Esther Strauss Smoller - I cant remember: family stories of Alzheimers disease
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I cant remember: family stories of Alzheimers disease
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Foreword by Kathleen O'Brien, Executive Director, Alzheimer's Association, St. Louis Chapter
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Disclaimer: Some images in the original version of this book are not available for inclusion in the netLibrary eBook.
Temple University Press, Philadelphia 19122 Copyright 1997 by Temple University. All rights reserved Published 1997 Printed in the United States of America
The paper used in this publication meets the requirements of American National Standard for Information SciencesPermanence of Paper for Printed Library Materials, ANSI Z39.48-1984
Text design by Anne O'Donnell
Library of Congress Cataloging-in-Publication Data Smoller, Esther Strauss, 1934 I can't remember : family stories of Alzheimer's disease / Esther Strauss Smoller; foreword by Kathleen O'Brien. p. cm. Includes bibliographical references. ISBN 1-56639-555-0 ( alk. paper) 1. Alzheimer's diseasePatientsFamily relationships. 2. Alzheimer's diseasePatients Portraits. I. Title. RC523.2.S63 1997 362.1'96831dc21 97-1739
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To my husband and his mother
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Special thanks to David Hanlon and Marilyn Wechter
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Contents
Foreword
11
Preface
15
A Daughter's Dilemma
21
In Jim's Own Words
57
Jim's Wife Sherry's Story
73
Jean's Story
91
Useful Organiztions
127
Suggested Resources
131
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Foreword
To speak of Alzheimer's disease, one must talk about families. The disease affects every member of the family as they confront the physical, emotional, and financial demands of caregiving. Living with Alzheimer's means watching someone you love slowly become someone else... a person who does not recognize her children, or remember what he did an hour ago.
For the individual, the disease is frightening. Suddenly you do not remember where you are or where you were going. As the disease progresses, confusion and disorientation become the norm.
Living with Alzheimer's disease means facing challenges with courage. Once a diagnosis is made, decisions must be made about legal issues and future care. Feelings of denial, anger, and misunderstanding must be overcome.
But living with Alzheimer's disease also means taking time to treasure the good things that happen in life. There is always time to show compassion and loveto share and to remember before those memories are gone forever.
Alzheimer's disease is a progressive, degenerative disease that attacks the brain and impairs memory, thinking, and behavior. Alz-
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heimer's plays no favorites: It affects men and women of all ages, races, socioeconomic backgrounds, and degrees of celebrity. The disease results in disorientation, gradual memory loss, personality changes, loss of language skills, impairment of judgment, and a decline in ability to perform routine tasks. The disease eventually leaves people incapable of caring for themselves.
Currently, there is no effective treatment or cure available to stop or reverse the course of Alzheimer's disease. The disease can continue from three to twenty years after symptoms first become apparent. More than four million Americans have Alzheimer's disease, making it the fourth-leading cause of death among adults. As the population lives longer, more people will have Alzheimer's. Unless a cure or treatment is found, it is estimated that more than 14 million people will have the disease by 2040.
The Alzheimer's Association was founded in 1981 to provide help and hope for families dealing with Alzheimer's disease. The association helps to enhance the quality of life through comprehensive educational programs, compassionate services, access to resources, and support for research. Knowledge provides strength for caregivers, and research holds the key to a future without Alzheimer's disease.
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The paper used in this publication meets the requirements of American National Standard for Information SciencesPermanence of Paper for Printed Library Materials, ANSI Z39.48-1984