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Mary Beth Quaranta Morrissey - Suffering Narratives of Older Adults: A Phenomenological Approach to Serious Illness, Chronic Pain, Recovery and Maternal Care

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In Suffering Narratives of Older Adults, Mary Beth Quaranta Morrissey turns to the traditions of phenomenology, humanistic psychology and social work to provide an in-depth exploration of the deep structure of the suffering experience. She draws upon the notion of maternal holding to develop an original construct of maternal affordances the ground of possibility for human development, agency and relational practices. The conceptual analysis is based on the life narratives of several elders receiving chronic care in facility environments.

Creating new fields of communication for patients, their family members and health professionals in processes of reflection and shared decision making, this book builds on knowledge about suffering to help guide ethical action in preventing and relieving chronic pain and improving systems of care. It offers a phenomenological approach to understanding the maternal as a primary domain of moral experience in serious illness and suffering, and implications for policy, practice and research. A series of applied chapters, looking at individual experiences of suffering and care experiences, present critical areas of ethical inquiry, including:

  • pain and suffering
  • maternal relational ethics
  • evaluation and moral deliberation about care options
  • decision-making and moral agency
  • end-of-life experiences of care.

Exploring how an ecological relational perspective grounded in phenomenology may provide fruitful alternatives to traditional frameworks in bioethics, this is an important contribution to the ongoing development of an ecological ethic of care. It will be of interest to scholars and students of bioethics and phenomenological methods in the health and human services, as well as practitioners in the field.

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Suffering Narratives of Older Adults
In Suffering Narratives of Older Adults, Mary Beth Quaranta Morrissey turns to the traditions of phenomenology, humanistic psychology and social work to provide an in-depth exploration of the deep structure of the suffering experience. She draws upon the notion of Maternal holding to develop an original construct of Maternal Affordances the ground of possibility for human development, agency and relational practices. Morrisseys conceptual analysis is based on the life narratives of several elders receiving chronic care in facility environments.
Creating new fields of communication for patients, their family members and health professionals in processes of reflection and shared decision making, this book builds on knowledge about suffering to help guide ethical action in preventing and relieving chronic pain and improving systems of care. It offers a phenomenological approach to understanding the Maternal as a primary domain of moral experience in serious illness and suffering, and implications for policy, practice and research. A series of applied chapters, looking at individual experiences of suffering and care experiences, present critical areas of ethical inquiry, including:
pain and suffering;
Maternal-relational ethics;
evaluation and moral deliberation about care options;
decision making and moral agency; and
end-of-life experiences of care.
Exploring how an ecological relational perspective grounded in phenomenology may provide fruitful alternatives to traditional frameworks in bioethics, this is an important contribution to the ongoing development of an ecological ethic of care. It will be of interest to scholars and students of bioethics and phenomenological methods in the health and human services, as well as practitioners in the field.
Mary Beth Quaranta Morrissey, PhD, MPH, JD, is a Fellow of the Global Healthcare Innovation Management Center, and the Program Director of the Post-Masters Healthcare Management Certificate Program in Public Health, Palliative Care and Long-Term Care, Fordham Schools of Business, New York, USA.
Routledge Advances in the Medical Humanities
New titles
Medicine, Health and the Arts
Approaches to the Medical Humanities
Edited by
Victoria Bates, Alan Bleakley and Sam Goodman
Suffering Narratives of Older Adults
A Phenomenological Approach to Serious illness, Chronic Pain, Recovery and Maternal Care
Mary Beth Morrissey
Forthcoming titles
Doing Collaborative Arts-based Research for Social Justice
A Guide
Victoria Foster
Learning Disability
Past, Present and Future
C. F. Goodey
The Experience of Institutionalisation
Social Exclusion, Stigma and Loss of Identity
Jane Hubert
Digital Stories in Health and Social Policy
Listening to marginalized voices
Nicole Matthews and Naomi Sunderland
Medical Humanities and Medical Education
How the Medical Humanities Can Shape Better Doctors
Alan Bleakley
Suffering Narratives of Older Adults
A Phenomenological Approach to Serious Illness, Chronic Pain, Recovery and Maternal Care
Mary Beth Quaranta Morrissey
Suffering Narratives of Older Adults A Phenomenological Approach to Serious Illness Chronic Pain Recovery and Maternal Care - image 1
First published 2015
by Routledge
2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN
and by Routledge
711 Third Avenue, New York, NY 10017
Routledge is an imprint of the Taylor & Francis Group, an informa business
2015 Mary Beth Quaranta Morrissey
The right of Mary Beth Quaranta Morrissey to be identified as author of this work has been asserted by her in accordance with sections 77 and 78 of the Copyright, Designs and Patents Act 1988.
All rights reserved. No part of this book may be reprinted or reproduced or utilized in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers.
Trademark notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe.
British Library Cataloguing-in-Publication Data
A catalogue record for this book is available from the British Library
Library of Congress Cataloging-in-Publication Data
A catalog record has been requested for this book
ISBN: 978-0-415-85479-5 (hbk)
ISBN: 978-0-203-74188-7 (ebk)
Typeset in Times
by Saxon Graphics Ltd, Derby
To my mother, Mary Ann
Contents
There is a growing recognition of the staggering social problems that loom in the graying of the baby boom generation. The population of seniors in the United States is projected to more than double over the next 40 years, rising from 35 million in 2000 to over 88 million by 2050. At that time, one in five Americans will be age 65 or older. Those 80 and above will be the most populous age group in the country32.5 million or 7.4 percent of the population. Americas chronic and long-term care systems are patchwork, and they are insufficient to meet the challenges that these demographic trends will create. Can our society make better provision for those who built it a generation ago? Basic social decency and respect for the humanity and dignity of those in the shadows and the twilight of their lives, today and in the future, hang in the balance.
Undergoing treatment for serious chronic illness and frailty in a long-term care setting is dislocating, very much like entering an alien world in which one must suspend ones normal rights, freedoms, expectations, and routines. It involves the replacement of ones persona by a very different institutional identity and role. Even if an elderly person receives long-term care in the home, this social dislocation can occur.
Moreover, regardless of setting, long-term care often has to grapple with pain, which must be controlled, and it must come to grips with suffering, which must be assuaged. While the patient undergoes the suffering, exposure, and helplessness of submitting to the bed and body work of long-term care, he or she is socially and morally indulged by those to whom the caregiving has been entrusted. This experience can precipitate a crisis of self-identity and meaning. Paradoxically it can cause an alienation from ones past just when it is precisely that past that one is desperate to regain.
The foremost challenge of an aging society, I take it, is the retrievalor perhaps the reconstructionof meaning: What is the nature and meaning of old age? How does it fit in the overall voyage of life? Can there be a cultural skein weaving the living generations together in a complementary and supplementary, rather than an antagonistic, fashion? Central to these and related questions of meaning are the notions of rights and relationships, notions that are profoundly shaped and defined by thenot always consistently meshingframeworks of medicine and law, of public policy and caregiving practice, of ethics and economics.
From what perspective can we best understand suffering in the last chapter of life and an ethic of care which is both rights-oriented and relational? Where should we look for insight into the experience of suffering and the meaning of the caring response that suffering calls forth?
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