Copyright 2015 Bull Publishing Company and The Board of Trustees of the Leland Stanford Junior University
All rights reserved. No part of this publication may be reproduced, distributed, or transmitted in any form or by any means, including photocopying, recording, or other electronic or mechanical methods, without the prior written permission of the publisher, except in the case of brief quotations embodied in critical reviews and certain other noncommercial uses permitted by copyright law.
Published by Bull Publishing Company
P.O. Box 1377
Boulder, CO, USA 80306
www.bullpub.com
Library of Congress Cataloging-in-Publication Data
LeFort, Sandra M.
Living a healthy life with chronic pain / Sandra M. LeFort, MN, PhD, Lisa Webster, RN, Kate Lorig, DrPH, Halsted Holman, MD, David Sobel, MD, MPH, Diana Laurent, MPH, Virginia Gonzalez, MPH, Marian Minor, RPT, PhD.
pages cm
Summary: Nobody wants chronic pain in their lives. Unfortunately, about 30 percent of people worldwide live with chronic pain conditions, many of which have no identifiable cause. We wrote this book to help these people explore healthy ways to manage and live with their chronic pain condition so they can enjoy more fulfilling, satisfying lives-- Provided by publisher.
Includes bibliographical references and index.
ISBN 978-1-936693-88-7
1. Chronic pain--Popular works. 2. Chronic diseases--Popular works. 3. Self-care, Health. I. Webster, Lisa. II. Lorig, Kate. III. Holman, Halsted, 1925- IV. Sobel, David. V. Laurent, Diana. VI. Gonzalez, Virginia. VII. Minor, Marian A. (Marian Adams)
RB127.L384 2015
616.0472--dc23
2015002233
Printed in U.S.A.
19 18 17 16 15 10 9 8 7 6 5 4 3 2 1
Interior design and project management: Dovetail Publishing Services
Cover design and production: Shannon Bodie, Lightbourne, Inc.
This book is dedicated to the memory of Howard Montrose Genge for his love, courage, and wisdom in the face of pain; Mary Ellen Jeans, PhD, for believing in education for people in pain; and people of all ages and their families who struggle with pain in their lives.
Acknowledgments
M any people helped us write this book. Among the most important are the first 110 participants of the Chronic Pain Self-Management Program study funded by the National Health Research and Development Program of Health Canada. That study paved the way for thousands of workshop participants in Canada, the United States, Denmark, and other countries. All of these people, along with our wonderful workshop leaders, told us what information they needed and helped us make adjustments along the way. All of you have informed this new North American edition of our book.
Many professionals also assisted us, including Lynn Beatie, PT, MPT, MHA, Bonnie Bruce, RD, DrPH, Norman Buckley, MD, FRCPC, Beth Darnall, PhD, John W. Doyle, BA, Steven Feinberg, MD, Chaplain Bruce Feldman, MD, Shelley Gershman, RN, Peg Harrison, MSW, Noorin Jamal, RN, MN-NP, Mary Ellen Jeans, PhD, Roman Jovey, MD, Michael McGillion, PhD, RN, Patrick McGowan, PhD, Ronald Melzack, PhD, Yvonne Mullin, MSc, RD, Sheila OKeefe-McCarthy, PhD, RN, Catherine Regan, PhD, Ned Pratt, BFA, Kathleen Rowat, PhD, Richard Seidel, PhD, and Judith Watt-Watson, PhD, RN. A special thanks to Nicolaj Holm Faber, Chief Consultant, Danish Committee on Health Education, whose support has been invaluable. To all of you, your help has been gratefully received.
A special thanks to Jon Peck, Jon Ford, and Erin Mulligan, who helped us every step of the way. Editors are unsung heroes of good books. We wish to acknowledge their fine contributions to making this a more readable, understandable book. We would also like to thank our T-Trainers, Master Trainers, and Leaders. There are now hundreds of you, and you all have made important suggestions that helped us craft this book.
We would like to thank DRx, publisher of The Healthy Mind, Healthy Body Handbook (also published as Mind & Body Health Handbook) by David Sobel, MD, and Robert Ornstein, PhD, for permission to adapt sections of their book.
Finally, many thanks to Jim Bull, Claire Cameron, and the team at Bull Publishing. Bull Publishing has been a strong supporter of health-related books for more than 40 years. Jims support and encouragement have been essential to the development of this book. We couldnt have done it without you!
If you would like to learn more about our continuing research, online programs, trainings, and materials, please visit our website:
www.patienteducation.stanford.edu
We are continually revising and improving this book. If you have any suggestions or comments, please send them to
.
Contents
Disclaimer
This book is not intended to replace common sense, professional medical or psychological advice. You should seek and get appropriate professional evaluation and treatment for problemsespecially unusual, unexplained, severe, or persistent symptoms. Many symptoms and diseases require and benefit from specific medical or psychological evaluation and treatment. Dont deny yourself proper professional care.
If your symptoms or problems persist beyond a reasonable period despite using self-care recommendations, you should consult a health professional. What is a reasonable period will vary; if youre not sure and youre feeling anxious, consult a health care professional.
If you receive professional advice in conflict with this book, you should rely upon the guidance provided by your health care professional. He or she is likely to be able to take your specific situation, history and needs into consideration.
If you are having thoughts of harming yourself in any way, please seek professional care immediately.
This book is as accurate as its publisher and authors can make it, but we cannot guarantee that it will work for you in every case. The authors and publisher disclaim any and all liability for any claims or injuries that you may believe arose from following the recommendations set forth in this book. This book is only a guide; your common sense, good judgment, and partnership with health professionals are also needed.
C HAPTER
Overview of
Self-Management
and Pain
N OBODY WANTS CHRONIC PAIN in their lives. Unfortunately, about 30 percent of people worldwide live with chronic pain conditions, many of which have no identifiable cause. We wrote this book to help people explore healthy ways to manage and live with their chronic pain condition so they can enjoy more fulfilling, satisfying lives.
This may seem like a strange concept. How can you live a healthier, happier life when you are hurting? To answer this, we need to explore what happens with most chronic health problems. Whether its heart disease, diabetes, depression, or any of a host of others, the conditions that cause chronic pain also cause fatigue, loss of physical strength and endurance, emotional distress, and a sense of helplessness or even hopelessness. A healthy way to live with chronic pain is to work at managing the physical, mental, and emotional problems caused by the condition. The challenge is to learn how to function at your best even with the difficulties pain can present. The goal is to achieve the things you want to do, to get pleasure from life, and to be as healthy as possible. That is what this book is all about. Before we go any further, lets talk about how to use this book. It is not a textbook; in fact you might want to think of it as a workbook rather than as a traditional book. You do not need to read every word in every chapter. Instead, we suggest you read the first two chapters and then scan the table of contents to find the specific information you need. Read the sections that feel most relevant to your situation. Feel free to skip around and to make notes right in the book.
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