Audrey L. Holland - Neurogenic Communication Disorders and the Life Participation Approach: The Social Imperative in Supporting Individuals and Families

Neurogenic Communication Disorders and the Life Participation Approach

THE SOCIAL IMPERATIVE IN SUPPORTING INDIVIDUALS AND FAMILIES

Neurogenic Communication Disorders and the Life Participation Approach

THE SOCIAL IMPERATIVE IN SUPPORTING INDIVIDUALS AND FAMILIES

Audrey L. Holland

PhD, CCC-SLP, BC-ANCDS

Roberta J. Elman

PhD, CCC-SLP, BC-ANCDS

5521 Ruffin Road

San Diego, CA 92123

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Website: https://www.pluralpublishing.com

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Library of Congress Cataloging-in-Publication Data

Names: Holland, Audrey L., editor. | Elman, Roberta J., editor.

Title: Neurogenic communication disorders and the life participation approach : the social imperative in supporting individuals and families / [edited by] Audrey L. Holland, Roberta J. Elman.

Description: San Diego, CA : Plural Publishing, [2021] | Includes bibliographical references and index.

Identifiers: LCCN 2020016177 | ISBN 9781635502954 (paperback) | ISBN 1635502950 (paperback) | ISBN 9781635502893 (ebook)

Subjects: MESH: Aphasiatherapy | Communication Disorderstherapy | Patient Participation | Patient-Centered Care | Life Style | Quality of Life

Classification: LCC RC425 | NLM WL 340.5 | DDC 616.85/52dc23

LC record available at https://lccn.loc.gov/2020016177

CONTENTS

(in alphabetical order: Roberta Chapey, Judith Duchan, Roberta J. Elman, Linda Garcia, Aura Kagan, Jon Lyon, and Nina Simmons-Mackie)

Audrey L. Holland

Roberta J. Elman

Sarah Baar

Thomas W. Sather and Tami J. Howe

Katie A. Strong and Barbara B. Shadden

Rebecca Khayum and Aimee R. Mooney

Natalie F. Douglas and Delainey Smyth

Peter Meulenbroek and Louise C. Keegan

Nina Simmons-Mackie

When Amy Hanson from SpeechPathology.com asked me to organize a symposium on Life Participation in Aphasia for their online educational service, I jumped at the chance. The symposium was to be conducted for one week, one hour a day for five weekdays. And I knew immediately what I wanted to do: capture one writer of the LPAA statement, and surround her with four youngsters to the 20+ year-old movement. Roberta Elman was my first choice, and she said yes. I then gathered a list of possible others, which was considerable, and rather arbitrarily chose four who had different interests, to join Roberta. I wanted relative newbies, because I thought it was time for new voices to be heard, but I had scads of backups. (The world is changing!!) AND all four said yes! I, who am a visual rather than auditory learner, planned to listen to all the webinars, of course, but with pain. Surprise! When Friday rolled around and it was over, I had learned, and enjoyed every single minute of the listening. Thinking to strike while the iron was still hot, I called each participant and asked (Roberta first) if they would be interested in turning the whole thing into a book. Once again, all said yes! And I decided to reach into my bag of tricks and find a few more. Once again, original speakers were joined by two more first choices, and we were off and running. You will note that some of the co-authors might have more familiar names. First authors chose them, as they saw fit. Others went with less familiar people. Finally, we felt flattered when Nina Simmons-Mackie agreed to take a last look over everyones efforts. So what we have here are essentially young voices, joined in some cases by other young voices, or by more experienced ones. We hope you enjoy, but more importantly LEARN from reading our efforts about the history of the movement, some treatment and assessment approaches that can fit into the strictures of current day health care, and provide ideas for moving away from simply concentrating on the impairments but moving on to how whose impairments have impact on everyday life.

ALH

When Audrey Holland asked me to be part of the webinar series, I was truly honored and excited! Being part of a project that focused on helping clinicians apply a life participation approach to their own practice had become part of my lifes mission. And my excitement rose higher when Audrey shared the idea of creating a book based on the five webinars, plus adding contributions from a few others. The current book represents our collective efforts.

In the prologue to the book, you will find the Life Participation Approach to Aphasia (LPAA) article that was originally published in the ASHA Leader in 2000. This serves as a foundation for the nine chapters that follow. First up is Audreys chapter. In it, she weaves her personal career together with the life participation movement and its leaders throughout the English-speaking world. In , Nina Simmons-Mackie completes the book with her thoughts on the past, present, and future of LPAA.

RJE

We hope you find this book inspiring and relevant to your present or future clinical practice!

Audrey: In remembrance of four visionaries: Mike Adler, Pat Arato, Shirley Morgenstein, and Claire Penn.

Roberta: To the people and creatures who have enriched my life participation...

Sarah Baar, MA, CCC-SLP

Honeycomb Speech Therapy

Ada, Michigan

Natalie F. Douglas, PhD, CCC-SLP

Associate Professor

Central Michigan University

Mount Pleasant, Michigan

Roberta J. Elman, PhD, CCC-SLP, BC-ANCDS

President and Founder

Aphasia Center of California

Oakland and Menlo Park, California

Audrey L. Holland, PhD, CCC-SLP, BC-ANCDS

Regents Professor Emerita

University of Arizona

Department of Speech, Language, and Hearing Sciences

University of Arizona

Tucson, Arizona

Tami J. Howe, PhD

Assistant Professor

School of Audiology and Speech Sciences

Faculty of Medicine

University of British Colombia

Vancouver, British Colombia, Canada

Louise C. Keegan, PhD, CCC-SLP

Associate Professor

Program Director of Speech-Language Pathology

Moravian College

Bethlehem, Pennsylvania

Rebecca Khayum, MS, CCC-SLP

President, Memory Care Corporation

Adjunct Instructor