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Fitzmaurice - Its Not Yet Dark

Here you can read online Fitzmaurice - Its Not Yet Dark full text of the book (entire story) in english for free. Download pdf and epub, get meaning, cover and reviews about this ebook. City: Boston, year: 2018, publisher: Mariner Books;Houghton Mifflin Harcourt, genre: Detective and thriller. Description of the work, (preface) as well as reviews are available. Best literature library LitArk.com created for fans of good reading and offers a wide selection of genres:

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Fitzmaurice Its Not Yet Dark

Its Not Yet Dark: summary, description and annotation

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The brave -- Holding my breath -- Baggot Street Bridge -- Empire State Building -- I say his name -- North Cottage -- Sundance -- Pain -- Running -- He tells me -- The hopeful and the desperate -- Arden -- Sunshine in our lives -- Pizza -- Time to leave -- Fear -- My country -- A life -- Christmas -- This day -- What is man -- The tree -- Four pieces of paper -- White bicycles -- Winter in Berlin -- Drama -- The biggest, thickest, heaviest dictionary -- Cold from the fridge -- Gecko -- Im still man -- Its not yet dark -- The darkness.;Beautifully written. Utterly life-affirming.--Alan Rickman. In a memoir in the tradition of The Diving Bell and the Butterfly and My Left Footand a #1 bestseller upon its initial release in Ireland, a young filmmaker diagnosed with ALS gives us a story of courage, of heart, of coming back for more, of love and struggle and the power of both (Joseph OConnor). In 2008, Simon Fitzmaurice was diagnosed with ALS, or Lou Gehrigs disease. He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive. In Its Not Yet Dark, the young filmmaker, a husband and father of five small children, draws us deeply into his inner world. Told in simply expressed and beautifully stark prose, it is an astonishing journey into a life that, though brutally compromised, is lived more fully than most, revealing at its core the potent power love has to carry us through the days. Written using an eye-gaze computer, Its Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people, and, ultimately, about what it means to be alive--

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First U.S. Edition

Copyright 2014 by Simon Fitzmaurice

All rights reserved

For information about permission to reproduce selections from this book, write to or to Permissions, Houghton Mifflin Harcourt Publishing Company, 3 Park Avenue, 19th Floor, New York, New York 10016.

www.hmhco.com

First published in Ireland in 2014 by Hachette Books Ireland

Library of Congress Cataloging-in-Publication Data is available.

ISBN 978-1-328-91671-6

Cover design by Martha Kennedy

Author photograph by Simon Fitzmaurice

e ISBN 978-1-328-91858-1
v1.0717

For Ruth,

Jack, Raife, Arden, Sadie and Hunter

The brave

I am a stranger. A different breed. I move among you but am so different that to pretend I am the same only causes me pain. And yet I am the same, in as many ways as I am different. I am a stranger.

I observe your meaning on television, through song and writing. I was once like you. But I often feel distant from you.

My meaning has faces, names. Totems. The words we utter. Every breath of us is meaning.

{

Everyone notices but no one sees.

On the streets, in the crowds, no one sees.

I was once invisible. I moved among you, invisible in my disguise. Now I am difference made manifest. I cannot hide. I move with a force field that makes you avert your eyes. Only children see me. You gather them together when I draw near but they do not look away. You cross the street from me but your children do not look away. They are still looking for the definition of man.

I frighten you. I am a totem of fear. Sickness, madness, death. I am a touchstone to be avoided.

But not by all. The brave approach. Women. Children. Some rare men. And I am shaken awake.

Those I count as friends are the brave.

{

Holding my breath

Im driving through the English countryside. A narrow road rising up to a tall oak tree. It could be Ireland. The call comes just before I reach the tree. Its my producer and she is excited. She has just received a call from the Sundance Film Festival, saying they would like to screen our film. I feel something shift inside me. She talks quickly, then gets off. I pass the tree. She calls back. Says she got another call and that they are really excited to screen our film. We exchange words of jubilation I cant remember and say goodbye. Im driving down the country road and I am changed.

{

I have been to many other festivals. I dont know why this one means so much to me. Maybe its because I grew up within my fathers world of cinema, where Robert Redford was a legend. The Natural was one of our favourite films. I dont know. But Ive often wondered if that was the moment motor neurone disease, or amyotrophic lateral sclerosis (ALS), began in me. That I had been holding my breath for years. And suddenly let go. And that something gave in that moment. Something gave.

