Ken Siri - 1,001 Tips for the Parents of Autistic Boys: Everything You Need to Know About Diagnosis, Doctors, Schools, Taxes, Vacations, Babysitters, Treatments, Food, and More
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I am deeply indebted to in-house Skyhorse Publishing editor Joseph Sverchek, without whom I could not possibly have completed this project. I would also like to thank Chantal Sicile-Kira (internationally recognized autism author, advocate, and speaker), Jane Johnson (Managing Director of the Autism Research Institute), Kim Mack-Rosenberg (Vice President National Autism Association, New York Metro Chapter), Cathy Purple Cherry (AIA, LEED-AP, Principal of Purple Cherry Architects), and Teri Arranga (Director of AutismOne) for all their comments and suggestions; they helped bring this project to another level.
And special thanks go to the hundreds of parents, writers, teachers, therapists, doctors, and others whose thoughts, ideas, and words of wisdom are contained in this book.
I just threw 1,001 tips at you. How do you feel? I know there is a lot to consider and sample. Just try and keep things as simple as possible when looking at these tips. View the process as iterative: Some will work for you, and some will not. Take those that work for you and gradually work them into your daily routine.
It is my hope that you will discover even one tip in this compilation that will have a positive impact on your childs life, and your own. Write and tell us about it.Wed also love to hear any tips you may have. Send them to us, and they could make the next edition and land you a free copy of the book. E-mail us at autism@skyhorsepublishing.com.
I cannot resist one last quote:
Remember, Redhope is a good thing, maybe the best of things.
Andy Dufresne (played by Tim Robbins) ,
The Shawshank Redemption
PS: Look for us on the Psychology Today blog at www.psychologytoday.com/blog/dads-diary .
7 Kinds of Smart (Plume, 1999) by Thomas Armstrong.
41 Things to Know About Autism (Turner, 2010) by Chantal Sicile-Kira.
1001 Great Ideas for Teaching and Raising Children with Autism Spectrum Disorders (Future Horizons, 2010) by Ellen Notbohm and Veronica Zysk.
Adolescents on the Autism Spectrum: A Parents Guide to the Cognitive, Social, Physical, and Transition Needs of Teenagers with Autism Spectrum Disorders (Penguin, 2006) by Chantal Sicile-Kira. Foreword by Temple Grandin, PhD. 2006 San Diego Book Award for Best in Health/Fitness.
All I Can Handle: Im No Mother Theresa (Skyhorse, 2010) by Kim Stagliano.
Autism: A Holistic Approach (Floris Books, 2002) by Bob Woodward and Dr. Marga Hogenboom.
Autism Life Skills: From Communication and Safety to Self Esteem and More: 10 Essential Abilities Every Child Deserves and Needs to Learn (Penguin, 2008) by Chantal Sicile-Kira. Foreword by Temple Grandin, PhD.
Autism Spectrum Disorders:The Complete Guide to Understanding Autism , Aspergers Syndrome, Pervasive Developmental Disorder, and other ASDs (Penguin, 2005) by Chantal Sicile-Kira, Foreword by Temple Grandin, PhD. Recipient of 2005 Autism Society of Americas Outstanding Literary Work of the Year Award. Nominated for the 2005 PEN/Martha Albrand Award for First Nonfiction.
Autistic Spectrum Disorders: Understanding the Diagnosis and Getting Help (OReilly & Associates, 2002) by Mitzi Waltz.
Changing the Course of Autism (Sentient, 2007) by Bryan Jepson, MD with Jane Johnson.
Children and Youth with Aspergers Syndrome (Corwin, 2005) by Brenda Smith-Myles.
Children with Starving Brains (Bramble, 2009) by Jaquelyn McCandless.
Cutting-Edge Therapies for Autism 20102011 (Skyhorse, 2010) by Ken Siri and Tony Lyons
Engaging Autism (Da Capo, 2009) by Stanley Greenspan, MD.
Getting Beyond Bullying and Exclusion PreK5 (Corwin, 2009) by Ronald Mah.
Girls Under the Umbrella of Autism Spectrum Disorders (Autism Asperger Press, 2007) by Lori Ernsperger, PhD, and Danielle Wendel.
Healing our Autistic Children (Palgrave Macmillan, 2010) by Julie A. Buckley, MD.
Healing the New Childhood Epidemics (Ballantine, 2008) by Kenneth Bock, MD.
Helping Children with Autism Learn (Oxford, 2007) by Bryna Siegel.
Other Neurological Differences (Autism Asperger Publishing, 2005) by Lisa Lieberman.
Overcoming ADHD (Da Capo, 2009) by Stanley Greenspan, MD.
Physicians Desk Reference (PDR Network, 2009) by PDR Staff.
Poor Richards Almanac (Random House, 1988) by Benjamin Franklin.
Son-Rise: The Miracle Continues (HJ Kramer, 1995) by Barry Neil Kaufman and Raun Kaufman.
Stumbling on Happiness (Vintage, 2007) by Daniel Gilbert
Teaching Students with Autism Spectrum Disorders (Corwin, 2008) by Roger Pierangelo and George A. Giuliani.
The Art of War (Shambhala, 2005), by Sun Tzu, translation Thomas Cleary.
The Autism Book (Little, Brown, 2010) by Robert Sears, MD.
The Autism Sourcebook (Harper, 2006) by Karen Siff Exkorn.
The Complete IEP Guide: How to Advocate for Your Special Ed Child (NOLO. 2009) by Lawrence Siegel.
The Encyclopedia of Dietary Interventions for the Treatment of Autism and Related Disorders (Sarpsborg Press, 2008) by Karyn Seroussi and Lisa Lewis, PhD.
The Everyday Advocate (NAL, 2010) by Areva Martin, Esq. and Lynn Kern Koegel.
The Hidden Curriculum: Practical Solutions for Understanding Unstated Rules in Social Solutions (Autism Asperger Publishing, 2004) by Brenda Smith-Myles.
The Mindbody Prescription (Warner, 1999) by John Sarno, M.D.
The Way I See It (Future Horizons, 2008) by Temple Grandin, PhD.
The Way They Learn (Tyndale House, 1998) by Cynthia Ulrich Tobias
Thinking in Pictures (Vintage, 2010) by Temple Grandin, PhD.
Three Times the Love (Avery, 2009) by Lynn and Randy Gaston.
We Band of Mothers (Autism Research Institute, 2007) by Judy Chinitz.
What Your Doctor May Not Tell You About(TM) Childrens Vaccinations (Grand Central, 2007) by Stephanie Cave, MD.
ARRI Quarterly
Spectrum Magazine
The Advocate
The Autism File
If you have any inkling that your childs development is off, it should be handled at the youngest possible age, as we now know that early intervention leads to better outcomes. Bring to your pediatricians attention any apparent delay or symptom (see list below), and do not accept Its a phase or Dont worry from anyone. Seek a second opinion if necessary!
There are many lists out there describing symptoms of autism, feel free to Google for more. We present a sample grouping below. Review, and if you note any delays see your pediatrician. Remember to err on the side of caution; it will help you catch any issues early when prognosis is better.
Speech Problems:
- Nonverbal (unable to speak, perhaps has a few words)
- Repetitiverepeating phrases over
- Inappropriate speechspeech which makes little sense
- Echolaliarepeating the vocalizations of another
- Scriptingrepeating lines from a movie or TV show over and over
Social Problems:
- Does not understand typical social boundaries or behavior in social situations
- Decreased imaginary and pretend play
- Extremely hyperactive or underactive
- Extreme tantrumsuncontrollable
- Tunes others out, plays by self
- Frequently does not notice someone entering the room
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