband Len and our kids. The fear was ferocious as days of waiting for biopsy results stretched into weeks, yet beneath it all was a peculiar peace that quelled the fearan assurance that all would be well, come what may.
Though at the time I sensed no purpose in the waiting, Ive come to appreciate those dark fear-filled days as an expression of Gods loving purposes for mea time when my tired faith was validated and then infused with a fresh vitality. Deep inside I knew, beyond a doubt, that God was in control of my chaos and that I was loved.
I was spared the diagnosis of a brain tumor and the waiting finally came to end in mid February when I got news there was no malignancy and it appeared that some sort of demyelinating disease was to blame. Given the rare type of lesions found in my brain, the definitive diagnosis of MS was still months away and the labeling of the specific type of MS I have (progressive relapsing) and accompanying therapy options were many more months in coming. But as God rescued me from crisis fear in 2004 , so too he has been equally gracious with the chronic fears Ive faced since then, as I learn to live with a disease marked by progressive deterioration that has brought much change into my life. Though the changes have been challenging and difficult in many ways, they have also been channels of Gods grace. I live with the draining reality of a chronic illness, but I live too in a Kingdom reality that renews me, and that has made all the difference. It has given me hope that fashions faith from fear and helps me see God speaking through the daily unfolding of events. My illness has certainly served to broaden my awareness of God, which in turn has deepened my understanding and appreciation of a loving sovereign God.
Its hard to say exactly how the events of 2004 affected me, but I do know that God mercifully met me at crucial times and in creative ways, and so impressed his love upon my heart and mind that I couldnt help but love him with new abandon and am compelled to tell of it.
The Long Answer
January 2007
I was diagnosed with MS in mid-June 2006 . The results from a spinal tap I had in January 2006 provided the missing piece of the puzzle that my neurologist needed to finally feel confident in making a diagnosis of MS. I havent looked like a classic MS case right from the beginning, which is why I had to undergo an unorthodox brain biopsy three years ago following inconclusive CT scans and MRI.