Lupus is a life-altering disease. What Sara [Gorman] learned is that she could let lupus alter her life or she could take charge and alter her own life to achieve better control of her lupus. During the struggle that she shares with her readers, she acquired the wisdom to accept that she would live the rest of her life with lupus. She also developed the courage to rebuild her life with lupus by taking charge of what she could control, and she shares that story. Those elements of wisdom, acceptance and taking control underlie many if not most of the stories that I hear of successfully living with lupus, and that is why I hope many will read Saras story and learn from its message of hope.
Sara [Gorman] has written a gem of a book for lupus patients struggling with a new, frightening and unpredictable illness. Her advice is also applicable to all of us: lead a healthier, happier life. Discover the inner self and what is really important to you. Change is the cornerstone of life. Sometimes when we are feeling awful, we fear that I will feel like this forever. That feeling is understandable but completely false. Things always change. Knowing that we will not feel the same the next day or the next week is comforting. Our ability to change and put our happiness and the happiness of our loved ones as the core of our existence makes us happier and healthier people with our chronic disease, whatever that disease may be. Saras book helps us learn these and other truths to help us live with lupus and lead happier lives.
Neil I. Stahl, MD
An invaluable resource for those dealing, not just with lupus, but any chronic illness.
Truly moving.
Suffering through a chronic illness can be one of lifes great challenges. Not only do you have to deal with the physical ailment, but you also have to work through the emotional struggle that goes along with it. Then theres the what ifs: What if we never find a cure? What if I never get better? What if Im sick the rest of my life? And theres also the pressure it can put on relationships. Sara Gorman experienced all of these and was able to come through victoriously. Her story is inspiring, challenging, and, most importantly, full of hope for anyone diagnosed with Lupus or any chronic illness.
Praise for the blog, DespiteLupus.com
...as a fellow lupie, I have to tell you how remarkable it is to finally have found someone who can communicate the frustrations and challenges of this diagnosis. - Anonymous
I have RA, but a lot of the things you write about are universal to chronic diseases, so I get a lot out of your posts. S.
Ive never known anyone with lupus so I have felt very alone and frustrated. I am enjoying your honesty. Its nice to read about someone who is dealing with it instead of it dealing with them. K.
reading your blog has definitely kept me doing the right thingsThanks for your positive outlook, it helps me keep my chin up - M.P.
You are right on so many points in this post. Funny, how much of what you went through and still are that I relate to, even though yours is a chronic illness and mine was acute. Deborah Ludwig, author of Rebirth: A Leukemia Survivors Journal of Healing during Chemotherapy, Bone Marrow Transplant, and Recovery
You express what I feel so wellIts so nice to know [this] isnt something Im experiencing alone. - A.
I will have to keep an eye out for your book. I enjoy reading your blog as I can really relate to [many] of the feelings you have about thingsKudos to you girlfriend! - M. N. V.
I am finding it to be a good practice to look at your blogfor a sanity check and just to remind myself to slow down and be more careful about what I get involved withIts great (even for a non-lupite)! J.H.
I just love reading your stuff - and am amazed at your strength and humor. Thank you for being out there for all of us. - M.P.
I cant wait to read the book! You provide wonderful insights and great resources for people. G.V.
Your blog is fantastic! You are an excellent writer -- I found myself really drawn in, and wanting to read more. Even though I dont have Lupus, I felt I could really relate to much of what you write about. R.C.
Wow, I just read your whole blog and I feel like we are leading almost identical lives. - M.
Ive been following your journey for several months and I find you to be inspirational. D.C.
What a wonderful woman, fighter and awesome writer S.
Thanks for sharing the recommendations! Its always good to find new ways of helping to deal with the pain. C.
I read your blog and I find that you are such a strong personthanks for sharing. A.Z.
Your poem is awesome and says EXACTLY how I feel. You nailed it girl! Good job! - M.P.
Great blog, your profile inspired me. I have lupus & I too have been fighting life. M.M.
Sometimes your blog serves as a reminder that Im doing too much! I definitely need to be better at recognizing the fatigue before I get really sick! L.B.
Your insights show a [lot] of personal growth and reflection - someone who lives with the disease and seeks to understand its role in our life and relationships. C.J.
Excellent blog...you are a hero! A.C.
I enjoyed reading your blog - thanks for sharing! Your story is inspiring. S.T.
Its informative, well written, and colorfulyour stories are powerful. M.S.
Your blog is great. The entries have a great balance of information and the casualness of talking to a friend. S.F.
Just wanted you to know how interesting it is to read your stories and how amazing your attitude and personality [are] in spite of all that youve been through and continue to go through. C.T.
You are such an exceptional writer, and your stories are so moving - E.H.
I really respect your blogIts good to hear from someone out there that has lupus [and] is pregnant and having a positive experience I think it is really helpful to know that there are other people out there just like meyou never get to hear about the good cases of lupus and pregnancyyou always only hear about the bad ones - A.W.
I very much appreciate the blog - your writing, sharing, and providing it as a resource. There arent enough good sites out there. Believe me, Ive looked! M.T.
your blog is so great. I really enjoyed your writing. Everything is so well written; and very inspirational as well. L.
First of all, I want to thank you for the positive and comprehensive review you wrote in the first blog! It was one of the best Ive ever seen! And then the second one, in which you expressed some valid concerns, was also very well done, factual and comprehensive. I truly appreciate that R.C.
Thanks for this post. Its good to hear reminders like this from time to time. S.
D E S P I T E L U P U S
How to Live Well with a Chronic Illness
All rights reserved. No part of this book may be reproduced or
transmitted in any form or by any means including but not limited
to electronic, mechanical, photocopied, recorded or otherwise
without the express prior written consent of the author.
COPYRIGHT Sara Gorman 2009
PUBLISHER
Four-Legged Press
ISBN
978-1-4392-3489-1
Library of Congress Control Number
2009903955
BOOK COVER
Cecilia Sorochin SoroDesign