{

My foot drops the following month.

Im walking through Dublin. From Rialto to Stephens Green. I stayed in a friends house the night before. Slept on the floor. Now I hear a slapping sound. My foot on the pavement.

Its a strange thing, like my foot has gone to sleep and is limp. It passes. I immediately relate it to the shoes Im wearing, brown and red funky things with no support whatsoever. I wonder if I damaged my foot on the mountain climb last year. So I go into the outdoors shop off Grafton Street, upstairs to the footwear department, and start trying on a pair of running shoes, determined to give my foot support.

I ask the salesman for assistance. This is a mountaineering shop so I feel confident he will understand and I start to explain how Id climbed a Himalayan mountain last year but Id been wearing these awful shoes with no support and now my foot has started to flop in them and had he ever seen something like that before? He looks at me. My innocence meets his concern. No, Ive never seen anything like that before, he says. The look in his eyes becomes a twinge in my stomach.

My first diagnosis is by a shoe salesman.

{

Baggot Street Bridge

Im sitting on an uncomfortable stool in the dingy basement apartment of a friend from college when a girl walks into the room. She is tall, slender and quite easily the most beautiful girl I have ever seen. She is crossing the back of the room with a friend of mine. My first thought is simply, How the hell did he get her? She is a girl from Ardee, County Louth. She is out of my league. Her name is Ruth.

{

I spent my whole life looking for Ruth.

Years after first seeing her, Im walking down OConnell Street with my parents, after coming out of the Savoy cinema, and I pass Ruth at a bus stop outside Clerys department store. I stop my parents and run back to her. We talk but behind our words, in our eyes meeting, something is there. I ask for her number and she opens her bag. Her hair is short and she looks stunning in a simple navy winter coat. Im cheeky. I see her pay slip in her bag and reach in, pretending to have a look. Ruth gives me her number, we say goodbye and I catch up with my parents. Its Thursday.

I dont call. Its too important.

The following Monday, Im walking up from Lansdowne station into work. Coming back from working in Ukraine, I had got a job no one else wanted. It was an accountancy practice with one accountant. That was the staff. Me and him. My job was to sit in a little back office and answer the phone. It never rang. Ever. I read all day. It was so quiet that the recruitment agency said no one had lasted more than a week in the place before me. I was getting through a book every three days. Paid to read. I had been there for months.

Im standing at Baggot Street Bridge, waiting to cross in a crowd of commuters. Its pre-coffee early and Im half asleep. The girl in front of me is wearing headphones. Her coat is navy. I realise and slowly reach out to touch her shoulder. Ruth turns around. She is half asleep and it takes her a moment to recognise me. She goes red. I go red. She fumbles off her headphones and the crowd crosses the bridge without us.

It takes a few moments of conversation to figure out that she works just down the road from me and has done for months. That we both walk the same way to work, at the same time, and have done for months. But that we hadnt met until four days after we bumped into each other for the first time in years. Wonderfully weird.

Embarrassed beyond reason, we hurry off.

{

We meet for lunch in Searsons pub on Baggot Street. Two large bowls of pasta sit between us. But my stomach is constricted. So is Ruths. We cannot eat. It is embarrassing. It is love.

{

At the weekend we go to the cinema with some friends. I sit beside Ruth. The air is magnetically charged with my desire to touch her.

{

We kiss for the first time a week after, in a basement nightclub off Wicklow Street, in the shadow of a doorway.

{

Empire State Building

This is it. My life is changed for ever.

My family is used to me talking all about love and the new person in my life. This time I tell them nothing. I let them meet Ruth for themselves. They are all nervous because of it. Ruth arrives and I watch her talk, move, blush and sit among them. Ive never felt prouder in my life.

{

Ruth. My whole body is on fire. Ive been in love before but never like this. It is not one thing or a list of things. It is everything. Im in a different place than Ive ever been. This is beyond any happiness Ive felt. Its not what we do or say, its about being together. Its wordless. We are animals, humans without words. I spend three days in her room. We only come out to eat. Sit in the back of taxis and travel wordlessly into Dublin to eat. We are creating a bond for life. Its obvious. We are consuming each other.

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