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Elinor Cleghorn - Unwell Women: A Journey Through Medicine and Myth in a Man-Made World

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Elinor Cleghorn Unwell Women: A Journey Through Medicine and Myth in a Man-Made World
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Unwell Women: A Journey Through Medicine and Myth in a Man-Made World: summary, description and annotation

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Seamlessly melding scholarship with passion, Unwell Women is the definition of unputdownable Telegraph
A richly detailed, wide-ranging and enraging history... Unwell Women is not just a compelling investigation, but an essential one Observer
A passionate and indignant history The Times

A searing, brilliant investigation, an intricate and urgent book on how womens health has constantly been misunderstood and miscast throughout history Kate Williams

One of the most important books of our generation Fern Riddell
UNWELL WOMEN is a powerful and fascinating book that takes an unsparing look at how womens bodies have been misunderstood and misdiagnosed for centuries.Lindsey Fitzharris
We are taught that medicine is the art of solving our bodys mysteries. And as a science, we expect medicine to uphold the principles of evidence and impartiality. We want our doctors to listen to us and care for us as people, but we also need their assessments of our pain and fevers, aches and exhaustion to be free of any prejudice about who we are, our gender, or the colour of our skin. But medicine carries the burden of its own troubling history. The history of medicine, of illness, is a history of people, of their bodies and their lives, not just physicians, surgeons, clinicians and researchers. And medical progress has always reflected the realities of a changing world, and the meanings of being human.
In Unwell Women Elinor Cleghorn unpacks the roots of the perpetual misunderstanding, mystification and misdiagnosis of womens bodies, and traces the journey from the wandering womb of ancient Greece, the rise of witch trials in Medieval Europe, through the dawn of Hysteria, to modern day understandings of autoimmune diseases, the menopause and conditions like endometriosis. Packed with character studies of women who have suffered, challenged and rewritten medical orthodoxy - and drawing on her own experience of un-diagnosed Lupus disease - this is a ground-breaking and timely expos of the medical world and womans place within it.

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Copyright 2021 by Elinor Cleghorn

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Library of Congress Cataloging-in-Publication Data

Names: Cleghorn, Elinor, author.

Title: Unwell women: misdiagnosis and myth in a man-made world / Elinor Cleghorn.

Description: New York: Dutton, Penguin Random House LLC, 2021. | Includes bibliographical references.

Identifiers: LCCN 2020053644 (print) | LCCN 2020053645 (ebook) | ISBN 9780593182956 (hardcover) | ISBN 9780593182963 (ebook)

Subjects: LCSH: WomenHealth and hygiene. | WomenHealth and hygieneHistory. | Women patients. | Diagnostic errors.

Classification: LCC RA564.85 .C54 2021 (print) | LCC RA564.85 (ebook) | DDC 613/.04244dc23

LC record available at https://lccn.loc.gov/2020053644

LC ebook record available at https://lccn.loc.gov/2020053645

While the author has made every effort to provide accurate telephone numbers, internet addresses, and other contact information at the time of publication, neither the publisher nor the author assumes any responsibility for errors or for changes that occur after publication. Further, the publisher does not have any control over and does not assume any responsibility for author or third-party websites or their content.

Cover design by Vi-An Nguyen; Cover image British Library Board. All Rights Reserved / Bridgeman Images

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For Dorothy, my beloved unwell woman

The history of illness is not the history of medicineit is the history of the worldand the history of having a body could well be the history of what is done to the many in the interest of the few.

Anne Boyer, The Undying (2019)

You shall have to explore the history of those wonderful functions and destinies which her sexual nature enables her to fulfill, and the strange and secret influences which her organs, by their nervous constitution, and their functions, by their relation to her whole Life-force, whether in sickness or health, are capable of exerting, not on the body alone, but on the heart, the mind, and the very soul of woman.

Charles D. Meigs, MD, Lecture on Some of the Distinctive Characteristics of the Female (1847)

You see, he does not believe I am sick! And what can one do?

If a physician of high standing, and ones own husband, assures friends and relatives that there is really nothing the matter with one but temporary nervous depressiona slight hysterical tendencywhat is one to do?

Charlotte Perkins Gilman, The Yellow Wallpaper (1892)

CONTENTS
INTRODUCTION

We are taught that medicine is the art of solving our bodys mysteries. And we expect medicine, as a science, to uphold the principles of evidence and impartiality. We want our doctors to listen to us and care for us as people. But we also need their assessments of our pain and fevers, aches and exhaustion, to be free of any prejudice about who we are. We expect, and deserve, fair and ethical treatment regardless of our gender or the color of our skin. But here things get complicated. Medicine carries the burden of its own troubling history. The history of medicine, of illness, is every bit as social and cultural as it is scientific. It is a history of people, of their bodies and their lives, not just of physicians, surgeons, clinicians, and researchers. And medical progress has not marched forward just in laboratories and benches, lectures and textbooks; it has always reflected the realities of the changing world and the meanings of being human.

Gender difference is intimately stitched into the fabric of humanness. At every stage in its long history, medicine has absorbed and enforced socially constructed gender divisions. These divisions have traditionally ascribed power and dominance to men. Historically, women have been subordinated in politics, wealth, and education. Modern scientific medicine, as it has evolved over the centuries as a profession, an institution, and a discipline, has flourished in these exact conditions. Male dominanceand with it the superiority of the male bodywas cemented into medicines very foundations, laid down in ancient Greece. In the third century BCE, the philosopher Aristotle described the female body as the inverse of the male body, with its genitalia turnd outside in. Women were marked by their anatomical difference from men and medically defined as faulty, defective, deficient. But women also possessed an organ of the highest biologicaland socialvalue: the uterus. Possession of this organ defined the purpose of women: to bear and raise children. Knowledge about female biology centered on womens capacityand dutyto reproduce. Being biologically female defined and constrained what it meant to be a woman. And being a woman was conflated with, and reduced to, the female sex. Medicine validated these social determinants by constructing the myth that a woman was her biology; that she was ruled by it, governed by it, at the mercy of it. Womens illnesses and diseases were consistently related back to the secrets and curiosities of her reproductive organs. The mystical uterus influenced every conceivable disorder and dysfunction of her body and mind. And ever since, medical knowledge about womens susceptibility to illness and disease has been shaped and distorted by prejudiced beliefs that possessing a uterus defines our inferior position in the man-made world.

Of course, not all women have uteruses, and not all people who have uteruses, or who menstruate, are women. But medicine, historically, has insisted on conflating biological sex with gender identity. Over centuries, medical knowledge about the organs and systems marked female have been imbued with patriarchal notions of womanhood and femininity. As medicines understanding of female biology has expanded and evolved, it has constantly reflected and validated dominant social and cultural expectations about who women are; what they should think, feel, and desire; andabove all elsewhat they can do with their own bodies. We understand, today, that our biology does not determine our gender identity. For centuries, feminism has fought for the rights of all people to not have their lives limited by their basic biology. But medicine has inherited a gender problem. Medical myths about gender roles and behaviors, constructed as facts before medicine became an evidence-based science, have resonated perniciously. And these myths about female bodies and illnesses have enormous cultural sticking power. Today, gender myths are ingrained as biases that negatively impact the care, treatment, and diagnosis of all people who identify as women.

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